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Commentary on “distinguishing genetic from nongenetic medical tests: Some implications for antidiscrimination legislation” (J. S. Alper and J. Beckwith)

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References

  1. Holtzman, N.A. & Watson, M.S. (1997). Promoting Safe and Effective Genetic Testing in the United States. Final Report of the Task Force on Genetic Testing, U.S. Department of Health and Human Services, Washington, DC 〈http://www.nhgri.nih.gov/ELSI/TFGT_final/〉.

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  2. Task Force on Genetic Information and Insurance (1993) of the joint NIH-DOE Ethical, Legal and Social Implications Working Group, Genetic Information and Health Insurance. Bethesda, MD, National Human Genome Research Institute (National Institutes of Health) and Human Genome Program (U.S. Department of Energy). Reprinted in Human Gene Therapy (1993) Dec; 4(6): 789–808. Specifically, the report noted that: “Affording special protection for genetic material and data is unlikely to provide a solution to these challenges. Genetic privacy should be vigorously protected, but other varieties of health-related information are equally sensitive. Because diseases are increasingly seen as having both genetic and nongenetic components, classifying health-related data as wholly genetic or nongenetic is difficult. Furthermore, as a practical matter, genetic and other materials are not segregated in medical records.”

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  3. Rothstein, M.A. (1997) Genetic Secrets: Protecting Privacy and Confidentiality in the Genetic Era. Yale University Press, New Haven, CT.

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  4. Roberts, L. (1993) Taking Stock of the Genome Project, Science 262 (1 Oct.): 20–22. Quote at p. 22.

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Authors and Affiliations

  1. National Cancer Policy Board, Institute of Medicine and Commission on Life Sciences, National Academy of Sciences, 2101 Constitution Avenue, NW, 20418, Washington DC, USA

    Robert Mullan Cook-Deegan M.D. (Director)

Authors
  1. Robert Mullan Cook-Deegan M.D.
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Dr. Cook-Deegan is author of The Gene Wars: Science, Politics and the Human Genome (1994 and 1996), W.W. Norton, NY.

The views expressed in this article are those of the author and do not represent the views of the National Cancer Policy Board, the Institute of Medicine or the National Academy of Sciences.

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Cook-Deegan, R.M. Commentary on “distinguishing genetic from nongenetic medical tests: Some implications for antidiscrimination legislation” (J. S. Alper and J. Beckwith). SCI ENG ETHICS 4, 151–154 (1998). https://doi.org/10.1007/s11948-998-0045-7

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  • DOI: https://doi.org/10.1007/s11948-998-0045-7

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