David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jonathan Jenkins Ichikawa
Jack Alan Reynolds
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Journal of Law, Medicine & Ethics 38 (2):251-256 (2010)
Governance models for the oversight of human embryonic stem cell research have been proposed which mirror in large part familiar oversight mechanisms for research with human subjects and non-human animals. While such models are in principle readily endorsable, there are a set of concerns related to their implementation — such as ensuring that an elaborated informed consent process and conducting long-term monitoring of research subjects are tenable — which suggest areas where gathering data may facilitate more appropriate oversight. In addition, it is unclear whether a new governance model based at individual institutions are sufficient to address the ethical issues inherent to this research. Regardless, some of the concerns that have arisen in considering the appropriate governance of stem cell research, particularly the important translational pathway of innovation in contrast to staged research, transparency and publication, and social justice, may be useful in science and translational research more broadly
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References found in this work BETA
Jeremy Sugarman, Nancy E. Kass, Steven N. Goodman, Patricia Perentesis, Praveen Fernandes & Ruth R. Faden (forthcoming). What Patients Say About Medical Research. IRB: Ethics & Human Research.
Jeremy Sugarman, Douglas C. McCrory, Donald Powell, Alex Krasny, Betsy Adams, Eric Ball & Cynthia Cassell (1999). Empirical Research on Informed Consent: An Annotated Bibliography. Hastings Center Report 29 (1):1-42.
Citations of this work BETA
John A. Robertson (2010). Embryo Stem Cell Research: Ten Years of Controversy. Journal of Law, Medicine & Ethics 38 (2):191-203.
John A. Robertson (2010). Introduction. Journal of Law, Medicine & Ethics 38 (2):175-190.
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