Is There a Duty to Share? Ethics of Sharing Research Data in the Context of Public Health Emergencies
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Public Health Ethics 4 (1):4-11 (2011)
Making research data readily accessible during a public health emergency can have profound effects on our response capabilities. The moral milieu of this data sharing has not yet been adequately explored. This article explores the foundation and nature of a duty, if any, that researchers have to share data, specifically in the context of public health emergencies. There are three notable reasons that stand in opposition to a duty to share one’s data, relating to: (i) data property and ownership, (ii) just distribution of benefits and burdens and (iii) the contemporary ethos of science. We argue each reason can be successfully met with corresponding rationale in favour of data sharing. Further support for data sharing has been echoed in policies of health agencies, funding bodies and academic institutions; in documents on the ethical conduct of biomedical research; and in discussions on the nature of public health. From this, we ascertain that sharing data is the morally sound default position. This article then highlights the key roles reciprocity and solidarity play in supporting the practice of data sharing. We conclude with recommendations to regard public health research data as a common-pool resource in order to build a framework for stable data sharing management
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Sarah Jl Edwards (2013). Ethics of Clinical Science in a Public Health Emergency: Drug Discovery at the Bedside. American Journal of Bioethics 13 (9):3-14.
Cristian Timmermann (2014). Sharing in or Benefiting From Scientific Advancement? Science and Engineering Ethics 20 (1):111-133.
Maxwell J. Smith & Ross E. G. Upshur (2015). Ebola and Learning Lessons From Moral Failures: Who Cares About Ethics? Public Health Ethics 8 (3):305-318.
Similar books and articles
Joan E. Sieber (1991). Openness in the Social Sciences: Sharing Data. Ethics and Behavior 1 (2):69 – 86.
Joe Giffels (2010). Sharing Data is a Shared Responsibility. Science and Engineering Ethics 16 (4):801-803.
A. Dawson & M. Verweij (2011). Could Do Better: Research Data Sharing and Public Health. Public Health Ethics 4 (1):1-3.
Mark A. Pitt & Yun Tang (2013). What Should Be the Data Sharing Policy of Cognitive Science? Topics in Cognitive Science 5 (1):214-221.
Louise Bezuidenhout (2013). Data Sharing and Dual-Use Issues. Science and Engineering Ethics 19 (1):83-92.
Michael J. Zigmond (2010). The Essential Nature of Sharing in Science. Science and Engineering Ethics 16 (4):783-799.
Beth Fischer & Michael Zigmond (2010). The Essential Nature of Sharing in Science. Science and Engineering Ethics 16 (4):783-799.
Joan E. Sieber & Bruce E. Trumbo (1995). (Not) Giving Credit Where Credit is Due: Citation of Data Sets. Science and Engineering Ethics 1 (1):11-20.
Joe Giffels, Sara Vollmer & Stephanie Bird (2010). Editors' Overview: Topics in the Responsible Management of Research Data. Science and Engineering Ethics 16 (4):631-637.
Doris Schroeder & Eugenijus Gefenas (2011). Realizing Benefit Sharing – the Case of Post-Study Obligations. Bioethics 26 (6):305-314.
T. M. Krahn & A. Fenton (2012). Funding Priorities: Autism and the Need for a More Balanced Research Agenda in Canada. Public Health Ethics 5 (3):296-310.
Matthew K. Wynia (2007). Ethics and Public Health Emergencies: Encouraging Responsibility. American Journal of Bioethics 7 (4):1 – 4.
Julia Frigoli, Anne M. Etgen & Michael Kuhar (2010). Developing and Communicating Responsible Data Management Policies to Trainees and Colleagues. Science and Engineering Ethics 16 (4):753-762.
Gualtiero Piccinini (2009). First-Person Data, Publicity and Self-Measurement. Philosophers' Imprint 9 (9):1-16.
S. Pomfret, Q. A. Karim & S. R. Benatar (2010). Inclusion of Adolescent Women in Microbicide Trials: A Public Health Imperative! Public Health Ethics 3 (1):39-50.
Added to index2011-02-19
Total downloads22 ( #172,621 of 1,906,979 )
Recent downloads (6 months)2 ( #345,326 of 1,906,979 )
How can I increase my downloads?