David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Bioethical Inquiry 4 (3):217-228 (2007)
Epidemiologists and geneticists claim that genetics has an increasing role to play in public health policies and programs in the future. Within this perspective, genetic testing and screening are instrumental in avoiding the birth of children with serious, costly or untreatable disorders. This paper discusses genetic testing and screening within the framework of eugenics in the health care context of India. Observations are based on literature review and empirical research using qualitative methods. I distinguish ‘private’ from ‘public’ eugenics. I refer to the practice of prenatal diagnosis as an aspect of private eugenics, when the initiative to test comes from the pregnant woman herself. Public eugenics involves testing initiated by the state or medical profession through (more or less) obligatory testing programmes. To illustrate these concepts I discuss the management of thalassaemia, which I see as an example of private eugenics that is moving into the sphere of public eugenics. I then discuss the recently launched newborn screening programme as an example of public eugenics. I use Foucault’s concepts of power and governmentality to explore the thin line separating individual choice and overt or covert coercion, and between private and public eugenics. We can expect that the use of genetic testing technology will have serious and far-reaching implications for cultural perceptions regarding health and disease and women’s experience of pregnancy, besides creating new ethical dilemmas and new professional and parental responsibilities. Therefore, culturally sensitive health literacy programmes to empower the public and sensitise professionals need attention.
|Keywords||Bioethics Sociology Genetic screening Eugenics India|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Shelley Tremain (2006). Reproductive Freedom, Self-Regulation, and the Government of Impairment in Utero. Hypatia 21 (1):35-53.
Ann Kerr & Tom Shakespeare (2007). Genetic Politics: From Eugenics to Genome. Ethical Theory and Moral Practice 10 (4):409-418.
Citations of this work BETA
Margaret Sleeboom-Faulkner (2007). Predictive Genetic Testing in Asia: Social Science Perspectives on the Bioethics of Choice. [REVIEW] Journal of Bioethical Inquiry 4 (3):193-195.
Similar books and articles
Eva M. Neumann-Held (2001). Can It Be a 'Sin' to Understand Disease? On 'Genes' and 'Eugenics' and an 'Unconnected Connection'. Medicine, Health Care and Philosophy 4 (1):5 - 17.
Angus Dawson (ed.) (2011). Public Health Ethics: Key Concepts and Issues in Policy and Practice. Cambridge University Press.
Robert Sparrow (2011). Liberalism and Eugenics. Australasian Journal of Philosophy 89 (3):499 - 517.
Inmaculada de Melo-Martín (2006). Genetic Testing: The Appropriate Means for a Desired Goal? [REVIEW] Journal of Bioethical Inquiry 3 (3):167-177.
Neil I. Wiener & David L. Wiesenthal (1999). Ethical Questions in the Age of the New Eugenics. Science and Engineering Ethics 5 (3):383-394.
Claudia Wild (2008). Polymorphism-Screening: Genetic Testing for Predisposition—Guidance for Technology Assessment. [REVIEW] Poiesis and Praxis 5 (1):1-14.
George Munchus (1989). Testing as a Selection Tool: Another Old and Sticky Managerial Human Rights Issue. [REVIEW] Journal of Business Ethics 8 (10):817 - 820.
Ruth Chadwick, Henk ten Have, Jfrgen Husted, Mairi Levitt, Tony McGleenan, Darren Shickle & Urban Wiesing (1998). Genetic Screening and Ethics: European Perspectives. Journal of Medicine and Philosophy 23 (3):255 – 273.
Robert H. Blank (1982). Public Policy Implications of Human Genetic Technology: Genetic Screening. Journal of Medicine and Philosophy 7 (4):355-374.
Lainie Friedman Ross (2002). Predictive Genetic Testing for Conditions That Present in Childhood. Kennedy Institute of Ethics Journal 12 (3):225-244.
Added to index2009-01-28
Total downloads58 ( #76,167 of 1,911,741 )
Recent downloads (6 months)10 ( #61,423 of 1,911,741 )
How can I increase my downloads?