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  1. Henry David Aiken, Bruce Hilton, the Life Sciences John E. Fogarty International Center for Advanced Study in the Health Sciences & Ethics Institute of Society (1973). Ethical Issues in Human Genetics: Genetic Counseling and the Use of Genetic Knowledge. Monograph Collection (Matt - Pseudo).
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  2. Anita L. Allen (2009). The Poetry of Genetics: On the Pitfalls of Popularizing Science. Hypatia 24 (4):247 - 257.
    The role genetic inheritance plays in the way human beings look and behave is a question about the biology of human sexual reproduction, one that scientists connected with the Human Genome Project dashed to answer before the close of the twentieth century. This is also a question about politics, and, it turns out, poetry, because, as the example of Lucretius shows, poetry is an ancient tool for the popularization of science. "Popularization" is a good word for successful efforts to communicate (...)
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  3. Mary R. Anderlik (2003). Commercial Biobanks and Genetic Research: Banking Without Checks? In Bartha Maria Knoppers (ed.), Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff. 345--373.
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  4. Anne N. Angwenyi (2009). The Law-Making Process of Access and Benefit-Sharing Regulations : The Case of Kenya. In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan.
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  5. Jonny Anomaly (2014). Race, Genes, and the Ethics of Belief: A Review of Nicholas Wade, A Troublesome Inheritance. [REVIEW] Hastings Center Report 44 (5):51-52.
  6. Andrew Askland (2003). Patenting Genes. International Journal of Applied Philosophy 17 (2):267-275.
    Patents have been issued in the United States for genes and gene sequences since 1980. Patent protection has provided incentives to aggressively probe the genome of humans and non-humans alike in search of profitable applications. Yet it is not clear that patent protection should have been afforded to genes and gene sequences and it is increasingly clear that patent protection, as currently formulated, is not an appropriate means to realize the full benefits of genetic research. As we stand on the (...)
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  7. Manuel Atienza (2004). Bioética, Derecho y Argumentación. Temis.
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  8. Harold W. Baillie, William A. Galston, Sara Goering, Deborah Hellman, Mark Sagoff, Paul B. Thompson, Robert Wachbroit, David T. Wasserman & Richard M. Zaner (2003). Genetic Prospects: Essays on Biotechnology, Ethics, and Public Policy. Rowman & Littlefield Publishers.
  9. Tom L. Beauchamp (1987). Medical Ethics in the Age of Technology. In Hans Mark & W. Lawson Taitte (eds.), Traditional Moral Values in the Age of Technology. Distributed by the University of Texas Press.
  10. Florence Bellivier (2006). Contrats Et Vivant: Le Droit de la Circulation des Ressources Biologiques. L.G.D.J..
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  11. Miriam Bentwich (2012). It's About Scientific Secrecy, Dummy: A Better Equilibrium Among Genomics Patenting, Scientific Research and Health Care. [REVIEW] Science and Engineering Ethics 18 (2):263-284.
    This paper offers a different pragmatic and patent-based approach to concerns regarding the negative effects of genetic-based patenting on advancing scientific research and providing adequate and accessible health care services. At the basis of this approach lies an explication of a mandatory provisional patented paper procedure (PPPA), designed for genetic-based patents and administered by leading scientific journals in the field, while officially acknowledged by the USPTO, and subsequently by other patent offices as well. It is argued that the uniqueness of (...)
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  12. Walter F. Bodmer (1987). Human Genetics: The Molecular Challenge. Bioessays 7 (1):41-45.
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  13. Jasper A. Bovenberg (2006). Property Rights in Blood, Genes and Data: Naturally Yours? Martinus Nijhoff Publishers.
    The properties of DNA -- DNA as universal property -- DNA as intellectual property -- DNA as national property -- DNA as personal property -- DNA as academic property -- DNA as taxable propety.
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  14. Ingrid Brena Sesma (ed.) (2005). Células Troncales: Aspectos Científicos-Filosóficos y Jurídicos. Universidad Nacional Autónoma de México.
