The Use of Newborn Screening Dried Blood Spots for Research

Journal of Bioethical Inquiry 9 (2):189-193 (2012)
ObjectiveTo investigate the attitudes of Chinese parents regarding the storage of dried blood spots collected for newborn screening (NBS) and their use in research.MethodsWe conducted a hospital-based survey of parents and examined parental attitudes regarding (a) allowing NBS sample storage, (b) permitting use of children’s NBS samples for research with parental permission, and (c) permitting use of children’s NBS samples for research without parental permission.ResultsThe response rate was 52 percent. Of parents surveyed, 68 percent would permit their infant’s NBS sample to be stored for at least some length of time. If permission is obtained, 69 percent of parents “strongly agreed” or “agreed” to permit use of the NBS sample for research. If permission is not obtained, only 14 percent of parents “strongly agreed” or “agreed.” There was no significant association between permitting use of NBS samples for research and parental gender, education, household income, number of children, or site of residence.ConclusionsThis is the first survey of Chinese parents regarding the use of NBS samples for different types of research, with results indicating that most parents would permit their infant’s sample to be stored and would support the use of NBS dried blood spots for research purposes.
Keywords Newborn screening  Dried blood spots  Storage  Research  Parents
Categories (categorize this paper)
DOI 10.1007/s11673-012-9368-9
 Save to my reading list
Follow the author(s)
My bibliography
Export citation
Find it on Scholar
Edit this record
Mark as duplicate
Revision history Request removal from index
Download options
PhilPapers Archive

Upload a copy of this paper     Check publisher's policy on self-archival     Papers currently archived: 15,974
External links
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library
References found in this work BETA
Ellen Wright Clayton (2010). Currents in Contemporary Ethics. Journal of Law, Medicine & Ethics 38 (3):697-700.

Add more references

Citations of this work BETA

Add more citations

Similar books and articles
Li En-Chang (2008). Bioethics in China. Bioethics 22 (8):448-454.
Aaron Rizzieri (2012). Stem Cell Research on Embryonic Persons Is Just. Journal of Bioethical Inquiry (Browse Results) 9 (2):195-203.

Monthly downloads

Added to index


Total downloads

11 ( #213,477 of 1,725,871 )

Recent downloads (6 months)

5 ( #134,308 of 1,725,871 )

How can I increase my downloads?

My notes
Sign in to use this feature

Start a new thread
There  are no threads in this forum
Nothing in this forum yet.