David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jonathan Jenkins Ichikawa
Jack Alan Reynolds
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Health Care Analysis 19 (3):259-268 (2011)
This paper argues that the demands of respect for autonomy in the context of biobanking are fewer and more limited than is often supposed. It discusses the difficulties of agreeing a concept of autonomy from which duties can easily be derived, and suggests an alternative way to determine what respect for autonomy in a biobanking context requires. These requirements, it argues, are limited to provision of adequate information and non-coercion. While neither of these is in itself negligible, this is a smaller set of demands than is often suggested. In particular, it is argued here that securing ‘one time consent’ is consistent with respect for autonomy. Finally, the paper notes that while the demands of respect for autonomy may be less than some suppose, respecting autonomy is not the only way in which biobanks and their users may have moral duties to donors
|Keywords||Autonomy Biobanking Consent Moral duties|
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References found in this work BETA
Harry G. Frankfurt (1971). Freedom of the Will and the Concept of a Person. Journal of Philosophy 68 (1):5-20.
Gerald Dworkin (1988). The Theory and Practice of Autonomy. Cambridge University Press.
Thomas E. Hill (1991). Autonomy and Self-Respect. Cambridge University Press.
Michael Steinmann (2009). Under the Pretence of Autonomy: Contradictions in the Guidelines for Human Tissue Donation. [REVIEW] Medicine, Health Care and Philosophy 12 (3):281-289.
Iain Law (2003). Autonomy, Sanity and Moral Theory. Res Publica 9 (1):39-56.
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