Forms of benefit sharing in global health research undertaken in resource poor settings: a qualitative study of stakeholders' views in Kenya
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Philosophy, Ethics, and Humanities in Medicine 7 (1):1-8 (2012)
BackgroundIncrease in global health research undertaken in resource poor settings in the last decade though a positive development has raised ethical concerns relating to potential for exploitation. Some of the suggested strategies to address these concerns include calls for providing universal standards of care, reasonable availability of proven interventions and more recently, promoting the overall social value of research especially in clinical research. Promoting the social value of research has been closely associated with providing fair benefits to various stakeholders involved in research. The debate over what constitutes fair benefits; whether those that addresses micro level issues of justice or those focusing on the key determinants of health at the macro level has continued. This debate has however not benefited from empirical work on what stakeholders consider fair benefits. This study explores practical experiences of stakeholders involved in global health research in Kenya, over what benefits are fair within a developing world context.Methods and resultsWe conducted in-depth interviews with key informants drawn from within the broader health research system in Kenya including researchers from the mainstream health research institutions, networks and universities, teaching hospitals, policy makers, institutional review boards, civil society organisations and community representative groups.The range of benefits articulated by stakeholders addresses both micro and macro level concerns for justice by for instance, seeking to engage with interests of those facilitating research, and the broader systemic issues that make resource poor settings vulnerable to exploitation. We interpret these views to suggest a need for global health research to engage with current crises that face people in these settings as well as the broader systemic issues that produce them.ConclusionGlobal health research should provide benefits that address both the micro and macro level issues of justice in order to forestall exploitation. Embracing the two is however challenging in terms of how the various competing interests/needs should be balanced ethically, especially in the absence of structures to guide the process. This challenge should point to the need for greater dialogue to facilitate value clarification among stakeholders
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Alex John London & Kevin J. S. Zollman (2010). Research at the Auction Block: Problems for the Fair Benefits Approach to International Research. Hastings Center Report 40 (4):34-45.
Thomas W. Pogge (2005). Human Rights and Global Health: A Research Program. Metaphilosophy 36 (1‐2):182-209.
A. Wertheimer & F. G. Miller (2008). Payment for Research Participation: A Coercive Offer? Journal of Medical Ethics 34 (5):389-392.
Angela Ballantyne (2008). 'Fair Benefits' Accounts of Exploitation Require a Normative Principle of Fairness: Response to Gbadegesin and Wendler, and Emanuel Et Al. Bioethics 22 (4):239–244.
S. R. Benatar & P. A. Singer (2010). Responsibilities in International Research: A New Look Revisited. Journal of Medical Ethics 36 (4):194-197.
Citations of this work BETA
Sassy Molyneux, Stephen Mulupi, Lairumbi Mbaabu & Vicki Marsh (2012). Benefits and Payments for Research Participants: Experiences and Views From a Research Centre on the Kenyan Coast. [REVIEW] BMC Medical Ethics 13 (1):13-.
Bege Dauda & Kris Dierickx (2013). Benefit Sharing: An Exploration on the Contextual Discourse of a Changing Concept. [REVIEW] BMC Medical Ethics 14 (1):36.
Annalee Yassi, Jaime Breilh, Shafik Dharamsi, Karen Lockhart & Jerry M. Spiegel (2013). The Ethics of Ethics Reviews in Global Health Research: Case Studies Applying a New Paradigm. [REVIEW] Journal of Academic Ethics 11 (2):83-101.
Olga Zvonareva, Nora Engel, Eleanor Ross, Ron Berghmans, Ames Dhai & Anja Krumeich (2015). Engaging Diverse Social and Cultural Worlds: Perspectives on Benefits in International Clinical Research From South African Communities. Developing World Bioethics 15 (1):8-17.
Lawrence Chew Loh, Sae Rom Chae, Jennifer E. Heckman & Daniel S. Rhee (2015). Ethical Considerations of Physician Career Involvement in Global Health Work: A Framework. Journal of Bioethical Inquiry 12 (1):129-136.
Similar books and articles
Patricia A. Marshall (2005). Human Rights,Cultural Pluralism, and International Health Research. Theoretical Medicine and Bioethics 26 (6):529-557.
Bridget Pratt & Bebe Loff (2013). Linking International Research to Global Health Equity: The Limited Contribution of Bioethics. Bioethics 27 (4):208-214.
Doris Schroeder & Eugenijus Gefenas (2011). Realizing Benefit Sharing – the Case of Post-Study Obligations. Bioethics 26 (6):305-314.
Holly A. Taylor & Maria W. Merritt (2012). Provision of Community-Wide Benefits in Public Health Intervention Research: The Experience of Investigators Conducting Research in the Community Setting in South Asia. Developing World Bioethics 12 (3):157-163.
Rachel Vreeman, Eunice Kamaara, Allan Kamanda, David Ayuku, Winstone Nyandiko, Lukoye Atwoli, Samuel Ayaya, Peter Gisore, Michael Scanlon & Paula Braitstein (2012). A Qualitative Study Using Traditional Community Assemblies to Investigate Community Perspectives on Informed Consent and Research Participation in Western Kenya. BMC Medical Ethics 13 (1):23-.
Bridget Pratt & Bebe Loff (2013). A Framework to Link International Clinical Research to the Promotion of Justice in Global Health. Bioethics 27 (3):387-396.
Meri Koivusalo (2010). Common Health Policy Interests and the Shaping of Global Pharmaceutical Policies. Ethics and International Affairs 24 (4):395-414.
Vicki M. Marsh, Dorcas M. Kamuya, Albert M. Mlamba, Thomas N. Williams & Sassy S. Molyneux (2012). Benefits and Payments for Research Participants: Experiences and Views From a Research Centre on the Kenyan Coast. BMC Medical Ethics (1):13-.
Neema Sofaer & Nir Eyal (2010). The Diverse Ethics of Translational Research. American Journal of Bioethics 10 (8):19-30.
Segun Gbadegesin & David Wendler (2006). Protecting Communities in Health Research From Exploitation. Bioethics 20 (5):248-253.
A. A. Hyder, C. B. Krubiner, G. Bloom & A. Bhuiya (2012). Exploring the Ethics of Long-Term Research Engagement With Communities in Low- and Middle-Income Countries. Public Health Ethics 5 (3):252-262.
Christian Simon & Maghboeba Mosavel (2010). Exploratory Health Disparities Research: The Need to Provide a Tangible Benefit to Vulnerable Respondents. Ethics and Behavior 20 (1):1-9.
Carel Ijsselmuiden, Debbie Marais, Douglas Wassenaar & Boitumelo Mokgatla-Moipolai (2012). Mapping African Ethical Review Committee Activity Onto Capacity Needs: The Marc Initiative and Hrweb's Interactive Database of Recs in Africa. Developing World Bioethics 12 (2):74-86.
Bridget Pratt & Bebe Loff (2011). Justice in International Clinical Research. Developing World Bioethics 11 (2):75-81.
Added to index2012-01-18
Total downloads32 ( #124,997 of 1,907,077 )
Recent downloads (6 months)11 ( #60,066 of 1,907,077 )
How can I increase my downloads?