David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Theoretical Medicine and Bioethics 22 (5):403-414 (2001)
Rights, autonomy, privacy, and confidentialityare concepts commonly used in discussionsconcerning genetic information. When theseconcepts are thought of as denoting absolutenorms and values which cannot be overriden byother considerations, conflicts among themnaturally occur.In this paper, these and related notions areexamined in terms of the duties and obligationsmedical professionals and their clients canhave regarding genetic knowledge. It issuggested that while the prevailing idea ofautonomy is unhelpful in the analysis of theseduties, and the ensuing rights, an alternativereading of personal self-determination canprovide a firmer basis for ethical guidelinesand policies in this field.
|Keywords||autonomy confidentiality duties ethics genes information interests knowledge law privacy rights|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Elin Palm (2009). Privacy Expectations at Work—What is Reasonable and Why? Ethical Theory and Moral Practice 12 (2):201 - 215.
Eli Feiring (2009). Reassessing Insurers' Access to Genetic Information: Genetic Privacy, Ignorance, and Injustice. Bioethics 23 (5):300-310.
Sarah Teetzel (2007). Respecting Privacy in Detecting Illegitimate Enhancements in Athletes. Sport, Ethics and Philosophy 1 (2):159 – 170.
Similar books and articles
Neil C. Manson (2006). What is Genetic Information, and Why is It Significant? A Contextual, Contrastive, Approach. Journal of Applied Philosophy 23 (1):1–16.
V. Launis (2000). The Use of Genetic Test Information in Insurance: The Argument From Indistinguishability Reconsidered. Science and Engineering Ethics 6 (3):299-310.
Ruth Hannah Wilkinson (2010). Genetic Information: Important but Not “Exceptional”. [REVIEW] Identity in the Information Society 3 (3):457-472.
David L. Wiesenthal & Neil I. Wiener (1996). Privacy and the Human Genome Project. Ethics and Behavior 6 (3):189 – 202.
Rosamond Rhodes (1998). Genetic Links, Family Ties, and Social Bonds: Rights and Responsibilities in the Face of Genetic Knowledge. Journal of Medicine and Philosophy 23 (1):10 – 30.
G. T. Laurie (2002). Genetic Privacy: A Challenge to Medico-Legal Norms. Cambridge University Press.
Rosamond Rhodes (2000). Autonomy, Respect, and Genetic Information Policy: A Reply to Tuija Takala and Matti Häyry. Journal of Medicine and Philosophy 25 (1):114 – 120.
Sarah Chan & Muireann Quigley (2007). Frozen Embryos, Genetic Information and Reproductive Rights. Bioethics 21 (8):439–448.
Richard A. Spinello (2004). Property Rights in Genetic Information. Ethics and Information Technology 6 (1):29-42.
Ludvig Beckman (2004). Are Genetic Self-Tests Dangerous? Assessing the Commercialization of Genetic Testing in Terms of Personal Autonomy. Theoretical Medicine and Bioethics 25 (5-6):387-398.
Added to index2009-01-28
Total downloads22 ( #77,960 of 1,101,088 )
Recent downloads (6 months)3 ( #116,335 of 1,101,088 )
How can I increase my downloads?