Consenting to uncertainty: Challenges for informed consent to disease screening—a case study [Book Review]
Theoretical Medicine and Bioethics 29 (6):371-386 (2008)
|Abstract||This paper uses chronic beryllium disease as a case study to explore some of the challenges for decision-making and some of the problems for obtaining meaningful informed consent when the interpretation of screening results is complicated by their probabilistic nature and is clouded by empirical uncertainty. Although avoidance of further beryllium exposure might seem prudent for any individual whose test results suggest heightened disease risk, we will argue that such a clinical precautionary approach is likely to be a mistake. Instead, advice on the interpretation of screening results must focus not on risk per se, but on avoidable risk, and must be carefully tailored to the individual. These points are of importance for individual decision-making, for informed consent, and for occupational health.|
|Keywords||Informed consent Clinical uncertainty Environmental health Occupational health Occupational disease Disease screening Risk Risk control Beryllium disease Disease prevention BeLPT Beryllium lymphocyte proliferation test Beryllium sensitization Rational decision-making|
|Categories||categorize this paper)|
|Through your library||Configure|
Similar books and articles
Loretta M. Kopelman (1994). Informed Consent and Anonymous Tissue Samples: The Case of Hiv Seroprevalence Studies. Journal of Medicine and Philosophy 19 (6):525-552.
Daniel C. Wigley & Kristin Shrader-Frechette (1996). Environmental Justice: A Louisiana Case Study. [REVIEW] Journal of Agricultural and Environmental Ethics 9 (1):61-82.
Dennis John Mazur (1998). Medical Risk and the Right to an Informed Consent in Clinical Care and Clinical Research. American College of Physician Executives.
Stewart Justman (2012). Uninformed Consent: Mass Screening for Prostate Cancer. Bioethics 26 (3):143-148.
Marylène Dugas & Janice E. Graham (2011). Is Consent for Research Genuinely Informed? Using Decision Aid Tools to Obtain Informed Consent in the Global South. Journal of Global Ethics 7 (3):349-359.
Jukka Varelius (2009). Collective Informed Consent and Decision Power. Science and Engineering Ethics 15 (1):39-50.
Victoria Seavilleklein (2009). Challenging the Rhetoric of Choice in Prenatal Screening. Bioethics 23 (1):68-77.
Yvonne Lau & Chrystal Jaye (2009). The 'Obligation' to Screen and its Effect on Autonomy. Journal of Bioethical Inquiry 6 (4):495-505.
Deborah Bowman (2011). Informed Consent: A Primer for Clinical Practice. Cambridge University Press.
Matthew K. Wynia (2006). Routine Screening: Informed Consent, Stigma and the Waning of HIV Exceptionalism. American Journal of Bioethics 6 (4):5 – 8.
Added to index2009-01-28
Total downloads8 ( #131,747 of 722,929 )
Recent downloads (6 months)1 ( #61,087 of 722,929 )
How can I increase my downloads?