Influences upon willingness to participate in schizophrenia research: An analysis of narrative data from 63 people with schizophrenia
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Ethics and Behavior 13 (3):279 – 302 (2003)
Schizophrenia affects more than 1% of the world's population, causing great personal suffering and socioeconomic burden. These costs associated with schizophrenia necessitate inquiry into the causes and treatment of the illness but generate ethical challenges related to the specific nature and deficits of the illness itself. In this article, we present a systematic analysis of narrative data from 63 people living with the illness of schizophrenia collected through semistructured interviews about their attitudes, beliefs, and experiences related to psychiatric research. In the comments of these individuals, half of whom had had prior personal experience in research protocols, we identified factors influencing openness toward research involvement as well as deterrents that appear to lessen interest in participation. Clear response pattern differences emerged between those with prior research experience and those without such experience. In the discussion, we explore these key findings and outline the implications for safeguards in mental illness research.
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Anne Townsend & Susan M. Cox (2013). Accessing Health Services Through the Back Door: A Qualitative Interview Study Investigating Reasons Why People Participate in Health Research in Canada. [REVIEW] BMC Medical Ethics 14 (1):40.
Similar books and articles
Murray Alpert & Burt Angrist (2003). The Ketamine Model for Schizophrenia. Behavioral and Brain Sciences 26 (1):82-83.
Jason Scott Robert (2000). Schizophrenia Epigenesis? Theoretical Medicine and Bioethics 21 (2):191-215.
J. P. Ginsberg (2003). Setting Domain Boundaries for Convergence of Biological and Psychological Perspectives on Cognitive Coordination in Schizophrenia. Behavioral and Brain Sciences 26 (1):88-89.
Man Cheung Chung, Bill Fulford & George Graham (eds.) (2006). Reconceiving Schizophrenia. OUP Oxford.
Laura A. Flashman & Robert M. Roth (2004). Neural Correlates of Unawareness of Illness in Psychosis. In Xavier F. Amador & Anthony S. David (eds.), Insight and Psychosis: Awareness of Illness in Schizophrenia and Related Disorders. Oxford University Press. 157-176.
Steven M. Silverstein & William A. Phillips (2004). Distinguishing Schizophrenia From the Mechanisms Underlying Hallucinations. Behavioral and Brain Sciences 27 (6):805-806.
Alice Medalia & Rosa W. Lim (2004). Self-Awareness of Cognitive Functioning in Schizophrenia. Schizophrenia Research 71 (2):331-338.
Louis A. Sass & Peter J. Uhlhaas (2003). Phenomenology, Context, and Self-Experience in Schizophrenia. Behavioral and Brain Sciences 26 (1):104-105.
Jeanette Hewitt (2010). Schizophrenia, Mental Capacity, and Rational Suicide. Theoretical Medicine and Bioethics 31 (1):63-77.
Riadh T. Abed & Mohammed J. Abbas (2011). A Reformulation of the Social Brain Theory for Schizophrenia The Case for Out-Group Intolerance. Perspectives in Biology and Medicine 54 (2):132-151.
Added to index2009-01-28
Total downloads6 ( #207,849 of 1,102,446 )
Recent downloads (6 months)1 ( #298,159 of 1,102,446 )
How can I increase my downloads?