Quality-of-life considerations in substitute decision-making for severely disabled neonates: The problem of developing awareness
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Theoretical Medicine and Bioethics 30 (5):351-366 (2009)
Substitute decision-makers for severely disabled neonates who can be kept alive but who will require constant medical interventions and will die at the latest in their teens are faced with a difficult decision when trying to decide whether to keep the infant alive. By and large, the primary focus of their decision-making centers on what is in the best interests of the newborn. The best-interests criterion, in turn, is importantly conditioned by quality-of-life considerations. However, the concept of quality of life is logically and ethically different for patients with a developing as opposed to a developed awareness. Unfortunately, this difference is ignored by current quality-of-life considerations, there are no quality-of-life measures that take this difference into account, and decision-making proceeds entirely without acknowledging this fact. This note outlines why this is a problem and why there is a need for a new set of tools that incorporates this distinction if the substitute decision-makers are to apply the best-interest criterion in a meaningful way.
|Keywords||Neonates Developing awareness Quality of life Substitute decision-making|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Nuel Belnap & Mitchell Green (1994). Indeterminism and the Thin Red Line. Philosophical Perspectives 8:365 - 388.
John Broome (2004). Weighing Lives. Oxford University Press.
K. C. Calman (1984). Quality of Life in Cancer Patients--An Hypothesis. Journal of Medical Ethics 10 (3):124-127.
Gerald M. Edelman & Giulio Tononi (2000). A Universe of Consciousness: How Matter Becomes Imagination. Basic Books.
Richard Gaskin (1995). The Sea Battle and the Master Argument: Aristotle and Diodorus Cronus on the Metaphysics of the Future. W. De Gruyter.
Citations of this work BETA
No citations found.
Similar books and articles
Robert Keith Shaw, Michael A. Peters & James D. Marshall (1986). The Development and Trials of a Decision-Making Model. Evaluation Review, 10 (1):5-27.
G. Radick (2001). A Critique of Kitcher on Eugenic Reasoning. Studies in History and Philosophy of Science Part C 32 (4):741-751.
David Nantais & Mark Kuczewski (2004). Quality of Life: The Contested Rhetoric of Resource Allocation and End-of-Life Decision Making. Journal of Medicine and Philosophy 29 (6):651 – 664.
Baruch A. Brody (1988). Life and Death Decision Making. Oxford University Press.
Gretchen B. Chapman & Frank A. Sonnenberg (eds.) (2000). Decision Making in Health Care: Theory, Psychology, and Applications. Cambridge University Press.
Helga Kuhse (1987). The Sanctity-of-Life Doctrine in Medicine: A Critique. Oxford University Press.
Arthur R. Derse (1999). Making Decisions About Life-Sustaining Medical Treatment in Patients with Dementia. Theoretical Medicine and Bioethics 20 (1):55-67.
D. Micah Hester (2007). Interests and Neonates: There is More to the Story Than We Explicitly Acknowledge. Theoretical Medicine and Bioethics 28 (5):357-372.
Matti Häyry (1991). Measuring the Quality of Life: Why, How and What? Theoretical Medicine and Bioethics 12 (2).
Richard J. McKenna (1996). Explaining Amoral Decision Making: An External View of a Human Disaster. [REVIEW] Journal of Business Ethics 15 (6):681 - 694.
Added to index2009-11-11
Total downloads19 ( #135,870 of 1,699,807 )
Recent downloads (6 months)3 ( #206,271 of 1,699,807 )
How can I increase my downloads?