Abstract
Particularly, but not exclusively, in Germany, concerns are uttered as to the consequences of modern biotechnological advances and their range of applications in the field of human genetics. Whereas the proponents of this research are mainly focussing on the possible knowledge that could be gained by understanding the causes of developmental processes and of disease on the molecular level, the critics fear the beginnings of a new eugenics movement. Without claiming a logical relationship between genetic sciences and eugenics movements, it is nevertheless suggested in this article that a connection between both can become established when the distinction between scientifically validated statements on one hand and guiding hypotheses and assumptions on the other hand is blurred, as is observed particularly when scientists report their results to the public. This claim is demonstrated in comparisons between the current state of scientific knowledge on the role of genes in development and causation of diseases, and the way this is presented to the public. It is required that a debate on biotechnology should include reflections on the validity of claims made by scientists.
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References
Abbott, A.: 1999, 'A post–genomic challenge: Learning to read patterns of protein synthesis', Nature 402, 715–720.
Alexander, R.: 1987, The Biology of Moral Systems. New York: de Gruyter.
Barker, D.J.P.: 2001, 'A new model for the origins of chronic disease', Medicine, Health Care and Philosophy 4, 31–35.
Bayertz, K. (ed.): 1993, Evolution und Ethik. Stuttgart: Reclam.
Bishop, J.E. and M. Waldholz: 1991, Landkarte der Gene: Das Genomprojekt. München: Droemer Knaur.
Bodmer, W. and R. McKie: 1995, The Book of Man; The Human Genome Project and the Quest to Discover our Genetic Heritage. New York: Scribner.
Chorover, S.: 1982, Die Zurichtung des Menschen. Frankfurt/ New York: Campus Verlag.
Dawkins, R.: 1982, The Extended Phenotype. Oxford: Freeman.
Dawkins, R.: 1989, The Selfish Gene. Oxford: Oxford Univ. Press (extended edition of the first edition from 1976).
Dulbecco, R.: 1986, 'A turning point in cancer reseach: Sequencing the human genome', Science 237, 1055–1056.
Griffiths, P.E. and E.M. Neumann–Held: 1999, 'The many faces of the gene', BioScience 49, 656–662.
Gutmann, M., P. Janich and E.M. Neumann–Held (guest editors) (1998): 'Species concepts and biodiversity', Theory in Bioscience 117, 201ff.
Hare, R.M.: 1992, Moralisches Denken. Frankfurt/M.: Suhrkamp (first edition of the original text: 1981).
Heutink, P. et al.: 1992, 'A gene subject to genomic imprinting and responsible for hereditary paragangliomas maps to chromosome 11q23–qter', Human Molecular Genetics 1, 7–10.
Jablonka, E. and E. Szathmary: 1995, 'The evolution of information storage and heredity', Trends in Ecology and Evolution 10, 206–211.
Keller, E.F.: 2000, 'Is there an organism in this text?', in: P. Sloan (ed.), Controlling Our Destinies (Notre Dame) (in press).
Kevles, D.J.: 1993, 'Die Geschichte der Genetik und Eugenik', in: D.J. Kevles and L. Hood (eds.), Der Supercode: Die genetische Karte des Menschen. München: Artemis & Winkler, pp. 13–47.
Kollek, R.: 1994, 'Der Gral der Genetik', Mittelweg 36 – Zeitschrift des Hamburger Instituts für Sozialforschung 3, 5–14.
Kollek, R.: 1996, 'Metaphern, Strukturbilder, Mythen. Zur symbolischen Bedeutung des menschlichen Genoms', in: L.N. Trallori (ed.), Die Eroberung des Lebens. Wien: Verlag für Gesellschaftskritik, pp. 137–153.
Laubichler, M.D.: 1999, 'Frankenstein in the land of Dichter and Denker', Science 286, 1859–1860.
Lewontin, R.: 1992, 'The dream of the human genome', The New York Review of Books Mai 28, pp. 31–40.
Nesse, R: 2001, 'On the difficulty of defining disease: A Darwinian perspective', Medicine, Health Care and Philosophy 4, 37–46.
Neumann–Held, E.M.: 1996, 'Die moderne Biologie auf der Suche nach dem 'Heiligen Gral'', in: R. Seising and T. Fischer (eds.), Wissenschaft und Öffentlichkeit. Frankfurt/M.: P. Lang, pp. 135–159.
Neumann–Held, E.M.: 1998, 'Jenseits des 'genetischen Weltbildes'', In: E.–M. Engels, T. Junker and M. Weingarten (eds.), Ethik der Biowissenschaften. Berlin: VWB, pp. 261–280.
