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  1. Anne N. Angwenyi (2009). The Law-Making Process of Access and Benefit-Sharing Regulations : The Case of Kenya. In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan.
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  2. Jonny Anomaly (forthcoming). Race, Genes, and the Ethics of Belief: A Review of Nicholas Wade, A Troublesome Inheritance. [REVIEW] Hastings Center Report.
  3. Andrew Askland (2003). Patenting Genes. International Journal of Applied Philosophy 17 (2):267-275.
    Patents have been issued in the United States for genes and gene sequences since 1980. Patent protection has provided incentives to aggressively probe the genome of humans and non-humans alike in search of profitable applications. Yet it is not clear that patent protection should have been afforded to genes and gene sequences and it is increasingly clear that patent protection, as currently formulated, is not an appropriate means to realize the full benefits of genetic research. As we stand on the (...)
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  4. Manuel Atienza (2004). Bioética, Derecho y Argumentación. Temis.
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  5. Tom L. Beauchamp (1987). Medical Ethics in the Age of Technology. In Hans Mark & W. Lawson Taitte (eds.), Traditional Moral Values in the Age of Technology. Distributed by the University of Texas Press.
  6. Florence Bellivier (2006). Contrats Et Vivant: Le Droit de la Circulation des Ressources Biologiques. L.G.D.J..
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  7. Miriam Bentwich (2012). It's About Scientific Secrecy, Dummy: A Better Equilibrium Among Genomics Patenting, Scientific Research and Health Care. [REVIEW] Science and Engineering Ethics 18 (2):263-284.
    This paper offers a different pragmatic and patent-based approach to concerns regarding the negative effects of genetic-based patenting on advancing scientific research and providing adequate and accessible health care services. At the basis of this approach lies an explication of a mandatory provisional patented paper procedure (PPPA), designed for genetic-based patents and administered by leading scientific journals in the field, while officially acknowledged by the USPTO, and subsequently by other patent offices as well. It is argued that the uniqueness of (...)
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  8. Jasper A. Bovenberg (2006). Property Rights in Blood, Genes and Data: Naturally Yours? Martinus Nijhoff Publishers.
    The properties of DNA -- DNA as universal property -- DNA as intellectual property -- DNA as national property -- DNA as personal property -- DNA as academic property -- DNA as taxable propety.
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  9. Ingrid Brena Sesma (ed.) (2005). Células Troncales: Aspectos Científicos-Filosóficos y Jurídicos. Universidad Nacional Autónoma de México.
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  10. Ingrid Brena Sesma (ed.) (2005). Salud y Derecho: Memoria Del Congreso Internacional de Culturas y Sistemas Jurídicos Comparados. Universidad Nacional Autónoma de México.
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  11. Barry Brown (2001). The Case for Caution ? Being Protective of Human Dignity in the Face of Corporate Forces Taking Title to Our DNA. Journal of Law, Medicine and Ethics 29 (2):166-169.
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  12. Roger Brownsword, W. R. Cornish & Margaret Llewelyn (eds.) (1998). Law and Human Genetics: Regulating a Revolution. Hart Pub..
    This special issue of the Modern Law Review addresses a range of key issues - conceptual, ethical, political and practical - arising from the regulatory ...
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  13. Justine Burley & John Harris (1996). A Companion to Genethics. In Dennis M. Patterson (ed.), A Companion to Philosophy of Law and Legal Theory. Blackwell Publishers.
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  14. Omar Campohermoso Rodríguez (2007). Etica, Bioética y Derecho Genético. Elite Impresiones.
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  15. Romeo Casabona, Carlos María & Juliane Fernandes Queiroz (eds.) (2005). Biotecnologia E Suas Implicações Ético-Jurídicas. Del Rey.
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  16. María Casado González (2004). Las Leyes de la Bioética. Gedisa Editorial.
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  17. Ruth Chadwick & Bartha Maria Knoppers, Human Genetic Research: Emerging Trends in Ethics.
