Graduate studies at Western
Journal of Medical Humanities 22 (1):41-53 (2001)
|Abstract||The advent of population-specific genomic research has prompted calls for invention of informed consent protocols that would treat entire social groups as research subjects as well as endow such groups with authority as agents of consent. Critics of such an unconventional ethical norm of group consent fear the rhetorical effects of approaching social groups with offers to participate in dialogues about informed consent. Addressing a specific population as the collective subject of genomic research, on this logic, adds currency to the potentially dangerous public opinion that such a group is bound by genetic ties. The paper considers the problem of group and individual identity within the rhetorical dynamics of the discourse and politics of consent|
|Keywords||Rhetoric informed consent genetics African Burial Ground Project|
|Categories||categorize this paper)|
|Through your library||Configure|
Similar books and articles
Oonagh Corrigan (ed.) (2009). The Limits of Consent: A Socio-Ethical Approach to Human Subject Research in Medicine. Oxford University Press.
Rachel E. Dew (2007). Informed Consent for Research in Borderline Personality Disorder. BMC Medical Ethics 8 (1):1-4.
Gopal Sreenivasan (2007). Does Informed Consent to Research Require Comprehension? The Proceedings of the Twenty-First World Congress of Philosophy 1:85-93.
Rosamond Rhodes (2005). Rethinking Research Ethics. American Journal of Bioethics 5 (1):7 – 28.
James R. P. Ogloff & Randy K. Otto (1991). Are Research Participants Truly Informed? Readability of Informed Consent Forms Used in Research. Ethics and Behavior 1 (4):239 – 252.
Atsushi Asai, Motoki Ohnishi, Etsuyo Nishigaki, Miho Sekimoto, Shunichi Fukuhara & Tsuguya Fukui (2002). Attitudes of the Japanese Public and Doctors Towards Use of Archived Information and Samples Without Informed Consent: Preliminary Findings Based on Focus Group Interviews. [REVIEW] BMC Medical Ethics 3 (1):1-10.
Martin Tolich (2009). The Principle of Caveat Emptor: Confidentiality and Informed Consent as Endemic Ethical Dilemmas in Focus Group Research. [REVIEW] Journal of Bioethical Inquiry 6 (1):99-108.
Michelle H. Biros (2007). Research Without Consent: Exception From and Waiver of Informed Consent in Resuscitation Research. Science and Engineering Ethics 13 (3):361-369.
K. S. Steinsbekk & B. Solberg (2011). Biobanks--When is Re-Consent Necessary? Public Health Ethics 4 (3):236-250.
Rogeer Hoedemaekers, Bert Gordijn & Martien Pijnenburg (2006). Does an Appeal to the Common Good Justify Individual Sacrifices for Genomic Research? Theoretical Medicine and Bioethics 27 (5):415-431.
Neil C. Manson (2007). Rethinking Informed Consent in Bioethics. Cambridge University Press.
M. Sheehan (2011). Can Broad Consent Be Informed Consent? Public Health Ethics 4 (3):226-235.
Judy Allen & Beverley Mcnamara (2011). Reconsidering the Value of Consent in Biobank Research. Bioethics 25 (3):155-166.
Franklin G. Miller & Alan Wertheimer (2011). The Fair Transaction Model of Informed Consent: An Alternative to Autonomous Authorization. Kennedy Institute of Ethics Journal 21 (3):201-218.
Sven Ove Hansson (2006). Informed Consent Out of Context. Journal of Business Ethics 63 (2):149 - 154.
Sorry, there are not enough data points to plot this chart.
Added to index2010-08-30
Total downloads1 ( #292,563 of 739,403 )
Recent downloads (6 months)1 ( #61,680 of 739,403 )
How can I increase my downloads?