David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Medicine, Health Care and Philosophy 15 (3):321-328 (2012)
A recent study by Castellani et al. (JAMA 302(23):2573–2579, 2009) describes the population-level effects of the choices of individuals who underwent molecular carrier screening for cystic fibrosis (CF) in Veneto, in the northeastern part of Italy, between 1993 and 2007. We discuss some of the ethical issues raised by the policies and individual choices that are the subject of this study. In particular, (1) we discuss the ethical issues raised by the acquisition of genetic information through antenatal carrier testing; (2) we consider whether by choosing to procreate naturally these couples can harm the resulting child and/or other members of society, and what the moral implications of such harm would be; (3) we consider whether by choosing to avoid natural procreation carrier couples can harm current or future individuals affected by cystic fibrosis; (4) we discuss whether programs that make carrier testing available can be considered eugenic programs
|Keywords||Carrier screening Cystic fibrosis Eugenics Genetic testing Reproductive freedom|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Allen E. Buchanan, Dan W. Brock, Norman Daniels & Daniel Wikler (2000). From Chance to Choice. Cambridge University Press.
Philip Kitcher (2001). Science, Truth, and Democracy. Oxford University Press.
Derek A. Parfit (1984). Reasons and Persons. Oxford University Press.
Citations of this work BETA
No citations found.
Similar books and articles
Susan Lindee & Rebecca Mueller (2011). Is Cystic Fibrosis Genetic Medicine's Canary? Perspectives in Biology and Medicine 54 (3):316-331.
Ruth Chadwick, Henk ten Have, Jfrgen Husted, Mairi Levitt, Tony McGleenan, Darren Shickle & Urban Wiesing (1998). Genetic Screening and Ethics: European Perspectives. Journal of Medicine and Philosophy 23 (3):255 – 273.
A. Jaffe (2006). Gene Therapy for Children with Cystic Fibrosis--Who has the Right to Choose? Journal of Medical Ethics 32 (6):361-364.
Sean A. Valles (2012). Heterogeneity of Risk Within Racial Groups, a Challenge for Public Health Programs. Preventive Medicine 55 (5):405-408.
Sahin Aksoy (2001). Antenatal Screening and its Possible Meaning From Unborn Baby's Perspective. BMC Medical Ethics 2 (1):1-11.
Jeff McMahan (1998). Wrongful Life: Paradoxes in the Morality of Causing People to Exist. In Jules L. Coleman, Christopher W. Morris & Gregory S. Kavka (eds.), Rational Commitment and Social Justice: Essays for Gregory Kavka. Cambridge University Press. 208--47.
Anya Plutynski (2012). Ethical Issues in Cancer Screening and Prevention. Journal of Medicine and Philosophy 37 (3):310-323.
Sean A. Valles (2010). The Mystery of the Mystery of Common Genetic Diseases. Biology and Philosophy 25 (2):183-201.
R. H. Dees & J. M. Kwon (2013). The Ethics of Krabbe Newborn Screening. Public Health Ethics 6 (1):114-128.
Jennifer M. Jørgensen, Paula L. Hedley, Mickey Gjerris & Michael Christiansen (2014). Ethical Issues Related to Screening for Preeclampsia. Bioethics 28 (7):360-367.
Jyotsna Agnihotri Gupta (2007). Private and Public Eugenics: Genetic Testing and Screening in India. [REVIEW] Journal of Bioethical Inquiry 4 (3):217-228.
Silvana Signori (2009). Ethical (Sri) Funds in Italy: A Review. Business Ethics 18 (2):145-164.
Niklas Juth & Christian Munthe (2012). The Ethics of Screening in Health Care and Medicine: Serving Society Or Serving the Patient? Springer Verlag.
Paula Boddington & Susan Hogben (2006). Working Up Policy: The Use of Specific Disease Exemplars in Formulating General Principles Governing Childhood Genetic Testing. [REVIEW] Health Care Analysis 14 (1):1-13.
Lainie Friedman Ross (2002). Predictive Genetic Testing for Conditions That Present in Childhood. Kennedy Institute of Ethics Journal 12 (3):225-244.
Added to index2011-10-18
Total downloads2 ( #343,262 of 1,098,129 )
Recent downloads (6 months)1 ( #283,807 of 1,098,129 )
How can I increase my downloads?