    Genetic research has moved from Mendelian genetics to sequence maps to the study of natural human genetic variation at the level of the genome. This past decade of discovery has been accompanied by a shift in emphasis towards the ethical principles of reciprocity, mutuality, solidarity, citizenry and universality.
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  18. Ben Chan, Flavia M. Facio, Haley Eidem, Sara Chandros Hull, Leslie G. Biesecker & Benjamin E. Berkman (2012). Genomic Inheritances: Disclosing Individual Research Results From Whole-Exome Sequencing to Deceased Participants' Relatives. American Journal of Bioethics 12 (10):1-8.
    Whole-genome analysis and whole-exome analysis generate many more clinically actionable findings than traditional targeted genetic analysis. These findings may be relevant to research participants themselves as well as for members of their families. Though researchers performing genomic analyses are likely to find medically significant genetic variations for nearly every research participant, what they will find for any given participant is unpredictable. The ubiquity and diversity of these findings complicate questions about disclosing individual genetic test results. We outline an approach for (...)
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  19. Thomas V. Cunningham (2014). Nonreductive Moral Classification and the Limits of Philosophy. American Journal of Bioethics 14 (2):22-24.
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  20. Inmaculada de Melo-Martin (2014). The Ethics of Anonymous Gamete Donation: Is There a Right to Know One's Genetic Origins? Hastings Center Report 44 (2).
    A growing number of jurisdictions hold that gamete donors must be identifiable to the children born with their eggs or sperm, on grounds that being able to know about one's genetic origins is a fundamental moral right. But the argument for that belief has not yet been adequately made.
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  21. Jennifer Doran (2000). Administrative Developments: Celera Genomics to Complete DNA Map. Journal of Law, Medicine and Ethics 28 (2):188-189.
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  22. Birgitta Forsman (1995). The Treatment of Ethics in a Swedish Government Commission on Gene Technology. The Royal Society of Arts and Sciences in Gothenburg, Centre for Research Ethics.
  23. Magali Franceschi (2004). Droit Et Marchandisation de la Connaissance Sur les Gènes Humains. Cnrs.
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  24. Jeanne Salmon Freeman (1996). Arguing Along the Slippery Slope of Human Embryo Research. Journal of Medicine and Philosophy 21 (1):61-81.
    One frequent argument in the debate over federal funding of human embryo research is the slippery slope argument. Slope arguments can be of several types: either logical, empirical, or full (a combination of logical and empirical slope arguments, with an additional psychological premise). A full slope argument against human embryo research suggests that funding embryo reseach could undermine current protections for human subjects research, erode respect for persons with disabilities, and encourage eugenics practices. While the Panel commissioned by the National (...)
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  25. Minou Bernadette Friele (2008). Rechtsethik der Embryonenforschung: Rechtsharmonisierung in Moralisch Umstrittenen Bereichen. Mentis.
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  26. Lisa Gannett (2010). Questions Asked and Unasked: How by Worrying Less About the 'Really Real' Philosophers of Science Might Better Contribute to Debates About Genetics and Race. Synthese 177 (3):363 - 385.
    Increased attention paid to inter-group genetic variability following completion of the Human Genome Project has provoked debate about race as a category of classification in biomedicine and as a biological phenomenon at the level of the genome. Philosophers of science favor a metaphysical approach relying on natural kind theorizing, the underlying assumptions of which structure the questions asked. Limitations arise the more metaphysically invested and less attuned to scientific practice these questions are. Other questions—arguably, those that matter most socially and (...)
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  27. Lisa Gannett (2001). Racism and Human Genome Diversity Research: The Ethical Limits of "Population Thinking". Proceedings of the Philosophy of Science Association 2001 (3):S479-.
