On the limits of parental proxy consent: Children's right to non-participation in non-therapeutic research [Book Review]
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Academic Ethics 1 (4):349-383 (2003)
This paper considers what are the appropriate limits of parental or guardian proxy consent for a child's participation in medical or social science research. Such proxy consent, it is proposed, is invalid in regards “non-therapeutic research.” The latter research may add to scientific knowledge and/or benefit others, but any benefit to the child research participant is but a coincidental theoretical possibility and not a primary objective. Research involving children, without intended and acceptable prospect of beneficial outcome to the individual participant, even if with negligible risk, does not meet the test for “best interests.” Proxy consent for children's involvement in research is justifiable only when given for and on behalf of the child in his or her best interest to enhance the child's well-being. Only in the latter case is the parental proxy consent situation analogous in regards key criteria to a competent individual consenting to research participation.
|Keywords||children's rights Convention on the Rights of the Child ethics in research non-therapeutic research proxy parental consent|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
Edward Wierenga (1983). Proxy Consent and Counterfactual Wishes. Journal of Medicine and Philosophy 8 (4):405-416.
Joanna Różyńska & Marek Czarkowski (2007). Emergency Research Without Consent Under Polish Law. Science and Engineering Ethics 13 (3):337-350.
Susan E. Zinner (1995). The Elusive Goal of Informed Consent by Adolescents. Theoretical Medicine and Bioethics 16 (4).
Garrath Williams (2012). Children as Means and Ends in Large-Scale Medical Research. Bioethics 26 (8):422-430.
Judy Allen & Beverley Mcnamara (2011). Reconsidering the Value of Consent in Biobank Research. Bioethics 25 (3):155-166.
Ferdinand Schoeman (1985). Parental Discretion and Children's Rights: Background and Implications for Medical Decision-Making. Journal of Medicine and Philosophy 10 (1):45-62.
Benedetto Vitiello (2008). Effectively Obtaining Informed Consent for Child and Adolescent Participation in Mental Health Research. Ethics and Behavior 18 (2 & 3):182 – 198.
Victoria A. Miller, William W. Reynolds & Robert M. Nelson (2008). Parent-Child Roles in Decision Making About Medical Research. Ethics and Behavior 18 (2 & 3):161 – 181.
T. M. Wilkinson (2001). Parental Consent and the Use of Dead Children's Bodies. Kennedy Institute of Ethics Journal 11 (4):337-358.
Donald Vandeveer (1981). Experimentation on Children and Proxy Consent. Journal of Medicine and Philosophy 6 (3):281-294.
Added to index2009-01-28
Total downloads21 ( #81,620 of 1,101,578 )
Recent downloads (6 months)1 ( #292,059 of 1,101,578 )
How can I increase my downloads?