David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Bioethical Inquiry 5 (2/3):193-207 (2008)
In recent decades, the intertwining ideas of self-determination and well-being have received tremendous support in bioethics. Discussions regarding self-determination, or autonomy, often focus on two dimensions—the capacity of the patient and the freedom from external coercion. The practice of obtaining informed consent, for example, has become a standard procedure in therapeutic and research medicine. On the surface, it appears that patients now have more opportunities to exercise their self-determination than ever. Nonetheless, discussions of patient autonomy in the bioethics literature, which focus on individual patients making particular decisions, neglect the social structure within which health-care decisions are made. Looking through the lens of disability and informed by the feminist conception of relational autonomy, this essay argues that the issue of autonomy is much more complex than the individualist model suggests. The social system and the ableist ideology impose various forms of pressure or oppressive power that can affect people’s ability to choose according to their value system. Even if such powers are not directly coercive, they influence potential parents’ decisions indirectly—they structure their alternatives in such a way that certain options are never considered as viable and other decisions must be made. This paper argues that, instead of only focusing on the individual act of decision-making, we need to pay attention to the social structure that frames people’s decision.
|Keywords||Disability Autonomy Genetics End-of-life care Ableism|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Vincent Menuz, Thierry Hurlimann & Béatrice Godard (2013). Is Human Enhancement Also a Personal Matter? Science and Engineering Ethics 19 (1):161-177.
Wendy Rogers, Catriona Mackenzie & Susan Dodds (2012). Why Bioethics Needs a Concept of Vulnerability. International Journal of Feminist Approaches to Bioethics 5 (2):11-38.
Jennifer Bell & Anita Ho (2011). Authenticity as a Necessary Condition for Voluntary Choice: A Case Study in Cancer Clinical Trial Participation. American Journal of Bioethics 11 (8):33-35.
Anita Ho (2011). Trusting Experts and Epistemic Humility in Disability. International Journal of Feminist Approaches to Bioethics 4 (2):102-123.
Ignaas Devisch (2011). Progress in Medicine: Autonomy, Oughtonomy and Nudging. Journal of Evaluation in Clinical Practice 17 (5):857-861.
Similar books and articles
Merle Spriggs (2005). Autonomy and Patients' Decisions. Lexington Books.
Lars Sandman & Christian Munthe (2009). Shared Decision-Making and Patient Autonomy. Theoretical Medicine and Bioethics 30 (4):289-310.
Douglas O. Stewart & Joseph P. DeMarco (2005). An Economic Theory of Patient Decision-Making. Journal of Bioethical Inquiry 2 (3):153-164.
Sheila McLean (2010). Autonomy, Consent and the Law. Routledge-Cavendish.
Sara Goering (2009). Postnatal Reproductive Autonomy: Promoting Relational Autonomy and Self-Trust in New Parents. Bioethics 23 (1):9-19.
N. Stoljar (2011). Informed Consent and Relational Conceptions of Autonomy. Journal of Medicine and Philosophy 36 (4):375-384.
Thomas May (2002). Bioethics in a Liberal Society: The Political Framework of Bioethics Decision Making. Johns Hopkins University Press.
Wim J. M. Dekkers (2001). Autonomy and Dependence: Chronic Physical Illness and Decision-Making Capacity. Medicine, Health Care and Philosophy 4 (2):185-192.
Rebecca Kukla (2005). Conscientious Autonomy: Displacing Decisions in Health Care. Hastings Center Report 35 (2):34-44.
Added to index2009-01-28
Total downloads30 ( #67,266 of 1,410,057 )
Recent downloads (6 months)5 ( #46,199 of 1,410,057 )
How can I increase my downloads?