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  1. L. Abramsky (2001). Genetic Information: Acquisition, Access, and Control: Edited by Alison K Thompson and Ruth F Chadwick, New York, Kluwer Academic/Plenum Publishers, 1999, 348 Pages, $115 (Hc). [REVIEW] Journal of Medical Ethics 27 (3):213-a-214.
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  2. J. Adams (1992). Predictive Testing for Huntington Disease-Response. Journal of Medical Ethics 18 (1):48-48.
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  3. P. Affleck (2009). Is It Ethical to Deny Genetic Research Participants Individualised Results? Journal of Medical Ethics 35 (4):209-213.
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  4. Henry David Aiken, Bruce Hilton, the Life Sciences John E. Fogarty International Center for Advanced Study in the Health Sciences & Ethics Institute of Society (1973). Ethical Issues in Human Genetics: Genetic Counseling and the Use of Genetic Knowledge. Monograph Collection (Matt - Pseudo).
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  5. Anita L. Allen (2009). The Poetry of Genetics: On the Pitfalls of Popularizing Science. Hypatia 24 (4):247 - 257.
    The role genetic inheritance plays in the way human beings look and behave is a question about the biology of human sexual reproduction, one that scientists connected with the Human Genome Project dashed to answer before the close of the twentieth century. This is also a question about politics, and, it turns out, poetry, because, as the example of Lucretius shows, poetry is an ancient tool for the popularization of science. "Popularization" is a good word for successful efforts to communicate (...)
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  6. Mary R. Anderlik (2003). Commercial Biobanks and Genetic Research: Banking Without Checks? In Bartha Maria Knoppers (ed.), Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff 345--373.
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  7. Anne N. Angwenyi (2009). The Law-Making Process of Access and Benefit-Sharing Regulations : The Case of Kenya. In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan
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  8. Jonny Anomaly (2014). Race, Genes, and the Ethics of Belief: A Review of Nicholas Wade, A Troublesome Inheritance. [REVIEW] Hastings Center Report 44 (5):51-52.
  9. Andrew Askland (2003). Patenting Genes. International Journal of Applied Philosophy 17 (2):267-275.
    Patents have been issued in the United States for genes and gene sequences since 1980. Patent protection has provided incentives to aggressively probe the genome of humans and non-humans alike in search of profitable applications. Yet it is not clear that patent protection should have been afforded to genes and gene sequences and it is increasingly clear that patent protection, as currently formulated, is not an appropriate means to realize the full benefits of genetic research. As we stand on the (...)
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  10. Manuel Atienza (2004). Bioética, Derecho y Argumentación. Temis.
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  11. Harold W. Baillie, William A. Galston, Sara Goering, Deborah Hellman, Mark Sagoff, Paul B. Thompson, Robert Wachbroit, David T. Wasserman & Richard M. Zaner (2003). Genetic Prospects: Essays on Biotechnology, Ethics, and Public Policy. Rowman & Littlefield Publishers.
    The essays in this volume apply philosophical analysis to address three kinds of questions: What are the implications of genetic science for our understanding of nature? What might it influence in our conception of human nature? What challenges does genetic science pose for specific issues of private conduct or public policy?
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  12. Matthew J. Barker (2015). Science and Values. Eugenics Archive.
  13. Tom L. Beauchamp (1987). Medical Ethics in the Age of Technology. In Hans Mark & W. Lawson Taitte (eds.), Traditional Moral Values in the Age of Technology. Distributed by the University of Texas Press
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  14. Florence Bellivier (2006). Contrats Et Vivant: Le Droit de la Circulation des Ressources Biologiques. L.G.D.J..
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  15. Miriam Bentwich (2012). It's About Scientific Secrecy, Dummy: A Better Equilibrium Among Genomics Patenting, Scientific Research and Health Care. [REVIEW] Science and Engineering Ethics 18 (2):263-284.
    This paper offers a different pragmatic and patent-based approach to concerns regarding the negative effects of genetic-based patenting on advancing scientific research and providing adequate and accessible health care services. At the basis of this approach lies an explication of a mandatory provisional patented paper procedure (PPPA), designed for genetic-based patents and administered by leading scientific journals in the field, while officially acknowledged by the USPTO, and subsequently by other patent offices as well. It is argued that the uniqueness of (...)
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  16. Walter F. Bodmer (1987). Human Genetics: The Molecular Challenge. Bioessays 7 (1):41-45.
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  17. Jasper A. Bovenberg (2006). Property Rights in Blood, Genes and Data: Naturally Yours? Martinus Nijhoff Publishers.
    The properties of DNA -- DNA as universal property -- DNA as intellectual property -- DNA as national property -- DNA as personal property -- DNA as academic property -- DNA as taxable propety.
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  18. Ingrid Brena Sesma (ed.) (2005). Células Troncales: Aspectos Científicos-Filosóficos y Jurídicos. Universidad Nacional Autónoma de México.
