David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Kennedy Institute of Ethics Journal 15 (4):371-383 (2005)
: Advances in medical technology now permit children who need ventilator assistance to live at home rather than in hospitals or institutions. What does this ventilator-dependent life mean to children and their families? The impetus for this essay comes from a study of the moral experience of 12 Canadian families—parents, ventilator-dependent child, and well siblings. These families express great love for their children, take on enormous responsibilities for care, live with uncertainty, and attempt to create "normal" home environments. Nevertheless, they experience social isolation, sometimes even from their extended families and health care providers. Their lives are constrained in many ways. The challenges faced by parents of technology-dependent children raise questions of justice within society and within families
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Bjørn Hofmann (2013). Ethical Challenges with Welfare Technology: A Review of the Literature. [REVIEW] Science and Engineering Ethics 19 (2):389-406.
B. Cox-White & S. F. Boxall (2008). Redefining Disability: Maleficent, Unjust and Inconsistent. Journal of Medicine and Philosophy 33 (6):558-576.
Similar books and articles
Laurence D. Houlgate (2002). Lainie Friedman Ross, Children, Families, and Health Care Decision‐Making:Children, Families, and Health Care Decision‐Making. Ethics 112 (3):639-641.
Marsha H. Cohen (1995). Ethical Issues in Discharge Planning for Vulnerable Infants and Children. Ethics and Behavior 5 (1):1 – 13.
Erika Blacksher (2008). Children's Health Inequalities: Ethical and Political Challenges to Seeking Social Justice. Hastings Center Report 38 (4):pp. 28-35.
Michael McFall (2009). Licensing Parents: Family, State, and Child Maltreatment. Rowman and Littlefield.
J. Mark Halstead (1999). Moral Education in Family Life: The Effects of Diversity. Journal of Moral Education 28 (3):265-281.
Sandy Farquhar (2012). Narrative Identity and Early Childhood Education. Educational Philosophy and Theory 44 (3):289-301.
Arlene S. Kanter, Permanency Planning for Children with Disabilities: Enforcing the Right of All Children to Live with a Family.
Added to index2009-01-28
Total downloads12 ( #200,659 of 1,725,558 )
Recent downloads (6 months)4 ( #167,283 of 1,725,558 )
How can I increase my downloads?