Large scale surveys for policy formation and research–a study in inconsistency

Theoretical Medicine and Bioethics 28 (3):205-220 (2007)
Abstract
In this paper we analyse the degree to which a distinction between social science and public health research and other non-research activities can account for differences between a number of large scale social surveys performed at the national and European level. The differences we will focus on are differences in how participation is elicited and how data are used for government, research and other purposes. We will argue that the research / non-research distinction does not account for the identified differences in recruitment or use and that there are no other convincing justifications. We argue that this entails that eliciting participation by coercion or manipulation becomes very difficult to justify.
Keywords research ethics
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    Citations of this work BETA
    James Wilson & David Hunter (2010). Research Exceptionalism. American Journal of Bioethics 10 (8):45-54.
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