- No recognised ethical standards, no broad consent: navigating the quandary in computational social science research.Seliem El-Sayed & Filip Paspalj - forthcoming - Research Ethics.details
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Blanket Consent and Trust in the Biobanking Context.Morten Ebbe Juul Nielsen & Nana Cecilie Halmsted Kongsholm - 2022 - Journal of Bioethical Inquiry 19 (4):1-11.details
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The ethics of uncertainty for data subjects.Philip Nickel - 2019 - In Peter Dabrock, Matthias Braun & Patrik Hummel (eds.), The Ethics of Medical Data Donation. Springer Verlag. pp. 55-74.details
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Consent as a compositional act – a framework that provides clarity for the retention and use of data.Minerva C. Rivas Velarde, Christian Lovis, Marcello Ienca, Caroline Samer & Samia Hurst - 2024 - Philosophy, Ethics and Humanities in Medicine 19 (1):1-10.details
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Trust and Justice in Big Data Analytics: Bringing the Philosophical Literature on Trust to Bear on the Ethics of Consent.J. Patrick Woolley - 2019 - Philosophy and Technology 32 (1):111-134.details
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Consenting to Geoengineering.Pak-Hang Wong - 2016 - Philosophy and Technology 29 (2):173-188.details
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Health data research on sudden cardiac arrest: perspectives of survivors and their next-of-kin.Dick L. Willems, Hanno L. Tan, Marieke T. Blom, Rens Veeken & Marieke A. R. Bak - 2021 - BMC Medical Ethics 22 (1):1-15.details
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Biomedical Big Data: New Models of Control Over Access, Use and Governance.Alessandro Blasimme & Effy Vayena - 2017 - Journal of Bioethical Inquiry 14 (4):501-513.details
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Hypocrisy Around Medical Patient Data: Issues of Access for Biomedical Research, Data Quality, Usefulness for the Purpose and Omics Data as Game Changer.Erwin Tantoso, Wing-Cheong Wong, Wei Hong Tay, Joanne Lee, Swati Sinha, Birgit Eisenhaber & Frank Eisenhaber - 2019 - Asian Bioethics Review 11 (2):189-207.details
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Authority and the Future of Consent in Population-Level Biomedical Research.Mark Sheehan, Rachel Thompson, Jon Fistein, Jim Davies, Michael Dunn, Michael Parker, Julian Savulescu & Kerrie Woods - forthcoming - Public Health Ethics.details
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Precision Medicine and Big Data: The Application of an Ethics Framework for Big Data in Health and Research.G. Owen Schaefer, E. Shyong Tai & Shirley Sun - 2019 - Asian Bioethics Review 11 (3):275-288.details
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Clarifying how to deploy the public interest criterion in consent waivers for health data and tissue research.G. Owen Schaefer, Graeme Laurie, Sumytra Menon, Alastair V. Campbell & Teck Chuan Voo - 2020 - BMC Medical Ethics 21 (1):1-10.details
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Ethical and legal issues when dealing with genetic incidental findings—challenges and possible solutions.Sabine Rudnik-Schöneborn, Martin Langanke, Pia Erdmann & Jürgen Robienski - 2014 - Ethik in der Medizin 26 (2):105-119.details
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Ethische und rechtliche Aspekte im Umgang mit genetischen Zufallsbefunden – Herausforderungen und Lösungsansätze.Sabine Rudnik-Schöneborn, Martin Langanke, Pia Erdmann & Jürgen Robienski - 2014 - Ethik in der Medizin 26 (2):105-119.details
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Breite Einwilligung (broad consent) zur Biobank-Forschung – die ethische Debatte.Gesine Richter & Alena Buyx - 2016 - Ethik in der Medizin 28 (4):311-325.details
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Addressing Benefits, Risks and Consent in Next Generation Sequencing Studies.Meller R. - 2015 - Journal of Clinical Research and Bioethics 6 (6).details
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In Defence of informed consent for health record research - why arguments from ‘easy rescue’, ‘no harm’ and ‘consent bias’ fail.Thomas Ploug - 2020 - BMC Medical Ethics 21 (1):1-13.details
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Editorial – ethical practice and genomic research.Michael Parker & Janet Seeley - 2020 - Global Bioethics 31 (1):164-168.details
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Consent to epistemic interventions: a contribution to the debate on the right (not) to know.Niels Nijsingh - 2016 - Medicine, Health Care and Philosophy 19 (1):103-110.details
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Exploring solutions to the privacy paradox in the context of e-assessment: informed consent revisited.Ekaterina Muravyeva, José Janssen, Marcus Specht & Bart Custers - 2020 - Ethics and Information Technology 22 (3):223-238.details
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Ethical Issues in Consent for the Reuse of Data in Health Data Platforms.Alex McKeown, Miranda Mourby, Paul Harrison, Sophie Walker, Mark Sheehan & Ilina Singh - 2021 - Science and Engineering Ethics 27 (1):1-21.details
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A Philosophical Analysis of Informed Consent for Whole Genome Sequencing in Biobank Research by use of Beauchamp and Childress’ Four Principles of Biomedical Ethics.Ebbesen M. & Sundby A. - 2015 - Journal of Clinical Research and Bioethics 6 (6).details
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The biobank consent debate: Why ‘meta-consent’ is not the solution?Neil C. Manson - 2019 - Journal of Medical Ethics 45 (5):291-294.details
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Towards a Design Toolkit of Informed Consent Models Across Fields: A Systematic Review.Iris Loosman & Philip J. Nickel - 2022 - Science and Engineering Ethics 28 (5):1-19.details
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Disruption, Diversity, and Global Biobanking.Edwina Light, Miriam Wiersma, Lisa Dive, Ian Kerridge, Christine Critchley & Wendy Lipworth - 2019 - American Journal of Bioethics 19 (5):45-47.details
