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Ethics, Genetics, and Human Gene Therapy

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Part of the book series: International Library of Ethics, Law, and the New Medicine ((LIME,volume 8))

Abstract

Life is a miracle between two mysteries, the mystery of its beginning and the mystery of its end. The Greek word for beginning is génesis. This genesis has always been, and still is nowadays to some extent ‘mysterious’. Mystérion is another Greek word; it means mysterious, but at the same time sacred. The beginning of life has something of the mysterious, and also of the sacred. This permits understanding why it has a religious dimension, which in our Western culture is paradigmatically represented by the traditions about the origins stated in the biblical book of Genesis. Every religion has said something about the origins in general, and the origin of life, in particular. But genesis has other dimensions, different from the religious one. For instance, there is a philosophical or metaphysical dimension, present in the history of philosophy since the first Presocratic thinkers up to now. And there is also another dimension, the moral one. The ethical question is always the same one: what should we do, and what ought not to be done? Is the manipulation of the beginning of human life compatible with its sacredness? And if the answer is positive: to what extent?

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References

  • Anderson, W.F. and Friedmann, T.: 1995, Strategies for gene therapy. In: Reich, W.T. (ed.), Encyclopedia of Bioethics. MacMillan, New York, Vol. 2, p. 907–914.

    Google Scholar 

  • Baker, K. and Mason, S.: 1976, The limits of ‘playing God’. Keeping Posted 22 (2): 19–23.

    Google Scholar 

  • Bayertz, K. (ed.): 1994, The concept of moral consensus. Kluwer Academic Publishers, Dordrecht.

    Google Scholar 

  • Beauchamp, T.L. and Childress, J.F.: 1994, Principles of biomedical ethics. Oxford University Press, New York.

    Google Scholar 

  • Bentham, J.: 1988, A fragment on government. In: Burns, J.H., Dinwiddy, J.R., Rosen, F. (eds.), The collected works of Jeremy Bentham. Oxford University Press, London and Oxford. Biesecker, B.B.: 1995, Practice of genetic counselling. In: Reich, W.T. (ed.), Encyclopedia of bioethics. MacMillan, New York, Vol. 2, p. 923–927.

    Google Scholar 

  • Broad, C.D.: 1930, Five types of ethical theory. Routledge # Kegan Paul, London.

    Google Scholar 

  • Callahan, D. (ed.): 1996, The goals of medicine: Setting new priorities. Hastings Center Report Special Supplement, November-December.

    Google Scholar 

  • Chase, A.: 1987, Playing God in Yellowstone. A Harvest/HBJ Book, Harcourt Brace Jovanovich Publishers, San Diego.

    Google Scholar 

  • Clouser, K.D.: 1995, Common morality as an alternative to principlism. Kennedy Institute of Ethics Journal 5: 219–236.

    Article  Google Scholar 

  • Clouser, K.D. and Gert, B.: 1990, A critique of principlism. Journal of Medicine and Philosophy 15: 219–236.

    Article  Google Scholar 

  • Clouser, K.D. and Gert, B.: 1994, Morality vs. Principlism. In: Gillon, R. (ed.), Principles of health care ethics. John Wiley # Sons, Chichester, p. 251–266.

    Google Scholar 

  • Cookson, W.: 1988, The gene hunters: Adventures in the genome jungle. Aurum Press, London. Emanuel, EJ.: 1991, The ends of human life. Medical ethics in a liberal polity. Harvard University Press, Cambridge, Mass.

    Google Scholar 

  • Finnis, J.: 1980, Natural law and natural rights. Clarendon Press, Oxford.

    Google Scholar 

  • Fleck, L.M.: 1974, Justice, age rationing, and the problem of identifiable lives. In: Hackler, Ch. (ed.), Health care for an aging population. State University of New York, Albany, NY, p. 93105.

    Google Scholar 

  • Fleck, L.M.: 1979, Abortion, deformed foetuses, and the Omega pill. Philosophical Studies 36 (3): 271–283.

