American sign language and end-of-life care: Research in the deaf community [Book Review]

HEC Forum 14 (3):197-208 (2002)
We describe how a Community-Based Participatory Research (CBPR) process was used to develop a means of discussing end-of-life care needs of Deaf seniors. This process identified a variety of communication issues to be addressed in working with this special population. We overview the unique linguistic and cultural characteristics of this community and their implications for working with Deaf individuals to provide information for making informed decisions about end-of-life care, including completion of health care directives. Our research and our work with members of the Deaf community strongly show that communication and presentation of information should be in American Sign Language, the language of Deaf citizens
Keywords Philosophy   Ethics   Philosophy of Medicine   Theory of Medicine/Bioethics   Medical Law
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DOI 10.1023/A:1020508511133
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