Graduate studies at Western
Journal of Medical Ethics 34 (5):370-374 (2008)
|Abstract||Purpose: A study was made of attitudes of clinical geneticists regarding the age at which minors should be allowed to undergo a carrier test and the reasons they provide to explain their answer. Methods: European clinical institutions where genetic counselling is offered to patients were contacted. 177 (63%) of the 287 eligible respondents answered a questionnaire. Results: Clinical geneticists were significantly more in favour of providing a carrier test to a younger person if the request was made together with the parents than if the adolescent requested the test personally. Although a large fraction of respondents (16%–30%) were “neither unwilling nor willing” to provide a carrier test to a 16-year-old adolescent who requested the test personally, for most disorders slightly more clinical geneticists were “very willing” or “willing”. Conclusion: Age is not the only decisive element when considering the participation of adolescents in decisions affecting their health. The clinical geneticists referred to cognitive, emotional and sexual maturity and the support of parents as crucial elements in their comments regarding when to tell children about their genetic risk or to allow adolescents to request a carrier test|
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
|Through your library||Configure|
Similar books and articles
Deborah Bowman (2011). Informed Consent: A Primer for Clinical Practice. Cambridge University Press.
Eline M. Bunnik, A. Cecile J. W. Janssens & Maartje H. N. Schermer (2013). Informed Consent in Direct-to-Consumer Personal Genome Testing: The Outline of A Model Between Specific and Generic Consent. Bioethics 27 (3).
David Shaw (2009). Prescribing Placebos Ethically: The Appeal of Negatively Informed Consent. Journal of Medical Ethics 35 (2):97-99.
Martin Gunderson, David J. Mayo & Frank S. Rhame (1996). Routine HIV Testing of Hospital Patients and Pregnant Women: Informed Consent in the Real World. Kennedy Institute of Ethics Journal 6 (2):161-182.
S. O'Brien (2012). Minors and Refusal of Medical Treatment: A Critique of the Law Regarding the Current Lack of Meaningful Consent with Regards to Minors and Recommendations for Future Change. Clinical Ethics 7 (2):67-72.
Dennis John Mazur (1998). Medical Risk and the Right to an Informed Consent in Clinical Care and Clinical Research. American College of Physician Executives.
Piotr S. Iwanowski (2007). Informed Consent Procedure for Clinical Trials in Emergency Settings: The Polish Perspective. Science and Engineering Ethics 13 (3):333-336.
A. Boyce & P. Borry (2009). Parental Authority, Future Autonomy, and Assessing Risks of Predictive Genetic Testing in Minors. Journal of Bioethical Inquiry 6 (3):379-385.
Katherine Gehringer (2003). Informed Consent: Hospitals Must Obtain Informed Consent Prior to Drug Testing Pregnant Patients. Journal of Law, Medicine and Ethics 31 (3):455-457.
Piotr Zaborowski & Adam Górski (2004). Informed Consent and the Use of Placebo in Poland: Ethical and Legal Aspects. Science and Engineering Ethics 10 (1).
Michelle H. Biros (2007). Research Without Consent: Exception From and Waiver of Informed Consent in Resuscitation Research. Science and Engineering Ethics 13 (3):361-369.
Akira Akabayashi & Brian Taylor Slingsby (2006). Informed Consent Revisited: Japan and the U.S. American Journal of Bioethics 6 (1):9 – 14.
Franklin G. Miller & Alan Wertheimer (2011). The Fair Transaction Model of Informed Consent: An Alternative to Autonomous Authorization. Kennedy Institute of Ethics Journal 21 (3):201-218.
Susan E. Zinner (1995). The Elusive Goal of Informed Consent by Adolescents. Theoretical Medicine and Bioethics 16 (4).
E. Macharia & D. Milanovic (2009). Obtaining Consent From Minors with Parental Responsibility. Clinical Ethics 4 (2):102-105.
Sorry, there are not enough data points to plot this chart.
Added to index2010-09-13
Total downloads1 ( #292,878 of 740,515 )
Recent downloads (6 months)1 ( #61,957 of 740,515 )
How can I increase my downloads?