David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Journal of Bioethical Inquiry 6 (3):379-385 (2009)
The debate over the genetic testing of minors has developed into a major bioethical topic. Although several controversial questions remain unanswered, a degree of consensus has been reached regarding the policies on genetic testing of minors. Recently, several commentators have suggested that these policies are overly restrictive, too narrow in focus, and even in conflict with the limited empirical evidence that exists on this issue. We respond to these arguments in this paper, by first offering a clarification of three key concepts—autonomy of the minor, future autonomy, and parental authority—which must be disentangled. We then respond to the arguments by noting the uncertainty of the value of predictive genetic information, and by assessing the psychosocial risks still involved in genetic testing of minors, which are also largely unknown. We conclude that the current consensus position is justified at this stage, in light of the predictions of harm resulting from genetic testing of minors that have not been adequately proved to be unwarranted.
|Keywords||Genetic testing Predictive testing Adult-onset genetic diseases Genetic diseases|
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References found in this work BETA
P. Baines (2008). Medical Ethics for Children: Applying the Four Principles to Paediatrics. Journal of Medical Ethics 34 (3):141-145.
Eric T. Juengst (2004). FACE Facts: Why Human Genetics Will Always Provoke Bioethics. Journal of Law, Medicine and Ethics 32 (2):267-275.
P. J. Malpas (2008). Predictive Genetic Testing of Children for Adult-Onset Diseases and Psychological Harm. Journal of Medical Ethics 34 (4):275-278.
P. J. Malpas (2006). Why Tell Asymptomatic Children of the Risk of an Adult-Onset Disease in the Family but Not Test Them for It? Journal of Medical Ethics 32 (11):639-642.
Stephen Robertson & Julian Savelescu (2001). Is There a Case in Favour of Predictive Genetic Testing in Young Children? Bioethics 15 (1):26–49.
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