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  19. Ingrid Brena Sesma (ed.) (2005). Salud y Derecho: Memoria Del Congreso Internacional de Culturas y Sistemas Jurídicos Comparados. Universidad Nacional Autónoma de México.
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  20. Barry Brown (2001). The Case for Caution ? Being Protective of Human Dignity in the Face of Corporate Forces Taking Title to Our DNA. Journal of Law, Medicine & Ethics 29 (2):166-169.
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  21. Roger Brownsword, W. R. Cornish & Margaret Llewelyn (eds.) (1998). Law and Human Genetics: Regulating a Revolution. Hart Pub..
    This special issue of the Modern Law Review addresses a range of key issues - conceptual, ethical, political and practical - arising from the regulatory ...
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  22. Justine Burley & John Harris (1996). A Companion to Genethics. In Dennis M. Patterson (ed.). Blackwell Publishers
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  23. Omar Campohermoso Rodríguez (2007). Etica, Bioética y Derecho Genético. Elite Impresiones.
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  24. Romeo Casabona, Carlos María & Juliane Fernandes Queiroz (eds.) (2005). Biotecnologia E Suas Implicações Ético-Jurídicas. Del Rey.
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  25. María Casado González (2004). Las Leyes de la Bioética. Gedisa Editorial.
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  26. Ruth Chadwick (ed.) (1994). Ethics, Reproduction and Genetic Control. Routledge.
    In this revised edition with a new preface from the editor, leading scientists explain the nature and goals of `test tube' reproduction and genetic engineering, and their eugenic implications. In contrast to the Warnock report, the extended commentary considers the issues in the context of a social ethic rather than the individualist viewpoint.
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  27. Ruth Chadwick & Bartha Maria Knoppers, Human Genetic Research: Emerging Trends in Ethics.
    Genetic research has moved from Mendelian genetics to sequence maps to the study of natural human genetic variation at the level of the genome. This past decade of discovery has been accompanied by a shift in emphasis towards the ethical principles of reciprocity, mutuality, solidarity, citizenry and universality.
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  28. Ben Chan, Flavia M. Facio, Haley Eidem, Sara Chandros Hull, Leslie G. Biesecker & Benjamin E. Berkman (2012). Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives. American Journal of Bioethics 12 (10):1-8.
    Whole-genome analysis and whole-exome analysis generate many more clinically actionable findings than traditional targeted genetic analysis. These findings may be relevant to research participants themselves as well as for members of their families. Though researchers performing genomic analyses are likely to find medically significant genetic variations for nearly every research participant, what they will find for any given participant is unpredictable. The ubiquity and diversity of these findings complicate questions about disclosing individual genetic test results. We outline an approach for (...)
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  29. David K. Chan (2015). The Concept of Human Dignity in the Ethics of Genetic Research. Bioethics 29 (4):274-282.
    Despite criticism that dignity is a vague and slippery concept, a number of international guidelines on bioethics have cautioned against research that is contrary to human dignity, with reference specifically to genetic technology. What is the connection between genetic research and human dignity? In this article, I investigate the concept of human dignity in its various historical forms, and examine its status as a moral concept. Unlike Kant's ideal concept of human dignity, the empirical or relational concept takes human dignity (...)
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  30. David K. Chan (2005). Should Human Genes Be Patented? Philosophy in the Contemporary World 12 (2):30-36.
    The ethics of gene patenting is concerned with whether human genes are the kind of thing that is appropriate for patenting, and whether it is ethical to do so. Is genetic technology a special case compared to other medical technology that have been patented? Much of the debate has revolved around the benefits and harms of allowing gene sequences to be patented. In this paper, I am concerned with a non-consequential consideration: Can someone patent my genes? If genes are the (...)
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  31. Roger Scarlin Chennells, Equitable Access to Human Biological Resources in Developing Countries: Benefit Sharing Without Undue Inducement.
    The main research question of this thesis is: How can cross-border access to human genetic resources, such as blood or DNA samples, be governed to achieve equity for developing countries? Access to and benefit sharing for human biological resources is not regulated through an international legal framework such as the Convention on Biological Diversity, which applies only to plants, animals and micro-organisms as well as associated traditional knowledge. This legal vacuum for the governance of human genetic resources can be attributed (...)
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  32. Wevelsiep Christian (2000). Genetic Advisory-Communication Structure. Ethik in der Medizin 12 (2).
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  33. Chen Chung-Lin (2012). From UNESCO's Declaration to National Law: Challenges of Legislating Community Benefit-Sharing of Genetic Research. Asian Bioethics Review 4 (2):90-101.
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  34. Bernice H. Cohen, Abraham M. Lilienfeld & P. C. Huang (1978). Genetic Issues in Public Health and Medicine.
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  35. Celeste Michelle Condit (1999). The Meanings of the Gene: Public Debates About Human Heredity. University of Wisconsin Press.
    The work of scientists and doctors in advancing genetic research and its applications has been accompanied by plenty of discussion in the popular press—from Good Housekeeping and Forbes to Ms. and the Congressional Record—about such ...
