Transforming genetic research practices with marginalized communities: A case for responsive justice
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Hastings Center Report 38 (2):43-53 (2008)
: Genetics researchers often work with distinct communities. To take moral account of how their research affects these communities, they need a richer conception of justice and they need to make those communities equal participants in decision-making about how the research is conducted and what is produced and published out of it.
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Camisha A. Russell (2016). Questions of Race in Bioethics: Deceit, Disregard, Disparity, and the Work of Decentering. Philosophy Compass 11 (1):43-55.
Erika Blacksher (2012). Redistribution and Recognition. Cambridge Quarterly of Healthcare Ethics 21 (03):320-331.
Marin Gillis & Inmaculada de Melo-Martín (2010). Editors' Introduction: Biomedical Technologies. Hypatia 25 (3):497-503.
Similar books and articles
Robert Schinke, Lawrence Enosse, Duke Peltier, Jack Watson & Nancy Lightfoot (2010). Cultural Missteps and Ethical Considerations with Indigenous Populations: Preliminary Reflections From Northeastern Ontario, Canada. [REVIEW] Journal of Academic Ethics 8 (4):233-242.
Bette Jacobs, Jason Roffenbender, Jeff Collmann, Kate Cherry, LeManuel Lee Bitsói, Kim Bassett & Charles H. Evans (2010). Bridging the Divide Between Genomic Science and Indigenous Peoples. Journal of Law, Medicine & Ethics 38 (3):684-696.
Lisa Eckenwiler (2001). Moral Reasoning and the Review of Research Involving Human Subjects. Kennedy Institute of Ethics Journal 11 (1):37-69.
Genevieve Maricle (2011). Prediction as an Impediment to Preparedness: Lessons From the US Hurricane and Earthquake Research Enterprises. Minerva 49 (1):87-111.
Heidi E. Grasswick (2004). Individuals-in-Communities: The Search for a Feminist Model of Epistemic Subjects. Hypatia 19 (3):85-120.
Segun Gbadegesin & David Wendler (2006). Protecting Communities in Health Research From Exploitation. Bioethics 20 (5):248-253.
Charles Weijer & P. B. Miller, Protecting Communities in Pharmacogenetic and Pharmacogenomic Research.
Charles Weijer, Gary Goldsand & Ezekiel J. Emanuel, Protecting Communities in Research: Current Guidelines and Limits of Extrapolation.
Added to index2009-01-28
Total downloads21 ( #177,743 of 1,796,437 )
Recent downloads (6 months)1 ( #467,624 of 1,796,437 )
How can I increase my downloads?