Exploring the Ethics of Long-Term Research Engagement With Communities in Low- and Middle-Income Countries
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Public Health Ethics 5 (3):252-262 (2012)
Over the past few decades, there has been increasing attention focused on the ethics of health research, particularly in low- and middle-income countries. Despite the increasing focus on the literature addressing human protection, community engagement, appropriate consent procedures and ways to mitigate concerns around exploitation, there has been little discussion about how the duration of the research engagement may affect the ethical design and implementation of studies. In other words, what are the unique ethical challenges when researchers engage with host communities for longer periods (10 years or more), and what special considerations does this time commitment generate when applying ethical principles to these kinds of studies? This article begins to outline key areas of ethical concern that arise during long-term, sustained research activities with communities in low-resource settings. Through a review of the literature and consultations with experts in health systems, we identified the following key themes: fair benefits and long-term beneficence; community autonomy, consultation and consent; impacts on local health systems; economic impacts of research participation; ethical review processes; and institutional processes and oversight within research organizations. We hope that this preliminary exploration will stimulate further dialogue and help inform ethical guidance around long-term research engagements in the developing world
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Daniel W. Fitzgerald & Angela Wasunna (2005). Away From Exploitation and Towards Engagement: An Ethical Compass for Medical Researchers Working in Resource-Poor Countries. Journal of Law, Medicine and Ethics 33 (3):559-565.
Mohsin Raza (2005). Collaborative Healthcare Research: Some Ethical Considerations. Science and Engineering Ethics 11 (2):177-186.
Citations of this work BETA
Adnan A. Hyder, Abbas Rattani, Carleigh Krubiner, Abdulgafoor M. Bachani & Nhan T. Tran (2014). Ethical Review of Health Systems Research in Low- and Middle-Income Countries: A Conceptual Exploration. American Journal of Bioethics 14 (2):28-37.
Similar books and articles
Dorcas M. Kamuya, Vicki Marsh, Francis K. Kombe, P. Wenzel Geissler & Sassy C. Molyneux (2013). Engaging Communities to Strengthen Research Ethics in Low‐Income Settings: Selection and Perceptions of Members of a Network of Representatives in Coastal Kenya. Developing World Bioethics 13 (1):10-20.
Bridget Pratt & Bebe Loff (2013). A Framework to Link International Clinical Research to the Promotion of Justice in Global Health. Bioethics 27 (3):387-396.
V. M. Marsh, D. K. Kamuya, M. J. Parker & C. S. Molyneux (2011). Working with Concepts: The Role of Community in International Collaborative Biomedical Research. Public Health Ethics 4 (1):26-39.
Scott Mcintosh, Essie Sierra, Ann Dozier, Sergio Diaz, Zahira Quiñones, Aron Primack, Gary Chadwick & Deborah J. Ossip-klein (2008). Ethical Review Issues in Collaborative Research Between Us and Low – Middle Income Country Partners: A Case Example. Bioethics 22 (8):414-422.
Andrzej Górski (2006). The Responsible Conduct of Basic and Clinical Research. Science and Engineering Ethics 12 (1):3-4.
Sara Svensson & Sven Ove Hansson (2007). Protecting People in Research: A Comparison Between Biomedical and Traffic Research. [REVIEW] Science and Engineering Ethics 13 (1):99-115.
Charles Weijer & P. B. Miller, Protecting Communities in Pharmacogenetic and Pharmacogenomic Research.
Carel Ijsselmuiden, Debbie Marais, Douglas Wassenaar & Boitumelo Mokgatla-Moipolai (2012). Mapping African Ethical Review Committee Activity Onto Capacity Needs: The Marc Initiative and Hrweb's Interactive Database of Recs in Africa. Developing World Bioethics 12 (2):74-86.
Agomoni Ganguli Mitra (2013). Off‐Shoring Clinical Research: Exploitation and the Reciprocity Constraint. Developing World Bioethics 13 (3):111-118.
Tomi Tshikala, Bavon Mupenda, Pierre Dimany, Aime Malonga, Vicki Ilunga & Stuart Rennie (2012). Engaging with Research Ethics in Central Francophone Africa: Reflections on a Workshop About Ancillary Care. Philosophy, Ethics, and Humanities in Medicine 7 (1):1-7.
Segun Gbadegesin & David Wendler (2006). Protecting Communities in Health Research From Exploitation. Bioethics 20 (5):248-253.
Diane Scott-Jones (1994). Ethical Issues in Reporting and Referring in Research with Low-Income Minority Children. Ethics and Behavior 4 (2):97 – 108.
J. S. Gavora & E. E. Lister (1989). Practical and Ethical Considerations of Agricultural Research Assistance for the Third World. Journal of Agricultural and Environmental Ethics 2 (4):307-322.
Robert C. Hughes (2014). Justifying Community Benefit Requirements in International Research. Bioethics 28 (8):397-404.
Added to index2012-07-12
Total downloads7 ( #185,130 of 1,100,829 )
Recent downloads (6 months)4 ( #80,800 of 1,100,829 )
How can I increase my downloads?