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  36. Ross Coppel (1989). One View of Genetic Engineering, 15 Years On.Genetic Engineering: Catastrophe or Utopia?By Peter Wheale and Ruth McNally. Harvester-Wheatsheaf, London, 350pp. Hardback £73.50, $66.39; Paperback £10.95, $19.40. [REVIEW] Bioessays 11 (2-3):74-74.
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  37. Thomas V. Cunningham (2014). Nonreductive Moral Classification and the Limits of Philosophy. American Journal of Bioethics 14 (2):22-24.
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  38. G. Czihak & Th Rassem (1994). Dawn of Human Genetics. NTM International Journal of History and Ethics of Natural Sciences, Technology & Medicine 2 (1):175-182.
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  39. Arthur Ernest Davies (1910). Library of Genetic Science and Philosophy. Vol. I: The Moral Life. A Study in Genetic Ethics. Philosophical Review 19 (4):450-452.
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  40. Giovanni De Grandis & Vidar Halgunset (2016). Conceptual and Terminological Confusion Around Personalised Medicine: A Coping Strategy. BMC Medical Ethics 17 (43):1-12.
    The idea of personalised medicine (PM) has gathered momentum recently, attracting funding and generating hopes as well as scepticism. As PM gives rise to differing interpretations, there have been several attempts to clarify the concept. In an influential paper published in this journal, Schleidgen and colleagues have proposed a precise and narrow definition of PM on the basis of a systematic literature review. Given that their conclusion is at odds with those of other recent attempts to understand PM, we consider (...)
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  41. Bram De Jonge (2008). Between Sharing and Protecting: Public Research on Genetic Resources in the Year of the Potato. Genomics, Society and Policy 4:10-25.
    Countries, companies and farming communities are increasingly involved in issues of sharing and protecting plant genetic resources, knowledge and technologies. Intellectual Property Rights and Access and Benefit-Sharing policies currently regulate the transfer and usage of much of this genetic material, information and related production, which is employed in multiple research projects involving public research institutes. Strikingly, not much is known about how these institutes deal with the transfer and usage regulations. And what, furthermore, are their responsibilities while serving a civil (...)
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  42. Inmaculada de Melo-Martin (forthcoming). When the Milk of Human Kindness Becomes a Luxury (and Untested) Good. A Reply to Harris’ Unconditional Embrace of Mitochondrial Replacement Techniques. Cambridge Quarterly of Healthcare Ethics.
    A new reprogenetic technology, mitochondrial replacement, is making its appearance and, unsurprisingly given its promise to wash off our earthly stains --or at least the scourges of sexual reproduction--, John Harris finds only reasons to celebrate this new scientific feat.1 In fact, he finds mitochondrial replacement techniques (MRTs) so “unreservedly welcome” that he believes those who reject them suffer from “a large degree of desperation and not a little callousness.”2 Believing myself to be neither desperate nor callous, but finding myself (...)
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  43. Inmaculada de Melo-Martin (2014). The Ethics of Anonymous Gamete Donation: Is There a Right to Know One's Genetic Origins? Hastings Center Report 44 (2).
    A growing number of jurisdictions hold that gamete donors must be identifiable to the children born with their eggs or sperm, on grounds that being able to know about one's genetic origins is a fundamental moral right. But the argument for that belief has not yet been adequately made.
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  44. J. de Vries & M. Pepper (2012). Genomic Sovereignty and the African Promise: Mining the African Genome for the Benefit of Africa. Journal of Medical Ethics 38 (8):474-478.
    Scientific interest in genomics in Africa is on the rise with a number of funding initiatives aimed specifically at supporting research in this area. Genomics research on material of African origin raises a number of important ethical issues. A prominent concern relates to sample export, which is increasingly seen by researchers and ethics committees across the continent as being problematic. The concept of genomic sovereignty proposes that unique patterns of genomic variation can be found in human populations, and that these (...)
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  45. Michael J. Deem (2017). Vulnerability in Genetic Counseling and the Ground of Nondirectiveness. In Straehle Christine (ed.), Vulnerability, Autonomy, and Applied Ethics. Routledge 138-156.
  46. Pino Donghi (2002). La Nuova Odissea. Monograph Collection (Matt - Pseudo).
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  47. Jennifer Doran (2000). Administrative Developments: Celera Genomics to Complete DNA Map. Journal of Law, Medicine & Ethics 28 (2):188-189.
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  48. Conor Douglas, Carla van El, Maud Radstake, Sarah van Teeffelen & Martina C. Cornel (2012). The Politics of Representation in the Governance of Emergent 'Secondary Use' Biobanks: The Case of Dried Blood Spot Cards in the Netherlands. Studies in Ethics, Law, and Technology 6 (1).
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  49. Birgitta Forsman (1995). The Treatment of Ethics in a Swedish Government Commission on Gene Technology. The Royal Society of Arts and Sciences in Gothenburg, Centre for Research Ethics.
  50. Magali Franceschi (2004). Droit Et Marchandisation de la Connaissance Sur les Gènes Humains. Cnrs.
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