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Understanding (in) Consent for Governance.Michael A. Lensink, Sarah N. Boers, Karin R. Jongsma & Annelien L. Bredenoord - 2019 - American Journal of Bioethics 19 (5):43-45.details
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Identifying facilitators of and barriers to the adoption of dynamic consent in digital health ecosystems: a scoping review.Ah Ra Lee, Dongjun Koo, Il Kon Kim, Eunjoo Lee, Hyun Ho Kim, Sooyoung Yoo, Jeong-Hyun Kim, Eun Kyung Choi & Ho-Young Lee - 2023 - BMC Medical Ethics 24 (1):1-12.details
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Can a Soldier Say No to an Enhancing Intervention?Sahar Latheef & Adam Henschke - 2020 - Philosophies 5 (3):13.details
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Enabling posthumous medical data donation: an appeal for the ethical utilisation of personal health data.Jenny Krutzinna, Mariarosaria Taddeo & Luciano Floridi - 2019 - Science and Engineering Ethics 25 (5):1357-1387.details
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Citizens' views on sharing their health data: the role of competence, reliability and pursuing the common good.Samia Hurst-Majno, Pierre Chappuis, Monica Aceti, Claudine Burton-Jeangros, Petros Tsantoulis & Minerva C. Rivas Velarde - 2021 - BMC Medical Ethics 22 (1):1-12.details
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Is it acceptable to contact an anonymous egg donor to facilitate diagnostic genetic testing for the donor-conceived child?Rachel Horton, Benjamin Bell, Angela Fenwick & Anneke M. Lucassen - 2019 - Journal of Medical Ethics 45 (6):357-360.details
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Privacy Laws and Biobanking in Germany.Nils Hoppe - 2016 - Journal of Law, Medicine and Ethics 44 (1):35-44.details
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An “Ethical Moment” in Data Sharing.Catherine Heeney - 2017 - Science, Technology, and Human Values 42 (1):3-28.details
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Balancing the local and the universal in maintaining ethical access to a genomics biobank.Catherine Heeney & Shona M. Kerr - 2017 - BMC Medical Ethics 18 (1):80.details
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Where should we draw the line between quality of care and other ethical concerns related to medical registries and biobanks?Mats Hansson - 2012 - Theoretical Medicine and Bioethics 33 (4):313-323.details
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Broad consent under the GDPR: an optimistic perspective on a bright future.Dara Hallinan - 2020 - Life Sciences, Society and Policy 16 (1):1-18.details
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Digitized Future of Medicine: Challenges for Bioethics.Elena G. Grebenshchikova & Pavel D. Tishchenko - 2020 - Russian Journal of Philosophical Sciences 63 (2):83-103.details
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Data for sale: trust, confidence and sharing health data with commercial companies.Mackenzie Graham - 2023 - Journal of Medical Ethics 49 (7):515-522.details
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Contacting gamete donors to facilitate diagnostic genetic testing for the donor-conceived child: what are the rights and obligations of gamete donors in these cases? A response to Horton et al.Lucy Frith - 2020 - Journal of Medical Ethics 46 (3):220-222.details
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Double standards and arguments for tobacco regulation.Jessica Flanigan - 2016 - Journal of Medical Ethics 42 (5):305-311.details
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Digitized Future of Medicine: Challenges for Bioethics.Елена Георгиевна Гребенщикова & Павел Дмитриевич Тищенко - 2020 - Russian Journal of Philosophical Sciences 63 (2):83-103.details
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The right not to know and the obligation to know.Ben Davies - 2020 - Journal of Medical Ethics 46 (5):300-303.details
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Research participants’ perceptions and views on consent for biobank research: a review of empirical data and ethical analysis.Flavio D'Abramo, Jan Schildmann & Jochen Vollmann - 2015 - BMC Medical Ethics 16 (1):60.details
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Sharing Individual-Level Health Research Data: Experiences, Challenges and a Research Agenda.Phaik Yeong Cheah, Nicholas P. J. Day, Michael Parker & Susan Bull - 2017 - Asian Bioethics Review 9 (4):393-400.details
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Challenges arising when seeking broad consent for health research data sharing: a qualitative study of perspectives in Thailand.Phaik Yeong Cheah, Nattapat Jatupornpimol, Borimas Hanboonkunupakarn, Napat Khirikoekkong, Podjanee Jittamala, Sasithon Pukrittayakamee, Nicholas P. J. Day, Michael Parker & Susan Bull - 2018 - BMC Medical Ethics 19 (1):86.details
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Marking Shifts in Human Research Ethics in the Development of Biobanking.D. Chalmers, M. Burgess, K. Edwards, J. Kaye, E. M. Meslin & D. Nicol - 2015 - Public Health Ethics 8 (1):63-71.details
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Biobanking and the Abandonment of Informed Consent: An Ethical Imperative.Stephanie Solomon Cargill - 2016 - Public Health Ethics 9 (3):255-263.details
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Better governance starts with better words: why responsible human tissue research demands a change of language.Annelien L. Bredenoord, Sarah N. Boers, Karin R. Jongsma & Michael A. Lensink - 2022 - BMC Medical Ethics 23 (1):1-10.details
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A Preliminary Study to Explore the Informed Consent Approach and the Ethical Challenges in the Malaysian Biobanking for Research.Amnah Azahar, Aimi Nadia Mohd Yusof & Zahir Izuan Azhar - 2022 - Asian Bioethics Review 15 (2):141-154.details
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Formalization of Informed Consent From Ethical to Administrative Use.Frunza Ana & Antonio Sandu - 2017 - Postmodern Openings 8 (3):69-95.details
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