Defining the Subject of Consent in DNA Research

Journal of Medical Humanities 22 (1):41-53 (2001)
Abstract
The advent of population-specific genomic research has prompted calls for invention of informed consent protocols that would treat entire social groups as research subjects as well as endow such groups with authority as agents of consent. Critics of such an unconventional ethical norm of group consent fear the rhetorical effects of approaching social groups with offers to participate in dialogues about informed consent. Addressing a specific population as the collective subject of genomic research, on this logic, adds currency to the potentially dangerous public opinion that such a group is bound by genetic ties. The paper considers the problem of group and individual identity within the rhetorical dynamics of the discourse and politics of consent
Keywords Rhetoric  informed consent  genetics  African Burial Ground Project
Categories (categorize this paper)
Options
 Save to my reading list
Follow the author(s)
My bibliography
Export citation
Find it on Scholar
Edit this record
Mark as duplicate
Revision history Request removal from index
 
Download options
PhilPapers Archive


Upload a copy of this paper     Check publisher's policy on self-archival     Papers currently archived: 9,357
External links
  •   Try with proxy.
  • Through your library Configure
    References found in this work BETA

    No references found.

    Citations of this work BETA

    No citations found.

    Similar books and articles
    Gopal Sreenivasan (2007). Does Informed Consent to Research Require Comprehension? The Proceedings of the Twenty-First World Congress of Philosophy 1:85-93.
    Rosamond Rhodes (2005). Rethinking Research Ethics. American Journal of Bioethics 5 (1):7 – 28.
    Sven Ove Hansson (2006). Informed Consent Out of Context. Journal of Business Ethics 63 (2):149 - 154.
    Analytics

    Monthly downloads

    Sorry, there are not enough data points to plot this chart.

    Added to index

    2010-08-30

    Total downloads

    1 ( #306,128 of 1,088,400 )

    Recent downloads (6 months)

    1 ( #69,601 of 1,088,400 )

    How can I increase my downloads?

    My notes
    Sign in to use this feature


    Discussion
    Start a new thread
    Order:
    There  are no threads in this forum
    Nothing in this forum yet.