    Article  Google Scholar 

  • Fleck, L.M.: 1986, Confidentiality: Moral obligation or outmoded conept? Health Progress 67(4): 17–20, 61.

    Google Scholar 

  • Fleck, L.M.: 1987, DRGs: Justice and the invisible rationing of health care resources. Journal of Medicine and Philosophy 12 (2): 65–196.

    Article  Google Scholar 

  • Fleck, L.M.: 1990, The Oregon medicaid experiment: Is it just enough? Business and Professional Ethics Journal 9 (3 and 4): 201–217.

    Article  Google Scholar 

  • Fleck, L.M.: 1991, How just must we be? In: Humber, J.M. and Almeder, R.F. (eds.), Biomedical ethics reviews 1990. Humana Press, Clifton, NJ, p. 131–188.

    Google Scholar 

  • Fleck, L.M.: 1992, Just health care rationing: A democratic decisionmaking approach. University of Pennsylvania Law Review 140 (5): 1597–1636.

    Article  Google Scholar 

  • Fleck, L.M.: 1994a, Just genetics: a problem agenda. In: Murphy, T.F. and Lappe, M.A. (eds.), Justice and the human genome project. University of California Press, Berkeley, CA, p. 133152.

    Google Scholar 

  • Fleck, L.M.: 1994b, Just caring: Lessons from Oregon and Canada, in: Hackler, Ch. (ed.), Health

    Google Scholar 

  • care for an aging population. State University of New York Press, Albany, NY, p. 177–198.

    Google Scholar 

  • Fleck, L.M.: 1994c, Just caring: Health reform and health care rationing. Journal of Medicine and

    Google Scholar 

  • Philosophy 19(5): 435–443.

    Google Scholar 

  • Fleck, L.M.: 1994(1, Just caring: Oregon, health care rationing, and informed democratic deliberation. Journal of Medicine and Philosophy 19(4): 367–388.

    Google Scholar 

  • Frosssard, P.: 1991, The lottery of life: The new genetics and the future of mankind. Bantam Press, London.

    Google Scholar 

  • Garrett, L.: 1995, The coming plague: Newly emerging diseases in a world out of balance. Penguin Books, New York.

    Google Scholar 

  • Gert, B., Culver, C.M. and Clouser, ICD.: 1997, Bioethics: a return to fundamentals. Oxford University Press, New York-Oxford.

    Google Scholar 

  • Goodfield, J.: 1977, Playing God: Genetic engineering and the manipulation of life. Random House, New York.

    Google Scholar 

  • Glover, J.V.C.: 1989, Human genetic engineering–how far should we go? In: Weatherall, D. and Shelley, J.H. (eds), Social consequences of genetic engineering. Elsevier Science Publisher, New York, NY, p. 193–202.

    Google Scholar 

  • Gracia, D.: 1993, Ethical and social aspects of the human genome analysis project. In: Haker, H., Hearn, R. and Steigleder, K. (eds), Ethics of human genome analysis. European perspectives. Attempto Verlag, Tübingen, p. 247–271.

    Google Scholar 

  • Gutmann, A.: 1987, Democratic education. Princeton University Press, Princeton.

    Google Scholar 

  • Gutmann, A. and Thompson, D.F.: 1996, Democracy and disagreement. Harvard University Press, Harvard, Mass.

    Google Scholar 

  • Gutmann, A. and Thompson, D.F.: 1997, Deliberating about bioethics. Hastings Center Report 27 (3): 38–41.

    Article  Google Scholar 

  • Hanson, M.J.: 1997, At the center. Hastings Center Report 27(3): cover.

    Google Scholar 

  • Heyd, D.: 1992, Genethics: Moral issues in the creation of people. University of California Press, Berkeley.

    Google Scholar 

  • Jonsen, A.R.: 1991, Casuistry as methodology in clinical ethics. Theoretical Medicine 12(4): 295307.

    Google Scholar 

  • Jonsen, A.R.: 1998, The birth of bioethics. Oxford University Press, New York.