    This paper questions the prevailing historical understanding that scientific racism "retreated" in the 1950s when anthropology adopted the concepts and methods of population genetics and race was recognized to be a social construct and replaced by the concept of population. More accurately, a "populational" concept of race was substituted for a "typological one"-this is demonstrated by looking at the work of Theodosius Dobzhansky circa 1950. The potential for contemporary research in human population genetics to contribute to racism needs to be (...)
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  28. Gail Geller, Ellen S. Tambor, Barbara A. Bernhardt, Gary A. Chase, Karen J. Hofman, Ruth R. Faden & Neil A. Holtzman (1993). Physicians'Attitudes Toward Disclosure of Genetic Information to Third Parties. Journal of Law, Medicine and Ethics 21 (2):238-240.
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  29. Jack K. Githae (2009). Potential of TK for Conventional Therapy : Prospects and Limits. In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan.
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  30. Ugarte Godoy & José Joaquín (2006). El Derecho de la Vida: El Derecho a la Vida: Bioética y Derecho. Editorial Jurídica de Chile.
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  31. Lawrence O. Gostin (1995). Genetic Privacy. Journal of Law, Medicine and Ethics 23 (4):320-330.
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  32. Dov Greenbaum & Mark Gerstein (2011). The Role of Cloud Computing in Managing the Deluge of Potentially Private Genetic Data. American Journal of Bioethics 11 (11):39-41.
    The American Journal of Bioethics, Volume 11, Issue 11, Page 39-41, November 2011.
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  33. Zaid Hamzah (2007). Biomedical Science: Law & Practice: From R & D to Market. Sweet & Maxwell Asia.
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  34. Gail E. Henderson, Eric T. Juengst, Nancy M. P. King, Kristine Kuczynski & Marsha Michie (2012). What Research Ethics Should Learn From Genomics and Society Research: Lessons From the ELSI Congress of 2011. Journal of Law, Medicine and Ethics 40 (4):1008-1024.
    Research on the ethical, legal, and social implications (ELSI) of human genomics has devoted significant attention to the research ethics issues that arise from genomic science as it moves through the translational process. Given the prominence of these issues in today's debates over the state of research ethics overall, these studies are well positioned to contribute important data, contextual considerations, and policy arguments to the wider research ethics community's deliberations, and ultimately to develop a research ethics that can help guide (...)
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  35. Isabelle Hirtzlin, Christine Dubreuil, Nathalie Préaubert, Jenny Duchier, Brigitte Jansen, Jürgen Simon, Paula Lobatao De Faria, Anna Perez-Lezaun, Bert Visser, Garrath Williams, Anne Cambon-Thomsen & The Eurogenbank Consortium (2003). An Empirical Survey on Biobanking of Human Genetic Material and Data in Six EU Countries. European Journal of Human Genetics 11:475–488.
    Biobanks correspond to different situations: research and technological development, medical diagnosis or therapeutic activities. Their status is not clearly defined. We aimed to investigate human biobanking in Europe, particularly in relation to organisational, economic and ethical issues in various national contexts. Data from a survey in six EU countries (France, Germany, the Netherlands, Portugal, Spain and the UK) were collected as part of a European Research Project examining human and non-human biobanking (EUROGENBANK, coordinated by Professor JC Galloux). A total of (...)
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  36. James Hudson (2001). The Passionate Opposition to Hereditarianism. Journal of Social Philosophy 32 (1):1–17.
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  37. Ilhan Ilkilic & Norbert W. Paul (2009). Ethical Aspects of Genome Diversity Research: Genome Research Into Cultural Diversity or Cultural Diversity in Genome Research? [REVIEW] Medicine, Health Care and Philosophy 12 (1):25-34.
    The goal of the Human Genome Diversity Project (HGDP) was to reconstruct the history of human evolution and the historical and geographical distribution of populations with the help of scientific research. Through this kind of research, the entire spectrum of genetic diversity to be found in the human species was to be explored with the hope of generating a better understanding of the history of humankind. An important part of this genome diversity research consists in taking blood and tissue samples (...)
