David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
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Theoretical Medicine and Bioethics 22 (5):461-471 (2001)
As knowledge increases about the human genome,prenatal genetic testing will become cheaper,safer and more comprehensive. It is likelythat there will be a great deal of support formaking prenatal testing for a wide range ofgenetic disorders a routine part of antenatalcare. Such routine testing is necessarilycoercive in nature and does not involve thesame standard of consent as is required inother health care settings. This paper askswhether this level of coercion is ethicallyjustifiable in this case, or whether pregnantwomen have a right to remain in ignorance ofthe genetic make-up of the fetus they arecarrying. While information gained by genetictesting may be useful for pregnant women whenmaking decisions about their pregnancy, it doesnot prevent harm to future children. It isargued that as this kind of testing providesinformation in the interests of the pregnantwomen and not in the interests of any futurechild, the same standards of consent that arenormally required for genetic testing should berequired in this instance
|Keywords||autonomy consent coercion harm prenatal genetic testing|
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Citations of this work BETA
Jane Wilson (2005). To Know or Not to Know? Genetic Ignorance, Autonomy and Paternalism. Bioethics 19 (5-6):492-504.
Eli Feiring (2009). Reassessing Insurers' Access to Genetic Information: Genetic Privacy, Ignorance, and Injustice. Bioethics 23 (5):300-310.
Bartha Maria Knoppers (2014). INTRODUCTION: From the Right to Know to the Right Not to Know. Journal of Law, Medicine and Ethics 42 (1):6-10.
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