    Google Scholar 

  • Judson, H.F.: 1979, The eighth day of creation. Makers of the revolution in biology. Simon and Schuster, New York.

    Google Scholar 

  • Juengst, E. and Walters, L.: 1995, Ethical and social issues. In: Reich, W.T. (ed.), Encyclopedia of bioethics. MacMillan, New York, Vol. 2, p. 914–922.

    Google Scholar 

  • Kant, I.: 1995, Grounding for the metaphysics of morals. In: Cahn, S.M. (ed.), Classics of Western philosophy. Hackett Publishing Company, Indianapolis, Cambridge.

    Google Scholar 

  • Lubow, A: 1977, Playing God with DNA. New Times 8 (1): 48f.

    Google Scholar 

  • Monod, J.: 1970, Le hasard et la nécessité. Éditions du Seuil, Paris.

    Google Scholar 

  • Murray, R.F.: 1995, Genetic counseling: Ethical issues. In: Reich, W.T. (ed.), Encyclopedia of bioethics. MacMillan, New York, Vol. 2, p. 927–932.

    Google Scholar 

  • Peters, T.: 1995, Playing God and germline intervention. Journal of Medicine and Philosophy 20 (4): 365–386.

    Article  Google Scholar 

  • Potter, V.R.: 1977, Evolving ethical concepts. Bioscience 27 (4): 251–253.

    Google Scholar 

  • Rawls, J.: 1993, Political liberalism. Columbia University Press, New York.

    Google Scholar 

  • Rifkin, J. and Perlas, N.: 1983, Algeny. The Viking Press, New York.

    Google Scholar 

  • Rifkin, J. and Howard, T.: 1997a, Who should play God? Progressive 41 (12): 16–22.

    Google Scholar 

  • Rifkin, J. and Howard, T.: 1977b, Who should play God: The artificial creation of life and what it means for the future of the human race. Dell Publishing Company, New York.

    Google Scholar 

  • Rollin, B.E.: 1995, Genetic engineering: Animals and plants. In: Reich, W.T. (ed.), Encyclopedia of bioethics. MacMillan, New York, Vol. 2, p. 932–936.

    Google Scholar 

  • Rosenfeld, A: 1975, The second genesis. Vintage, New York.

    Google Scholar 

  • Seydel, F.D.: 1990, Human gene therapy: Playing God? In: Dainiak, N. (ed.), The biology of hematopoiesis. Willey, New York, p. 339–346.

    Google Scholar 

  • Sidgwick, H.: 1981, The methods of ethics. Hackett Publishing Company, Indianapolis, Indiana. Toulmin, S.: 1975, Exploring the moderate consensus. Hastings Center Report 5 (3): 31–40.

    Google Scholar 

  • Toulmin, S.: 1982, How medicine saved the life of ethics. Perspectives in Biology and Medicine 25: 736–750.

    Google Scholar 

  • Toulmin, S.: 1987, The national commission on human experimentation: procedures and outcomes. In: Engelhardt, H.T. and Caplan, A.L. (eds.): Scientific controversies: Case studies in the resolution and closure of disputes in science and technology. Cambridge University Press, New York, pp. 599–613.

    Chapter  Google Scholar 

  • Wachbroit, R.: 1995, Human genetic engineering. In: Reich, W.T. (ed.), Encyclopedia of bioethics. MacMillan, New York, Vol. 2, p. 936–940.

    Google Scholar 

  • Zubiri, X.: 1986, Sobre el hombre. Alianza Editorial, Madrid.

    Google Scholar 

Download references

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Gracia, D. (2001). Ethics, Genetics, and Human Gene Therapy. In: ten Have, H., Gordijn, B. (eds) Bioethics in a European Perspective. International Library of Ethics, Law, and the New Medicine, vol 8. Springer, Dordrecht. https://doi.org/10.1007/978-94-015-9706-7_10

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  • DOI: https://doi.org/10.1007/978-94-015-9706-7_10

  • Publisher Name: Springer, Dordrecht

  • Print ISBN: 978-90-481-5872-0

  • Online ISBN: 978-94-015-9706-7

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