Year:

Forthcoming articles
  1.  12
    Alina Coman (forthcoming). Emerging Technologies in the Treatment of Anorexia Nervosa and Ethics: Sufferers’ Accounts of Treatment Strategies and Authenticity. Health Care Analysis:1-13.
    New neural models for anorexia nervosa are emerging as a result of increased research on the neurobiology of AN, and these offer a rationale for the development of new treatment technologies such as neuromodulation. The emergence of such treatment technologies raises new ethical questions; however these have been little discussed for AN. In this article, I take an empirical approach and explore how young women who suffer from AN perceive treatment technologies in light of the concept of authenticity. Interview data (...)
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  2.  2
    Fiona MacCallum & Heather Widdows (forthcoming). Altered Images: Understanding the Influence of Unrealistic Images and Beauty Aspirations. Health Care Analysis:1-11.
    In this paper we consider the impact of digitally altered images on individuals’ body satisfaction and beauty aspirations. Drawing on current psychological literature we consider interventions designed to increase knowledge about the ubiquity and unreality of digital images and, in the form of labelling, provide information to the consumer. Such interventions are intended to address the negative consequences of unrealistic beauty ideals. However, contrary to expectations, such initiatives may not be effective, especially in the long-term, and may even be counter-productive. (...)
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  3.  3
    Daniela Cutas & Anna Smajdor (forthcoming). “I Am Your Mother and Your Father!” In Vitro Derived Gametes and the Ethics of Solo Reproduction. Health Care Analysis:1-16.
    In this paper, we will discuss the prospect of human reproduction achieved with gametes originating from only one person. According to statements by a minority of scientists working on the generation of gametes in vitro, it may become possible to create eggs from men’s non-reproductive cells and sperm from women’s. This would enable, at least in principle, the creation of an embryo from cells obtained from only one individual: ‘solo reproduction’. We will consider what might motivate people to reproduce in (...)
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  4. Andrew Edgar (forthcoming). The Athletic Body. Health Care Analysis:1-15.
    This paper seeks to explore the attraction and the beauty of the contemporary athletic body. It will be suggested that a body shaped through muscular bulk and definition has come to be seen as aesthetically normative. This body differs from the body of athletes from the early and mid-twentieth century. It will be argued that the contemporary body is not merely the result of advances in sports science, but rather that it is expressive of certain meanings and values. The visual (...)
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  5. Vikki A. Entwistle, Alan Cribb & John Owens (forthcoming). Why Health and Social Care Support for People with Long-Term Conditions Should Be Oriented Towards Enabling Them to Live Well. Health Care Analysis:1-18.
    There are various reasons why efforts to promote “support for self-management” have rarely delivered the kinds of sustainable improvements in healthcare experiences, health and wellbeing that policy leaders internationally have hoped for. This paper explains how the basis of failure is in some respects built into the ideas that underpin many of these efforts. When support for self-management is narrowly oriented towards educating and motivating patients to adopt the behaviours recommended for disease control, it implicitly reflects and perpetuates limited and (...)
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  6.  3
    Éric Gagnon, Michèle Clément & Lilianne Bordeleau (forthcoming). Speaking Out and Being Heard Residents’ Committees in Quebec’s Residential Long-Term Care Centre. Health Care Analysis:1-15.
    Residents’ councils in Quebec’s residential and long-term care centres have the mandate to promote the improvement of living conditions for residents, to assess their level of satisfaction, and to defend their rights. Based on two studies on the autonomy of councils, we examined how committees can express themselves on topics other than those the management is already aware of, to reveal various previously unknown aspects of the services, and to voice unexpressed concerns. We are especially interested in what makes management (...)
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  7.  1
    Siun Gallagher & Miles Little (forthcoming). Doctors on Values and Advocacy: A Qualitative and Evaluative Study. Health Care Analysis:1-16.
    Doctors are increasingly enjoined by their professional organisations to involve themselves in supraclinical advocacy, which embraces activities focused on changing practice and the system in order to address the social determinants of health. The moral basis for doctors’ decisions on whether or not to do so has been the subject of little empirical research. This opportunistic qualitative study of the values of medical graduates associated with the Sydney Medical School explores the processes that contribute to doctors’ decisions about taking up (...)
