David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Law, Medicine & Ethics 36 (2):286-291 (2008)
Despite calls by some commentators for disclosing incidental fndings in genetics research, several factors weigh in favor of caution. The technology of genetics has the power to uncover a vast array of information. The most potent argument for restraint in disclosure is that much research is pursued without consent so that the individual participant may not know that research is being conducted at all. Often the work is done by investigators and at institutions with which the person has no prior contact. Past practice is also relevant; genetics researchers historically have chosen not to disclose incidental fndings, of which misattributed paternity and pleiotropic alleles such as ApoE have been the most common. Many people choose not to have genetic tests when given a choice. It may be desirable to discuss the topic of incidental fndings when consent for research is obtained, but given the risk of unwanted surprise when there has been no prior discussion, the potential utility of incidental fndings should be very high before they are even ofered to individuals
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Lainie Friedman Ross (1996). Disclosing Misattributed Paternity. Bioethics 10 (2):114–130.
Robert F. Weir & Jay R. Horton (forthcoming). DNA Banking and Informed Consent: Part 1. IRB: Ethics & Human Research.
Robert Samuel Wachbroit (1998). The Question Not Asked: The Challenge of Pleiotropic Genetic Tests. Kennedy Institute of Ethics Journal 8 (2):131-144.
Citations of this work BETA
Catherine Gliwa & Benjamin E. Berkman (2013). Do Researchers Have an Obligation to Actively Look for Genetic Incidental Findings? American Journal of Bioethics 13 (2):32-42.
Susan M. Wolf, Jordan Paradise & Charlisse Caga-Anan (2008). The Law of Incidental Findings in Human Subjects Research: Establishing Researchers' Duties. Journal of Law, Medicine & Ethics 36 (2):361-383.
Similar books and articles
Bert Heinrichs (2011). A New Challenge for Research Ethics: Incidental Findings in Neuroimaging. [REVIEW] Journal of Bioethical Inquiry 8 (1):59-65.
Mildred K. Cho (2008). Understanding Incidental Findings in the Context of Genetics and Genomics. Journal of Law, Medicine & Ethics 36 (2):280-285.
Jasper A. Bovenberg (2006). Property Rights in Blood, Genes and Data: Naturally Yours? Martinus Nijhoff Publishers.
Bartha Maria Knoppers (ed.) (2003). Populations and Genetics: Legal and Socio-Ethical Perspectives. Martinus Nijhoff.
U. Deichmann (2004). Early Responses to Avery Et Al.'S Paper on DNA as Hereditary Material. Historical Studies in the Physical and Biological Sciences 34 (2):207-232.
Atsushi Asai, Motoki Ohnishi, Etsuyo Nishigaki, Miho Sekimoto, Shunichi Fukuhara & Tsuguya Fukui (2002). Attitudes of the Japanese Public and Doctors Towards Use of Archived Information and Samples Without Informed Consent: Preliminary Findings Based on Focus Group Interviews. [REVIEW] BMC Medical Ethics 3 (1):1-10.
Franklin G. Miller, Michelle M. Mello & Steven Joffe (2008). Incidental Findings in Human Subjects Research: What Do Investigators Owe Research Participants? Journal of Law, Medicine & Ethics 36 (2):271-279.
Brian van Ness (2008). Genomic Research and Incidental Findings. Journal of Law, Medicine & Ethics 36 (2):292-297.
Alan C. Milstein (2008). Research Malpractice and the Issue of Incidental Findings. Journal of Law, Medicine & Ethics 36 (2):356-360.
Benjamin S. Wilfond & Katherine J. Carpenter (2008). Incidental Findings in Pediatric Research. Journal of Law, Medicine & Ethics 36 (2):332-340.
Charles A. Nelson (2008). Incidental Findings in Magnetic Resonance Imaging (MRI) Brain Research. Journal of Law, Medicine & Ethics 36 (2):315-319.
Erica K. Rangel (2010). The Management of Incidental Findings in Neuro-Imaging Research: Framework and Recommendations. Journal of Law, Medicine & Ethics 38 (1):117-126.
J. J. Gamero, J. -L. Romero, J. -L. Peralta, M. Carvalho & F. Corte-Real (2007). Spanish Public Awareness Regarding DNA Profile Databases in Forensic Genetics: What Type of DNA Profiles Should Be Included? Journal of Medical Ethics 33 (10):598-604.
Vanessa Lux (2008). The Concept of the Gene in Psychiatric Genetics and its Consequences for the Concept of Mental Illness. Poiesis and Praxis 6 (1-2):65-77.
Susan M. Wolf, Frances P. Lawrenz, Charles A. Nelson, Jeffrey P. Kahn, Mildred K. Cho, Ellen Wright Clayton, Joel G. Fletcher, Michael K. Georgieff, Dale Hammerschmidt, Kathy Hudson, Judy Illes, Vivek Kapur, Moira A. Keane, Barbara A. Koenig, Bonnie S. LeRoy, Elizabeth G. McFarland, Jordan Paradise, Lisa S. Parker, Sharon F. Terry, Brian van Ness & Benjamin S. Wilfond (2008). Managing Incidental Findings in Human Subjects Research: Analysis and Recommendations. Journal of Law, Medicine & Ethics 36 (2):219-248.
Added to index2010-08-31
Total downloads7 ( #423,619 of 1,796,539 )
Recent downloads (6 months)1 ( #466,493 of 1,796,539 )
How can I increase my downloads?