The privacy of tutankhamen – utilising the genetic information in stored tissue Samples

Theoretical Medicine and Bioethics 22 (5):437-449 (2001)
Recent technical developments in genetictesting has led to a situation where the DNA inpreviously stored tissue samples can beextracted and used for genetic analysis. Thisraises the question of how to decide whether aspecific use of such samples should be allowed.Using the genetic testing of ancient DNA ingeneral, and the DNA of the pharaoh Tutankhamenin particular as examples this paper analysesthe question. It investigates whether ethicalframeworks based on proxy consent, culturalaffiliation, ownership, or the privacy rightsof the dead are appropriate and justifiable inthis context. The conclusion is that frameworksbased on proxy consent, cultural affiliation,and ownership are not very useful.
Keywords ancient DNA  cultural affiliation  genetic testing  proxy decision-making  tissue samples
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DOI 10.1023/A:1013010918460
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Jacob M. Appel (2012). Privacy Versus History. Cambridge Quarterly of Healthcare Ethics 21 (01):51-63.

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