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  8.  14
    Kalle Grill & Angus Dawson (forthcoming). Ethical Frameworks in Public Health Decision-Making: Defending a Value-Based and Pluralist Approach. Health Care Analysis:1-17.
    A number of ethical frameworks have been proposed to support decision-making in public health and the evaluation of public health policy and practice. This is encouraging, since ethical considerations are of paramount importance in health policy. However, these frameworks have various deficiencies, in part because they incorporate substantial ethical positions. In this article, we discuss and criticise a framework developed by James Childress and Ruth Bernheim, which we consider to be the state of the art in the field. Their framework (...)
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  9.  8
    Kor Grit & Teun Zuiderent-Jerak (forthcoming). Making Markets in Long-Term Care: Or How a Market Can Work by Being Invisible. Health Care Analysis:1-18.
    Many Western countries have introduced market principles in healthcare. The newly introduced financial instrument of “care-intensity packages” in the Dutch long-term care sector fit this development since they have some characteristics of a market device. However, policy makers and care providers positioned these instruments as explicitly not belonging to the general trend of marketisation in healthcare. Using a qualitative case study approach, we study the work that the two providers have done to fit these instruments to their organisations and how (...)
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  10. A. M. Henk (forthcoming). Have JT. Choosing Core Health Services in the Netherlands. Health Care Analysis.
     
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  11.  5
    Stephen Holland & David Stocks (forthcoming). Trust and Its Role in the Medical Encounter. Health Care Analysis:1-15.
    This paper addresses two research questions. The first is theoretical: What is trust? In the first half of this paper we present a distinctive tripartite analysis. We describe three attitudes, here called reliance, specific trust and general trust, each of which is characterised and illustrated. We argue that these attitudes are related, but not reducible, to one another. We suggest that the current impasse in the analysis of trust is in part due to the fact that some writers allude to (...)
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  12.  8
    Naomi Rebecca Hughes (forthcoming). How Does Organisational Literacy Impact Access to Health Care for Homeless Individuals? Health Care Analysis:1-17.
    This article describes a study that examined the experiences of 27 individuals who frequented an Open Access homeless shelter in Toronto, Canada. The overarching aim of this study was to map the social organisation of health care in Toronto, with particular regards to the ways in which literacy, or the lack of literacy, mediates the experiences of homeless individuals attempting to gain access to health care. While terms such as “literate” or “illiterate” might be seen to reflect an individual’s level (...)
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  13.  2
    Katrina Hutchison, Wendy Rogers & Vikki A. Entwistle (forthcoming). Addressing Deficits and Injustices: The Potential Epistemic Contributions of Patients to Research. Health Care Analysis:1-18.
    Patient or public involvement in health research is increasingly expected as a matter of policy. In theory, PPI can contribute both to the epistemic aims intrinsic to research, and to extrinsically valued features of research such as social inclusion and transparency. In practice, the aims of PPI have not always been clear, although there has been a tendency to encourage the involvement of so-called ordinary people who are regarded as representative of an assumed patient perspective. In this paper we focus (...)
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  14. Will Johncock (forthcoming). How Much Care is Enough? Carer’s Guilt and Bergsonian Time. Health Care Analysis:1-14.
    Despite devoting their time to another person’s needs, many carers paradoxically experience guilt during their caregiving tenure concerning whether they are providing enough care. When discussing the “enough” of anything, what is at stake is that thing’s quantification. Given that there are seemingly no quantifiable units of care by which to measure the role, concerns regarding whether enough care is being provided often focus on what constitutes enough time as a carer. In exploring this aspect of the carer’s experience, two (...)
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  15.  8
    Niklas Juth (forthcoming). For the Sake of Justice: Should We Prioritize Rare Diseases? Health Care Analysis:1-20.
