Genetic information, rights, and autonomy

Theoretical Medicine and Bioethics 22 (5):403-414 (2001)
Rights, autonomy, privacy, and confidentialityare concepts commonly used in discussionsconcerning genetic information. When theseconcepts are thought of as denoting absolutenorms and values which cannot be overriden byother considerations, conflicts among themnaturally occur.In this paper, these and related notions areexamined in terms of the duties and obligationsmedical professionals and their clients canhave regarding genetic knowledge. It issuggested that while the prevailing idea ofautonomy is unhelpful in the analysis of theseduties, and the ensuing rights, an alternativereading of personal self-determination canprovide a firmer basis for ethical guidelinesand policies in this field.
Keywords autonomy  confidentiality  duties  ethics  genes  information  interests  knowledge  law  privacy  rights
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DOI 10.1023/A:1013097617552
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Elin Palm (2009). Privacy Expectations at Work—What is Reasonable and Why? Ethical Theory and Moral Practice 12 (2):201 - 215.

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