Graduate studies at Western
Kennedy Institute of Ethics Journal 8 (2):145-160 (1998)
|Abstract||: The accelerated discovery of gene mutations that lead to increased risk of disease has led to the rapid development of predictive genetic tests. These tests improve the accuracy of assigning risk, but at a time when intervention or prevention strategies are largely unproved. In coming years, however, data will become increasingly available to guide treatment of genetic diseases. Eventually genetic testing will be performed for common diseases as well as for rare genetic conditions. This will challenge genetic counseling practice. The ethical principles that now guide this practice take into account the personal nature of test decision making, the need to respect individual self-determination, and the importance of client confidentiality. Certain of these principles may have to be modified as genetic testing becomes more widespread in order to meet the changing needs of clients and society. This paper offers recommendations to ensure that genetic counselors will take a leading role in the future delivery of ethical genetic services|
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
|Through your library||Configure|
Similar books and articles
Fuat S. Oduncu (2002). The Role of Non-Directiveness in Genetic Counseling. Medicine, Health Care and Philosophy 5 (1):53-63.
Antoinette Rouvroy (2008). Human Genes and Neoliberal Governance: A Foucauldian Critique. Routledge-Cavendish.
Mark Yarborough, Joan A. Scott & Linda K. Dixon (1989). The Role of Beneficence in Clinical Genetics: Non-Directive Counseling Reconsidered. Theoretical Medicine and Bioethics 10 (2).
Robert Roger Lebel (1978). Ethical Issues Arising in the Genetic Counseling Relationship. National Foundation--March of Dimes.
Annette Patterson & Martha Satz (2002). Genetic Counseling and the Disabled: Feminism Examines the Stance of Those Who Stand at the Gate. Hypatia 17 (3):118-142.
Rosamond Rhodes (1998). Genetic Links, Family Ties, and Social Bonds: Rights and Responsibilities in the Face of Genetic Knowledge. Journal of Medicine and Philosophy 23 (1):10 – 30.
Cheryl Berg & Kelly Fryer-Edwards (2008). The Ethical Challenges of Direct-to-Consumer Genetic Testing. Journal of Business Ethics 77 (1):17 - 31.
Ludvig Beckman (2004). Are Genetic Self-Tests Dangerous? Assessing the Commercialization of Genetic Testing in Terms of Personal Autonomy. Theoretical Medicine and Bioethics 25 (5-6):387-398.
V. Launis (2000). The Use of Genetic Test Information in Insurance: The Argument From Indistinguishability Reconsidered. Science and Engineering Ethics 6 (3).
Sonia M. Suter (1998). Value Neutrality and Nondirectiveness: Comments on "Future Directions in Genetic Counseling". Kennedy Institute of Ethics Journal 8 (2):161-163.
Added to index2009-01-28
Total downloads16 ( #81,883 of 739,136 )
Recent downloads (6 months)1 ( #61,778 of 739,136 )
How can I increase my downloads?