Is consent for research genuinely informed? Using decision aid tools to obtain informed consent in the global south
Graduate studies at Western
Journal of Global Ethics 7 (3):349-359 (2011)
|Abstract||Gaining informed consent among marginalized groups that include decisionally incapacitated individuals and those outside of the researcher's own geo-social and ethnic background still challenges many researchers. We suggest that there is a need for consideration of a different approach to research ethics in international settings. Based on extensive field work in West Africa on medical knowledge transfers and patient?healer relationships, this paper will discuss the challenges posed in obtaining informed individual consent in international settings. It is argued that while being on the whole convincing, the top-down approach of the proposed solutions, which clearly dominates the participative approach, fails in building sustainable capacity, decision-making competency, and empowerment in the communities in which the research is conducted. Using appropriate decision aids can help resolve these issues.|
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
|Through your library||Configure|
Similar books and articles
Deborah Bowman (2011). Informed Consent: A Primer for Clinical Practice. Cambridge University Press.
Jukka Varelius (2009). Collective Informed Consent and Decision Power. Science and Engineering Ethics 15 (1):39-50.
Michelle H. Biros (2007). Research Without Consent: Exception From and Waiver of Informed Consent in Resuscitation Research. Science and Engineering Ethics 13 (3):361-369.
Sven Ove Hansson (2006). Informed Consent Out of Context. Journal of Business Ethics 63 (2):149 - 154.
Leonard J. Haas (1991). Hide-and-Seek or Show-and-Tell? Emerging Issues of Informed Consent. Ethics and Behavior 1 (3):175 – 189.
Janet L. Brody, John P. Cluck & Alfredo S. Aragon (1997). Participants' Understanding of the Process of Psychological Research: Informed Consent. Ethics and Behavior 7 (4):285 – 298.
Dennis John Mazur (1998). Medical Risk and the Right to an Informed Consent in Clinical Care and Clinical Research. American College of Physician Executives.
Shaun D. Pattinson (2009). Consent and Informational Responsibility. Journal of Medical Ethics 35 (3):176-179.
David Shaw (2009). Prescribing Placebos Ethically: The Appeal of Negatively Informed Consent. Journal of Medical Ethics 35 (2):97-99.
Oonagh Corrigan (ed.) (2009). The Limits of Consent: A Socio-Ethical Approach to Human Subject Research in Medicine. Oxford University Press.
Augustine Frimpong-mansoh (2008). Culture and Voluntary Informed Consent in African Health Care Systems. Developing World Bioethics 8 (2):104-114.
David B. Annis (1984). Informed Consent, Autonomy, and the Law. Philosophy Research Archives 10:249-259.
Pam McGrath & Emma Phillips (2008). Western Notions of Informed Consent and Indigenous Cultures: Australian Findings at the Interface. [REVIEW] Journal of Bioethical Inquiry 5 (1):21-31.
James R. P. Ogloff & Randy K. Otto (1991). Are Research Participants Truly Informed? Readability of Informed Consent Forms Used in Research. Ethics and Behavior 1 (4):239 – 252.
Sorry, there are not enough data points to plot this chart.
Added to index2011-12-17
Total downloads2 ( #246,187 of 722,949 )
Recent downloads (6 months)0
How can I increase my downloads?