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  15. Ingrid Brena Sesma (ed.) (2005). Salud y Derecho: Memoria Del Congreso Internacional de Culturas y Sistemas Jurídicos Comparados. Universidad Nacional Autónoma de México.
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  16. Barry Brown (2001). The Case for Caution ? Being Protective of Human Dignity in the Face of Corporate Forces Taking Title to Our DNA. Journal of Law, Medicine and Ethics 29 (2):166-169.
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  17. Roger Brownsword, W. R. Cornish & Margaret Llewelyn (eds.) (1998). Law and Human Genetics: Regulating a Revolution. Hart Pub..
    This special issue of the Modern Law Review addresses a range of key issues - conceptual, ethical, political and practical - arising from the regulatory ...
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  18. Justine Burley & John Harris (1996). A Companion to Genethics. In Dennis M. Patterson (ed.). Blackwell Publishers.
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  19. Omar Campohermoso Rodríguez (2007). Etica, Bioética y Derecho Genético. Elite Impresiones.
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  20. Romeo Casabona, Carlos María & Juliane Fernandes Queiroz (eds.) (2005). Biotecnologia E Suas Implicações Ético-Jurídicas. Del Rey.
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  21. María Casado González (2004). Las Leyes de la Bioética. Gedisa Editorial.
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  22. Ruth Chadwick (ed.) (1994). Ethics, Reproduction and Genetic Control. Routledge.
    In this revised edition with a new preface from the editor, leading scientists explain the nature and goals of `test tube' reproduction and genetic engineering, and their eugenic implications. In contrast to the Warnock report, the extended commentary considers the issues in the context of a social ethic rather than the individualist viewpoint.
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  23. Ruth Chadwick & Bartha Maria Knoppers, Human Genetic Research: Emerging Trends in Ethics.
    Genetic research has moved from Mendelian genetics to sequence maps to the study of natural human genetic variation at the level of the genome. This past decade of discovery has been accompanied by a shift in emphasis towards the ethical principles of reciprocity, mutuality, solidarity, citizenry and universality.
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  24. Ben Chan, Flavia M. Facio, Haley Eidem, Sara Chandros Hull, Leslie G. Biesecker & Benjamin E. Berkman (2012). Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives. American Journal of Bioethics 12 (10):1-8.
    Whole-genome analysis and whole-exome analysis generate many more clinically actionable findings than traditional targeted genetic analysis. These findings may be relevant to research participants themselves as well as for members of their families. Though researchers performing genomic analyses are likely to find medically significant genetic variations for nearly every research participant, what they will find for any given participant is unpredictable. The ubiquity and diversity of these findings complicate questions about disclosing individual genetic test results. We outline an approach for (...)
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  25. Chen Chung-Lin (2012). From UNESCO's Declaration to National Law: Challenges of Legislating Community Benefit-Sharing of Genetic Research. Asian Bioethics Review 4 (2):90-101.
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  26. Ross Coppel (1989). One View of Genetic Engineering, 15 Years On.Genetic Engineering: Catastrophe or Utopia? By Peter Wheale and Ruth McNally. Harvester-Wheatsheaf, London, 350pp. Hardback �73.50, $66.39; Paperback �10.95, $19.40. [REVIEW] Bioessays 11 (2-3):74-74.
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  27. Inmaculada de Melo-Martin (2014). The Ethics of Anonymous Gamete Donation: Is There a Right to Know One's Genetic Origins? Hastings Center Report 44 (2).
    A growing number of jurisdictions hold that gamete donors must be identifiable to the children born with their eggs or sperm, on grounds that being able to know about one's genetic origins is a fundamental moral right. But the argument for that belief has not yet been adequately made.
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  28. J. de Vries & M. Pepper (2012). Genomic Sovereignty and the African Promise: Mining the African Genome for the Benefit of Africa. Journal of Medical Ethics 38 (8):474-478.
    Scientific interest in genomics in Africa is on the rise with a number of funding initiatives aimed specifically at supporting research in this area. Genomics research on material of African origin raises a number of important ethical issues. A prominent concern relates to sample export, which is increasingly seen by researchers and ethics committees across the continent as being problematic. The concept of genomic sovereignty proposes that unique patterns of genomic variation can be found in human populations, and that these (...)
