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- Joseph Agassi (1975). Subjectivism: From Infantile Disease to Chronic Illness. Synthese 30 (1-2):3 - 14.
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Chronic diseases are recognized as a leadingcause of mortality, morbidity, health careutilization and cost. A constant tailoring ofcare to the actual needs of individualpatients, complexity and long duration are thedistinguishing features of chronic diseasemanagement.
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The following article is a response to the position paper of the Hastings Center, "Ethical Challenges of Chronic Illness", a product of their three year project on Ethics and Chronic Care. The authors of this paper, three prominent bioethicists, Daniel Callahan, Arthur Caplan, and Bruce Jennings, argue that there should be a different ethic for acute and chronic care. In pressing this distinction they provide philosophical grounds for limiting medical care for the elderly and chronically ill. We give a critical survey of their position and reject it as well as any attempt to characterize the physician-patient relationship as a commercial contract. We emphasize, as central features of good medical practice, a commitment to be the patient's agent and a determination to acquire and be guided by knowledge. These commitments may sometimes conflict with efforts to have the physician serve as an instrument of social and economic policies limiting medical care. Keywords: acute, agent, autonomy, chronic, knowledge, obligations, rights CiteULike Connotea Del.icio.us What's this?
The impact of the stigma often associated with chronic illness cannot be explained by sociology alone, yet sociology has a significant contribution to make, most obviously through the analysis of stigma relations as social structures. This paper draws on critical realist philosophy and advances a jigsaw model comprising logics, relations and figurations to assist empirical enquiry. A case is made for focusing on interrelations between the logic of shame and the relations of stigma it gives rise to and other logics/relations across a range of figurations. A new framework for understanding and explaining stigmatising illness is put forward and subsequently applied to contemporary programmes of stigma reduction. The principal thesis of the paper is that across many of the figurations in which chronic illness features the logic of shame and its relations of stigma have lost ground to the logic of culpability and its relations of deviance. In short, people with chronic illness are increasingly being held culpable for their condition.
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Chronic diseases carry important psychological and social consequences that demand significant psychological adjustment. The literature is providing increasingly nuanced conceptualizations of adjustment, demonstrating that the experience of chronic disease necessitates adaptation in multiple life domains. Heterogeneity in adjustment is apparent between individuals and across the course of the disease trajectory. Focusing on cancer, cardiovascular disease, and rheumatic diseases, we review longitudinal investigations of distal (socioeconomic variables, culture/ethnicity, and gender-related processes) and proximal (interpersonal relationships, personality attributes, cognitive appraisals, and coping processes) risk and protective factors for adjustment across time. We observe that the past decade has seen a surge in research that is longitudinal in design, involves adequately characterized samples of sufficient size, and includes statistical control for initial values on dependent variables. A progressively convincing characterization of risk and protective factors for favorable adjustment to chronic illness has emerged. We identify critical issues for future research.
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The notions of health, illness, and disease are fuzzy-theoretically analyzed. They present themselves as non-Aristotelian concepts violating basic principles of classical logic. A recursive scheme for defining the controversial notion of disease is proposed that also supports a concept of fuzzy disease. A sketch is given of the prototype resemblance theory of disease.
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Discussion of Joseph Agassi, Subjectivism: From infantile disease to chronic illness
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