Defining the Subject of Consent in DNA Research

Journal of Medical Humanities 22 (1):41-53 (2001)
The advent of population-specific genomic research has prompted calls for invention of informed consent protocols that would treat entire social groups as research subjects as well as endow such groups with authority as agents of consent. Critics of such an unconventional ethical norm of group consent fear the rhetorical effects of approaching social groups with offers to participate in dialogues about informed consent. Addressing a specific population as the collective subject of genomic research, on this logic, adds currency to the potentially dangerous public opinion that such a group is bound by genetic ties. The paper considers the problem of group and individual identity within the rhetorical dynamics of the discourse and politics of consent
Keywords Rhetoric  informed consent  genetics  African Burial Ground Project
Categories (categorize this paper)
DOI 10.1023/A:1026686027418
 Save to my reading list
Follow the author(s)
My bibliography
Export citation
Find it on Scholar
Edit this record
Mark as duplicate
Revision history Request removal from index
Download options
PhilPapers Archive

Upload a copy of this paper     Check publisher's policy on self-archival     Papers currently archived: 16,667
External links
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library
References found in this work BETA

No references found.

Add more references

Citations of this work BETA

Add more citations

Similar books and articles
Gopal Sreenivasan (2007). Does Informed Consent to Research Require Comprehension? The Proceedings of the Twenty-First World Congress of Philosophy 1:85-93.
Rosamond Rhodes (2005). Rethinking Research Ethics. American Journal of Bioethics 5 (1):7 – 28.
Sven Ove Hansson (2006). Informed Consent Out of Context. Journal of Business Ethics 63 (2):149 - 154.

Monthly downloads

Added to index


Total downloads

10 ( #237,750 of 1,727,288 )

Recent downloads (6 months)

4 ( #166,848 of 1,727,288 )

How can I increase my downloads?

My notes
Sign in to use this feature

Start a new thread
There  are no threads in this forum
Nothing in this forum yet.