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  29. Jennifer Doran (2000). Administrative Developments: Celera Genomics to Complete DNA Map. Journal of Law, Medicine and Ethics 28 (2):188-189.
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  30. Conor Douglas, Carla van El, Maud Radstake, Sarah van Teeffelen & Martina C. Cornel (2012). The Politics of Representation in the Governance of Emergent 'Secondary Use' Biobanks: The Case of Dried Blood Spot Cards in the Netherlands. Studies in Ethics, Law, and Technology 6 (1).
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  31. Elsas (1981). Human Genetics Human Genetics: Problems and Approaches Vogel Motulsky. BioScience 31 (11):847-847.
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  32. Birgitta Forsman (1995). The Treatment of Ethics in a Swedish Government Commission on Gene Technology. The Royal Society of Arts and Sciences in Gothenburg, Centre for Research Ethics.
  33. Magali Franceschi (2004). Droit Et Marchandisation de la Connaissance Sur les Gènes Humains. Cnrs.
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  34. Jeanne Salmon Freeman (1996). Arguing Along the Slippery Slope of Human Embryo Research. Journal of Medicine and Philosophy 21 (1):61-81.
    One frequent argument in the debate over federal funding of human embryo research is the slippery slope argument. Slope arguments can be of several types: either logical, empirical, or full (a combination of logical and empirical slope arguments, with an additional psychological premise). A full slope argument against human embryo research suggests that funding embryo reseach could undermine current protections for human subjects research, erode respect for persons with disabilities, and encourage eugenics practices. While the Panel commissioned by the National (...)
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  35. Minou Bernadette Friele (2008). Rechtsethik der Embryonenforschung: Rechtsharmonisierung in Moralisch Umstrittenen Bereichen. Mentis.
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  36. Isabelle Ganache (2006). " Commercial Revolution" of Science: The Complex Reality and Experience of Genetic and Genomic Scientists. Genomics, Society and Policy 2:96-114.
    According to advocates and authors from different disciplines interested in biomedicine, biomedical research in genetics and genomics has the potential to transform medicine, the economy, society, and humanity as a whole. Believing in this potential, biomedical scientists produce knowledge and participate in the decisions concerning the orientation of this research and its applications. Through a qualitative analysis of scientists’ practice-related discourse, we identified three main sources of complexity in their involvement in the “commercial revolution” of science. First, scientists insist on (...)
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  37. Lisa Gannett (2010). Questions Asked and Unasked: How by Worrying Less About the 'Really Real' Philosophers of Science Might Better Contribute to Debates About Genetics and Race. Synthese 177 (3):363 - 385.
    Increased attention paid to inter-group genetic variability following completion of the Human Genome Project has provoked debate about race as a category of classification in biomedicine and as a biological phenomenon at the level of the genome. Philosophers of science favor a metaphysical approach relying on natural kind theorizing, the underlying assumptions of which structure the questions asked. Limitations arise the more metaphysically invested and less attuned to scientific practice these questions are. Other questions—arguably, those that matter most socially and (...)
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  38. Lisa Gannett (2001). Racism and Human Genome Diversity Research: The Ethical Limits of "Population Thinking". Proceedings of the Philosophy of Science Association 2001 (3):S479-.
    This paper questions the prevailing historical understanding that scientific racism "retreated" in the 1950s when anthropology adopted the concepts and methods of population genetics and race was recognized to be a social construct and replaced by the concept of population. More accurately, a "populational" concept of race was substituted for a "typological one"-this is demonstrated by looking at the work of Theodosius Dobzhansky circa 1950. The potential for contemporary research in human population genetics to contribute to racism needs to be (...)
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  39. Gail Geller, Ellen S. Tambor, Barbara A. Bernhardt, Gary A. Chase, Karen J. Hofman, Ruth R. Faden & Neil A. Holtzman (1993). Physicians'Attitudes Toward Disclosure of Genetic Information to Third Parties. Journal of Law, Medicine and Ethics 21 (2):238-240.