    This article is about the justifiability of accepting worse cost effectiveness for orphan drugs, that is, treatments for rare diseases, in a publicly financed health care system. Recently, three arguments have been presented that may be used in favour of exceptionally advantageous economic terms for orphan drugs. These arguments share the common feature of all referring to considerations of justice or fairness: the argument of the irrelevance of group size, the argument from the principle of need, and the argument of (...)
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  16.  6
    Lieslot Mahieu, Luc Anckaert & Chris Gastmans (forthcoming). Intimacy and Sexuality in Institutionalized Dementia Care: Clinical-Ethical Considerations. Health Care Analysis:1-20.
    Intimacy and sexuality expressed by nursing home residents with dementia remains an ethically sensitive issue for care facilities, nursing staff and family members. Dealing with residents’ sexual longings and behaviour is extremely difficult, putting a burden on the caregivers as well as on the residents themselves and their relatives. The parties in question often do not know how to react when residents express themselves sexually. The overall aim of this article is to provide a number of clinical-ethical considerations addressing the (...)
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  17.  11
    Alex McKeown (forthcoming). Critical Realism and Empirical Bioethics: A Methodological Exposition. Health Care Analysis:1-21.
    This paper shows how critical realism can be used to integrate empirical data and philosophical analysis within ‘empirical bioethics’. The term empirical bioethics, whilst appearing oxymoronic, simply refers to an interdisciplinary approach to the resolution of practical ethical issues within the biological and life sciences, integrating social scientific, empirical data with philosophical analysis. It seeks to achieve a balanced form of ethical deliberation that is both logically rigorous and sensitive to context, to generate normative conclusions that are practically applicable to (...)
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  18.  4
    Ellen Meijer, Gert Schout & Tineke Abma (forthcoming). Am I My Brother’s Keeper? Moral Dimensions of Informal Caregiving in a Neoliberal Society. Health Care Analysis:1-15.
    Within the current Dutch policy context the role of informal care is revalued. Formal care activities are reduced and family and friends are expected to fill this gap. Yet, there is little research on the moral ambivalences that informal care for loved ones who have severe and ongoing mental health problems entails, especially against the backdrop of neoliberal policies. Giving priority to one’s own life project or caring for a loved one with severe problems is not reconciled easily. Using a (...)
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  19.  13
    Laura Pritchard-Jones (forthcoming). Ageism and Autonomy in Health Care: Explorations Through a Relational Lens. Health Care Analysis:1-18.
    Ageism within the context of care has attracted increasing attention in recent years. Similarly, autonomy has developed into a prominent concept within health care law and ethics. This paper explores the way that ageism, understood as a set of negative attitudes about old age or older people, may impact on an older person’s ability to make maximally autonomous decisions within health care. In particular, by appealing to feminist constructions of autonomy as relational, I will argue that the key to establishing (...)
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  20.  3
    Lynette Reid (forthcoming). Concierge, Wellness, and Block Fee Models of Primary Care: Ethical and Regulatory Concerns at the Public–Private Boundary. Health Care Analysis:1-17.
    In bioethics and health policy, we often discuss the appropriate boundaries of public funding; how the interface of public and private purchasers and providers should be organized and regulated receives less attention. In this paper, I discuss ethical and regulatory issues raised at this interface by three medical practice models in which physicians provide insured services while requiring or requesting that patients pay for services or for the non-insured services of the physicians themselves or their associates. This choice for such (...)
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  21.  5
    Lynette Reid (forthcoming). Medical Need: Evaluating a Conceptual Critique of Universal Health Coverage. Health Care Analysis:1-24.
    Some argue that the concept of medical need is inadequate to inform the design of a universal health care system—particularly an institutional rather than a residual system. They argue that the concept contradicts the idea of comprehensiveness; leads to unsustainable expenditures; is too indeterminate for policy; and supports only a prioritarian distribution. I argue that ‘comprehensive’ understood as ‘including the full continuum of care’ and ‘medically necessary’ understood as ‘prioritized by medical criteria’ are not contradictory, and that UHC is a (...)
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  22.  3
    David B. Resnik (forthcoming). Examining the Social Benefits Principle in Research with Human Participants. Health Care Analysis:1-15.
