David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
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Kennedy Institute of Ethics Journal 15 (4):371-383 (2005)
: Advances in medical technology now permit children who need ventilator assistance to live at home rather than in hospitals or institutions. What does this ventilator-dependent life mean to children and their families? The impetus for this essay comes from a study of the moral experience of 12 Canadian families—parents, ventilator-dependent child, and well siblings. These families express great love for their children, take on enormous responsibilities for care, live with uncertainty, and attempt to create "normal" home environments. Nevertheless, they experience social isolation, sometimes even from their extended families and health care providers. Their lives are constrained in many ways. The challenges faced by parents of technology-dependent children raise questions of justice within society and within families
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Bjørn Hofmann (2013). Ethical Challenges with Welfare Technology: A Review of the Literature. [REVIEW] Science and Engineering Ethics 19 (2):389-406.
B. Cox-White & S. F. Boxall (2008). Redefining Disability: Maleficent, Unjust and Inconsistent. Journal of Medicine and Philosophy 33 (6):558-576.
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