Neumann–Held, E.M.: 1999a, 'The gene is dead – long live the gene: Conceptualizing genes the constructionist way', in: P. Koslowski (ed.), Sociobiology and Economics. The Theory of Evolution in Biological and Economic Thinking. Berlin: Springer, pp. 105–137.
Neumann–Held, E.M.: 1999b, 'Von Genen, Merkmalen und Kontexten. Eine philosophisch–wissenschaftstheoretische Analyse zum Begriff der 'genetischen Verursachung', in: T. Braun and M. Elstner (eds.), Gene und Gesellschaft. Heidelberg: Deutsches Krebsforschungszentrum, pp. 85–94.
Neumann–Held, E.M.: 2000, 'Let's talk about genes. The process molecular gene concept and its context', in: S. Oyama, P. Griffiths and R. Gray (eds.), Cylces of Contingencies. Cambridge, MA: MIT Press (in press).
Nijhout, H.F. and S.M. Paulsen: 1997, 'Developmental models and polygenic characters', American Naturalist 149, 394–405.
Rehmann–Sutter, C.: 1999, 'Das Jahrhundert der Genetik und der homo geneticus', Novalis 11, 11–14.
Rehmann–Sutter, C.: 2000, 'Die Interpretation genetischer Daten – Vorwort zu einer genetischen Hermeneutik', in: J. Mittelstraß (ed.), Die Zukunft des Wissens. Vorträge und Kolloquien, XVIII. Deutscher Kongress für Philosophie in Konstanz. Berlin: Akademie Verlag (in press).
Rehmann–Sutter, C. and E. Neumann–Held: 1999, 'Optimierung der menschlichen Natur durch Gentherapie?', Neue Zürcher Zeitung (23/24 January), 59.
Ruse, M.: 1993, 'Noch einmal: Die Ethik der Evolution', in: K. Bayertz (ed.), Evolution und Ethik. Stuttgart: Reclam, pp. 153–167.
Scriver, C.R. and P.J. Waters: 1999, 'Monogenetic traits are not simple. Lessons from phenylketonuria', Trends in Genetics 15, 267–272.
Smith, K.: 2001, 'A disease by any other name: Musings on the concept of a genetic disease', Medicine, Health Care and Philosophy 4, 19–30.
Sloterdijk, P.: 1999, Regeln für den Menschenpark. Ein Antwortschreiben zum Brief über den Humanismus – die Elmauer Rede', DIE ZEIT Nr. 38, 16. September, pp. 15–21.
Strachan, T. and A.P. Read: 1996, Molekulare Humangenetik. Heidelberg et al.: Spektrum Akademischer Verlag.
Vogel, C.: 1993: 'Soziobiologie und die moderne Reproduktionstechnologie', In: K. Bayertz (ed.): Evolution und Ethik. Stuttgart: Reclam, pp. 199–219.
Voland, E. (ed.): 1992, Fortpflanzung: Natur und Kultur im Wechselspiel. Frankfurt/M.: Suhrkamp.
Wagner, G.: 1988, 'The vexing role of replicators in evolutionary change', Biology and Philosophy 3, 232–236.
Wagner, G.: 1990, 'What has survived of Darwin's Theory? The domestication of replicators: A neo–Darwinian commentary on the concept of replicator selection', Evolutionary Trends in Plants 4, 71–73.
Walters, L.R. and J.G. Palmer: 1997, The Ethics of Human Therapy. New York, Oxford: Oxford University Press.
Weingart, P., J. Kroll and K. Bayertz: 1996, Rasse, Blut und Gene. Geschichte der Eugenik und Rassenhygiene in Deutschland, 2nd edn. Frankfurt/M.: Suhrkamp.
Williams, G.C.: 1966, Adaptation and Natural Selection. Princeton, N.J.: Princeton University Press.
Wilson, E.O.: 1998, Die Einheit des Wissens. Berlin: Siedler.
Wolf, U.: 1995, 'The genetic contribution to the phenotype', Hum. Genet. 95, 127–148.
Wolf, U.: 1997, 'Identical mutations and phenotyopic variation', Hum. Genet. 100, 305–321.
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Neumann-Held, E.M. Can it be a 'sin' to understand disease? On 'genes' and 'eugenics' and an 'unconnected connection'. Med Health Care Philos 4, 5–17 (2001). https://doi.org/10.1023/A:1009974111171
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DOI: https://doi.org/10.1023/A:1009974111171