David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Medicine, Health Care and Philosophy 15 (3):321-328 (2012)
A recent study by Castellani et al. (JAMA 302(23):2573–2579, 2009) describes the population-level effects of the choices of individuals who underwent molecular carrier screening for cystic fibrosis (CF) in Veneto, in the northeastern part of Italy, between 1993 and 2007. We discuss some of the ethical issues raised by the policies and individual choices that are the subject of this study. In particular, (1) we discuss the ethical issues raised by the acquisition of genetic information through antenatal carrier testing; (2) we consider whether by choosing to procreate naturally these couples can harm the resulting child and/or other members of society, and what the moral implications of such harm would be; (3) we consider whether by choosing to avoid natural procreation carrier couples can harm current or future individuals affected by cystic fibrosis; (4) we discuss whether programs that make carrier testing available can be considered eugenic programs.
|Keywords||Carrier screening Cystic fibrosis Eugenics Genetic testing Reproductive freedom|
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References found in this work BETA
Derek Parfit (1984). Reasons and Persons. Oxford University Press.
Philip Kitcher (2001). Science, Truth, and Democracy. Oxford University Press.
Allen E. Buchanan, Dan W. Brock, Norman Daniels & Daniel Wikler (2000). From Chance to Choice: Genetics and Justice. Cambridge University Press.
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