Promoting advance planning for health care and research among older adults: a randomized controlled trial [Book Review]
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Gina Bravo, Marcel Arcand, Daniele Blanchette, Anne-Marie Boire-Lavigne, Marie-France Dubois, Maryse Guay, Paule Hottin, Julie Lane, Judith Lauzon & Suzanne Bellemare
BMC Medical Ethics 13 (1):1- (2012)
Background: Family members are often required to act as substitute decision-makers when health care or research participation decisions must be made for an incapacitated relative. Yet most families are unable to accurately predict older adult preferences regarding future health care and willingness to engage in research studies. Discussion and documentation of preferences could improve proxies' abilities to decide for their loved ones. This trial assesses the efficacy of an advance planning intervention in improving the accuracy of substitute decision-making and increasing the frequency of documented preferences for health care and research. It also investigates the financial impact on the healthcare system of improving substitute decision-making.Methods/DesignDyads (n = 240) comprising an older adult and his/her self-selected proxy are randomly allocated to the experimental or control group, after stratification for type of designated proxy and self-report of prior documentation of healthcare preferences. At baseline, clinical and research vignettes are used to elicit older adult preferences and assess the ability of their proxy to predict those preferences. Responses are elicited under four health states, ranging from the subject's current health state to severe dementia. For each state, we estimated the public costs of the healthcare services that would typically be provided to a patient under these scenarios. Experimental dyads are visited at home, twice, by a specially trained facilitator who communicates the dyad-specific results of the concordance assessment, helps older adults convey their wishes to their proxies, and offers assistance in completing a guide entitled My Preferences that we designed specifically for that purpose. In between these meetings, experimental dyads attend a group information session about My Preferences. Control dyads attend three monthly workshops aimed at promoting healthy behaviors. Concordance assessments are repeated at the end of the intervention and 6 months later to assess improvement in predictive accuracy and cost savings, if any. Copies of completed guides are made at the time of these assessments.DiscussionThis study will determine whether the tested intervention guides proxies in making decisions that concur with those of older adults, motivates the latter to record their wishes in writing, and yields savings for the healthcare system.Trial RegistrationISRCTN89993391
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References found in this work BETA
Inés Maria Barrio-Cantalejo, Adoración Molina-Ruiz, Pablo Simón-Lorda, Carmen Cámara-Medina, Isabel Toral López, Maria del Mar Rodríguez del Águila & Rosa Maria Bailón-Gómez (2009). Advance Directives and Proxies' Predictions About Patients' Treatment Preferences. Nursing Ethics 16 (1):93-109.
G. Bravo (2003). Knowledge of the Legislation Governing Proxy Consent to Treatment and Research. Journal of Medical Ethics 29 (1):44-50.
Citations of this work BETA
Corinna Porteri & Carlo Petrini (2015). Research Involving Subjects with Alzheimer’s Disease in Italy: The Possible Role of Family Members. BMC Medical Ethics 16 (1):12.
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