David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
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Science and Engineering Ethics 12 (3):491-507 (2006)
This essay explores the process and issues related to community collaborative research that involves Native Americans generally, and specifically examines the Navajo Nation’s efforts to regulate research within its jurisdiction. Researchers need to account for both the experience of Native Americans and their own preconceptions about Native Americans when conducting research about Native Americans. The Navajo Nation institutionalized an approach to protecting members of the nation when it took over Institutional Review Board (IRB) responsibilities from the US Indian Health Service (IHS) in 1996. While written regulations for the Navajo Nation IRB are not dissimilar, and in some ways are less detailed than those of the IHS IRB, in practice the Navajo Nation allows less flexibility. Primary examples of this include not allowing expedited review and requiring prepublication review of all manuscripts. Because of its broad mandate, the Navajo Nation IRB may also require review of some projects that would not normally be subject to IRB approval, including investigative journalism and secondary research about Navajo People that does not involve direct data collection from human subjects.
|Keywords||Native Americans Ethics Research Navajo People Government Regulation|
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Bette Jacobs, Jason Roffenbender, Jeff Collmann, Kate Cherry, LeManuel Lee Bitsói, Kim Bassett & Charles H. Evans (2010). Bridging the Divide Between Genomic Science and Indigenous Peoples. Journal of Law, Medicine & Ethics 38 (3):684-696.
Felicia Schanche Hodge (2012). No Meaningful Apology for American Indian Unethical Research Abuses. Ethics and Behavior 22 (6):431-444.
Brian Schrag (2006). Research with Groups: Group Rights, Group Consent, and Collaborative Research. Science and Engineering Ethics 12 (3):511-521.
Pak-Hang Wong (2016). Consenting to Geoengineering. Philosophy and Technology 29 (2):173-188.
Chip Colwell-Chanthaphonh (2006). Self-Governance, Self-Representation, Self-Determination and the Questions of Research Ethics. Science and Engineering Ethics 12 (3):508-510.
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