    The idea that research with human participants should benefit society has become firmly entrenched in various regulations, policies, and guidelines, but there has been little in-depth analysis of this ethical principle in the bioethics literature. In this paper, I distinguish between strong and weak versions and the social benefits principle and examine six arguments for it. I argue that while it is always ethically desirable for research with human subjects to offer important benefits to society, the reasonable expectation of substantial (...)
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  23.  8
    Murielle Rondeau-Lutz & Jean-Christophe Weber (forthcoming). The Absent Interpreter in Administrative Detention Center Medical Units. Health Care Analysis:1-18.
    The particular situation of the French administrative detention center medical units appears to be an exemplary case to study the difficulties facing medical practice. Indeed, the starting point of our inquiry was an amazing observation that needed to be addressed and understood: why are professional interpreters so seldom requested in ADC medical units, where one would expect that they would be “naturally” present? Aiming to fully explore the meanings of the “absent interpreter”, this article takes into account the possible meanings (...)
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  24.  3
    Lars Sandman & Erik Gustavsson (forthcoming). The Relevance of Group Size in Health Care Priority Setting: A Reply to Juth. Health Care Analysis:1-13.
    How to handle orphan drugs for rare diseases is a pressing problem in current health-care. Due to the group size of patients affecting the cost of treatment, they risk being disadvantaged in relation to existing cost-effectiveness thresholds. In an article by Niklas Juth it has been argued that it is irrelevant to take indirectly operative factors like group size into account since such a compensation would risk discounting the use of cost, a relevant factor, altogether. In this article we analyze (...)
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  25.  1
    Stephen W. Smith (forthcoming). Individualised Claims of Conscience, Clinical Judgement and Best Interests. Health Care Analysis:1-13.
    Conscience and conscientious objections are important issues in medical law and ethics. However, discussions tend to focus on a particular type of conscience-based claim. These types of claims are based upon predictable, generalizable rules in which an individual practitioner objects to what is otherwise standard medical treatment. However, not all conscience based claims are of this type. There are other claims which are based not on an objection to a treatment in general but in individual cases. In other words, these (...)
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  26.  4
    Jeremy Snyder, Rory Johnston, Valorie A. Crooks, Jeff Morgan & Krystyna Adams (forthcoming). How Medical Tourism Enables Preferential Access to Care: Four Patterns From the Canadian Context. Health Care Analysis:1-13.
    Medical tourism is the practice of traveling across international borders with the intention of accessing medical care, paid for out-of-pocket. This practice has implications for preferential access to medical care for Canadians both through inbound and outbound medical tourism. In this paper, we identify four patterns of medical tourism with implications for preferential access to care by Canadians: Inbound medical tourism to Canada’s public hospitals; Inbound medical tourism to a First Nations reserve; Canadian patients opting to go abroad for medical (...)
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  27.  7
    Georg Spielthenner (forthcoming). The Principle-Based Method of Practical Ethics. Health Care Analysis:1-15.
    This paper is about the methodology of doing practical ethics. There is a variety of methods employed in ethics. One of them is the principle-based approach, which has an established place in ethical reasoning. In everyday life, we often judge the rightness and wrongness of actions by their conformity to principles, and the appeal to principles plays a significant role in practical ethics, too. In this paper, I try to provide a better understanding of the nature of principle-based reasoning. To (...)
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  28. M. J. Trappenburg & H. Bovenkamp (forthcoming). Reconsidering Patient Participation in Guideline Development. Health Care Analysis.
     
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  29.  5
    Lieke van der Scheer, Elisa Garcia, Anna Laura van der Laan, Simone van der Burg & Marianne Boenink (forthcoming). The Benefits of Patient Involvement for Translational Research. Health Care Analysis:1-17.
    The question we raise in this paper is, whether patient involvement might be a beneficial way to help determine and achieve the aims of translational research and, if so, how to proceed. TR is said to ensure a more effective movement of basic scientific findings to relevant and useful clinical applications. In view of the fact that patients are supposed to be the primary beneficiaries of such translation and also have relevant knowledge based on their experience, listening to their voice (...)
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