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  38. Judy Illes & Eric Racine (2005). Imaging or Imagining? A Neuroethics Challenge Informed by Genetics. American Journal of Bioethics 5 (2):5 – 18.
    From a twenty-first century partnership between bioethics and neuroscience, the modern field of neuroethics is emerging, and technologies enabling functional neuroimaging with unprecedented sensitivity have brought new ethical, social and legal issues to the forefront. Some issues, akin to those surrounding modern genetics, raise critical questions regarding prediction of disease, privacy and identity. However, with new and still-evolving insights into our neurobiology and previously unquantifiable features of profoundly personal behaviors such as social attitude, value and moral agency, the difficulty of (...)
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  39. Edward J. Janger (2005). Genetic Information, Privacy and Insolvency. Journal of Law, Medicine and Ethics 33 (1):79-88.
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  40. Evanson C. Kamau (2009). Protecting TK Amid Disseminated Knowledge : A New Task for ABS Regimes? : A Kenyan Legal View. In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan.
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  41. Evanson C. Kamau & Gerd Winter (eds.) (2009). Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan.
    Uniquely, this book also looks at the potential for 'horizontal' development of ABS law and policy, applying lessons from bilateral approaches to other national ...
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  42. Aída Kemelmajer de Carlucci, Salvador Darío Bergel & Nelly Minyersky (eds.) (2004). Genoma Humano. Rubinzal-Culzoni.
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  43. John B. Kleba (2009). A Socio-Legal Inquiry Into the Protection of Disseminated Traditional Knowledge : Learning From Brazilian Cases. In Evanson C. Kamau & Gerd Winter (eds.), Genetic Resources, Traditional Knowledge and the Law: Solutions for Access and Benefit Sharing. Earthscan.
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  44. Bartha Maria Knoppers (ed.) (2003). Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff.
    This book of selected papers covers population research and banking as well as accompanying confidentiality, and governance concerns.
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  45. Avery Kolers & Tim Bayne (2001). "Are You My Mommy?" On the Genetic Basis of Parenthood. Journal of Applied Philosophy 18 (3):273–285.
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  46. Nandini K. Kumar (2009). India's Preparedness in Tackling Biopiracy and Biobanking : Still Miles to Go. In Margaret Sleeboom-Faulkner (ed.), Human Genetic Biobanks in Asia: Politics of Trust and Scientific Advancement. Routledge.
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  47. Isabel Lapeña & Manuel Ruiz Muller (eds.) (2004). Acceso a Recursos Genéticos: Propuestas E Instrumentos Jurídicos. Sociedad Peruana de Derecho Ambiental.
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  48. G. T. Laurie (2002). Genetic Privacy: A Challenge to Medico-Legal Norms. Cambridge University Press.
    The phenomenon of the New Genetics raises complex social problems, particularly those of privacy. This book offers ethical and legal perspectives on the questions of a right to know and not to know genetic information from the standpoint of individuals, their relatives, employers, insurers and the state. Graeme Laurie provides a unique definition of privacy, including a concept of property rights in the person, and argues for stronger legal protection of privacy in the shadow of developments in human genetics. He (...)
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  49. Bernard Lo (1994). Book Review: Assessing Genetic Risks. [REVIEW] Journal of Law, Medicine and Ethics 22 (4):343-344.
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  50. Michele Loi, Lorenzo Del Savio & Elia Stupka (2013). Social Epigenetics and Equality of Opportunity. Public Health Ethics 6 (2):142-153.
    Recent epidemiological reports of associations between socioeconomic status and epigenetic markers that predict vulnerability to diseases are bringing to light substantial biological effects of social inequalities. Here, we start the discussion of the moral consequences of these findings. We firstly highlight their explanatory importance in the context of the research program on the Developmental Origins of Health and Disease (DOHaD) and the social determinants of health. In the second section, we review some theories of the moral status of health inequalities. (...)
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