David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Theoretical Medicine and Bioethics 22 (5):403-414 (2001)
Rights, autonomy, privacy, and confidentialityare concepts commonly used in discussionsconcerning genetic information. When theseconcepts are thought of as denoting absolutenorms and values which cannot be overriden byother considerations, conflicts among themnaturally occur.In this paper, these and related notions areexamined in terms of the duties and obligationsmedical professionals and their clients canhave regarding genetic knowledge. It issuggested that while the prevailing idea ofautonomy is unhelpful in the analysis of theseduties, and the ensuing rights, an alternativereading of personal self-determination canprovide a firmer basis for ethical guidelinesand policies in this field.
|Keywords||autonomy confidentiality duties ethics genes information interests knowledge law privacy rights|
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Citations of this work BETA
Elin Palm (2009). Privacy Expectations at Work—What is Reasonable and Why? Ethical Theory and Moral Practice 12 (2):201 - 215.
Ana Smith Iltis (2005). Timing Invitations to Participate in Clinical Research: Preliminary Versus Informed Consent. Journal of Medicine and Philosophy 30 (1):89 – 106.
Eli Feiring (2009). Reassessing Insurers' Access to Genetic Information: Genetic Privacy, Ignorance, and Injustice. Bioethics 23 (5):300-310.
Sarah Teetzel (2007). Respecting Privacy in Detecting Illegitimate Enhancements in Athletes. Sport, Ethics and Philosophy 1 (2):159 – 170.
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