Self-Critical Federal Science? The Ethics Experiment within the U.S. Human Genome Project

Social Philosophy and Policy 13 (02):63- (1996)
On October 1, 1988, thirty-five years after co-discovering the structure of the DNA molecule, Dr. James Watson launched an unprecedented experiment in American science policy. In response to a reporter's question at a press conference, he unilaterally set aside 3 to 5 percent of the budget of the newly launched Human Genome Project to support studies of the ethical, legal, and social implications of new advances in human genetics. The Human Genome Project , by providing geneticists with the molecular maps of the human chromosomes that they use to identify specific human genes, will speed the proliferation of a class of DNA-based diagnostic and risk-assessment tests that already create professional ethical and health-policy challenges for clinicians. “The problems are with us now, independent of the genome program, but they will be associated with it,” Watson said. “We should devote real money to discussing these issues.” By 1994, the “ELSI program” had spent almost $20 million in pursuit of its mission, and gained both praise and criticism for its accomplishments
Keywords No keywords specified (fix it)
Categories (categorize this paper)
DOI 10.1017/S0265052500003460
 Save to my reading list
Follow the author(s)
My bibliography
Export citation
Find it on Scholar
Edit this record
Mark as duplicate
Revision history Request removal from index
Download options
PhilPapers Archive

Upload a copy of this paper     Check publisher's policy on self-archival     Papers currently archived: 16,667
External links
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
Through your library
References found in this work BETA

No references found.

Add more references

Citations of this work BETA

Add more citations

Similar books and articles
Alex Rosenberg (1994). Subversive Reflections on the Human Genome Project. PSA: Proceedings of the Biennial Meeting of the Philosophy of Science Association 1994:329 - 335.
Raymond Spier (1998). The Human Genome Project Under the Microscope. Science and Engineering Ethics 4 (2):131-134.
Patricia S. Greenspan (1993). Free Will and the Genome Project. Philosophy and Public Affairs 22 (1):31-43.
Philip Kitcher (1994). Who's Afraid of the Human Genome Project? PSA: Proceedings of the Biennial Meeting of the Philosophy of Science Association 1994:313 - 321.

Monthly downloads

Added to index


Total downloads

9 ( #254,415 of 1,726,249 )

Recent downloads (6 months)

1 ( #369,877 of 1,726,249 )

How can I increase my downloads?

My notes
Sign in to use this feature

Start a new thread
There  are no threads in this forum
Nothing in this forum yet.