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  40. Robert P. George (2006). Ethics, Politics, and Genetic Knowledge. Social Research: An International Quarterly 73 (3):1029-1032.
    While we should acknowledge the blessings that genetic knowledge, and the biotechnologies it makes possible, have delivered or will deliver soon, there are urgent worries to consider. The first worry is that we may compromise, or further compromise, in both science and politics, the principle that every human being, irrespective of age, size, mental or physical condition, stage of development, or condition of dependency, possesses inherent worth and dignity and a right to life. The second worry, closely related, is that (...)
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  41. Christiane Gerstetter (2009). Sharing the Benefits of Using Traditionally Cultured Genetic Resources Fairly. In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge, and the Law Solutions for Access and Benefit Sharing. Earthscan.
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  42. James Giordano (2010). Neuroethical Issues in Neurogenetic and Neuro-Implantation Technology: The Need for Pragmatism and Preparedness in Practice and Policy. Studies in Ethics, Law, and Technology 4 (3).
    This comment responds to a remark made by Meloni et al concerning brain implants and brain-gene transfer—that we ought to give primacy to ethical issues inherent to medical utility rather than speculating on issues of potential misuse. It foregrounds the benefits, burdens and risks as well as how to validate consent to the use of such novel and uncertain techniques. It asks how legal claims would be handled in the absence of historical casuistry—constructs of responsibility and culpability for resultant harms. (...)
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  43. Jack K. Githae (2009). Potential of TK for Conventional Therapy : Prospects and Limits. In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan.
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  44. Ugarte Godoy & José Joaquín (2006). El Derecho de la Vida: El Derecho a la Vida: Bioética y Derecho. Editorial Jurídica de Chile.
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  45. Lawrence O. Gostin (1995). Genetic Privacy. Journal of Law, Medicine and Ethics 23 (4):320-330.
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  46. Dov Greenbaum & Mark Gerstein (2011). The Role of Cloud Computing in Managing the Deluge of Potentially Private Genetic Data. American Journal of Bioethics 11 (11):39-41.
    The American Journal of Bioethics, Volume 11, Issue 11, Page 39-41, November 2011.
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  47. Zaid Hamzah (2007). Biomedical Science: Law & Practice: From R & D to Market. Sweet & Maxwell Asia.
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  48. Gail E. Henderson, Eric T. Juengst, Nancy M. P. King, Kristine Kuczynski & Marsha Michie (2012). What Research Ethics Should Learn From Genomics and Society Research: Lessons From the ELSI Congress of 2011. Journal of Law, Medicine and Ethics 40 (4):1008-1024.
    Research on the ethical, legal, and social implications (ELSI) of human genomics has devoted significant attention to the research ethics issues that arise from genomic science as it moves through the translational process. Given the prominence of these issues in today's debates over the state of research ethics overall, these studies are well positioned to contribute important data, contextual considerations, and policy arguments to the wider research ethics community's deliberations, and ultimately to develop a research ethics that can help guide (...)
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  49. Isabelle Hirtzlin, Christine Dubreuil, Nathalie Préaubert, Jenny Duchier, Brigitte Jansen, Jürgen Simon, Paula Lobatao De Faria, Anna Perez-Lezaun, Bert Visser, Garrath D. Williams, Anne Cambon-Thomsen & The Eurogenbank Consortium, An Empirical Survey on Biobanking of Human Genetic Material and Data in Six EU Countries.
    Biobanks correspond to different situations: research and technological development, medical diagnosis or therapeutic activities. Their status is not clearly defined. We aimed to investigate human biobanking in Europe, particularly in relation to organisational, economic and ethical issues in various national contexts. Data from a survey in six EU countries were collected as part of a European Research Project examining human and non-human biobanking . A total of 147 institutions concerned with biobanking of human samples and data were investigated by questionnaires (...)
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  50. James Hudson (2001). The Passionate Opposition to Hereditarianism. Journal of Social Philosophy 32 (1):1–17.
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