Graduate studies at Western
Theoretical Medicine and Bioethics 27 (5):415-431 (2006)
|Abstract||In genomic research the ideal standard of free, informed, prior, and explicit consent is believed to restrict important research studies. For certain types of genomic research other forms of consent are therefore proposed which are ethically justified by an appeal to the common good. This notion is often used in a general sense and this forms a weak basis for the use of weaker forms of consent. Here we examine how the notion of the common good can be related to individual health, health care, and genomic research and we use this analysis to propose more precise criteria to justify forms of consent which diverge from the ideal standard.|
|Keywords||Genomics genomic research informed consent public intersest common good|
|Categories||categorize this paper)|
|Through your library||Configure|
Similar books and articles
Asya Al-Riyami, Deepali Jaju, Sanjay Jaju & Henry J. Silverman (2011). The Adequacy of Informed Consent Forms in Genetic Research in Oman: A Pilot Study. Developing World Bioethics 11 (2):57-62.
Dave Wendler (2000). Informed Consent, Exploitation and Whether It is Possible to Conduct Human Subjects Research Without Either One. Bioethics 14 (4):310–339.
M. Sheehan (2011). Can Broad Consent Be Informed Consent? Public Health Ethics 4 (3):226-235.
Carl E. Schneider (2010). The Hydra. Hastings Center Report 40 (4):9-11.
Bette Jacobs, Jason Roffenbender, Jeff Collmann, Kate Cherry, LeManuel Lee Bitsói, Kim Bassett & Charles H. Evans (2010). Bridging the Divide Between Genomic Science and Indigenous Peoples. Journal of Law, Medicine and Ethics 38 (3):684-696.
C. Simon, L. A. Shinkunas, D. Brandt & J. K. Williams (2012). Individual Genetic and Genomic Research Results and the Tradition of Informed Consent: Exploring US Review Board Guidance. Journal of Medical Ethics 38 (7):417-422.
James R. P. Ogloff & Randy K. Otto (1991). Are Research Participants Truly Informed? Readability of Informed Consent Forms Used in Research. Ethics and Behavior 1 (4):239 – 252.
Rogeer Hoedemaekers, Bert Gordijn & Martien Pijnenburg (2007). Solidarity and Justice as Guiding Principles in Genomic Research. Bioethics 21 (6):342–350.
Gordon R. Mitchell (2001). Defining the Subject of Consent in DNA Research. Journal of Medical Humanities 22 (1):41-53.
Added to index2009-01-28
Total downloads4 ( #189,051 of 739,304 )
Recent downloads (6 months)0
How can I increase my downloads?