David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Journal of Law, Medicine and Ethics 37 (1):93-103 (2009)
Can researchers, interested in novel ways to assess HIV seroprevalence among populations which are otherwise hidden, collect condoms that have been discarded on the ground in a public sex environment and test them for HIV? Researchers, who use other types of abandoned samples, such as discarded syringes, hair or saliva samples, or excess biological samples, confront similar issues. This review evaluates whether such abandoned tissues can be studied based on U.S. Code of Federal Regulations and literature on related issues including: research involving banked tissues, blinded seroprevalence studies, and property claims that individuals might make on the samples.It also addresses broader questions of potential for stigma and risk to individuals and communities. The article concludes that the research should be permitted legally because either it does not involve human subjects, or it satisfies the requirements for waiver of consent; and that the research should also be permitted because the ethical principal of avoiding harm to individuals is fully satisfied based on a careful reading of the lessons of the tissue bank, biological property rights, and blinded seroprevalence study debates, as well as a consideration of other potential harms that might be involved
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References found in this work BETA
Ronald Bayer, L. H. Lumey & Lourdes Wan (1991). The American, British and Dutch Responses to Unlinked Anonymous HIV Seroprevalence Studies: An International Comparison. Journal of Law, Medicine and Ethics 19 (3-4):222-230.
M. Clayton (2000). Confessions of a Medicine Man: An Essay in Popular Philosophy: Alfred I Tauber, Cambridge, Mass, The MIT Press, 1999, 159 + Xviii Pages, Pound17.50 (Hb). [REVIEW] Journal of Medical Ethics 26 (6):482-a-483.
D. G. Jones (2003). Stored Human Tissue: An Ethical Perspective on the Fate of Anonymous, Archival Material. Journal of Medical Ethics 29 (6):343-347.
Jean McHale (2000). Waste, Ownership and Bodily Products. Health Care Analysis 8 (2):123-135.
David Wendler (2002). What Research with Stored Samples Teaches Us About Research with Human Subjects. Bioethics 16 (1):33–54.
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