Acceptance, avoidance, and ambiguity: Conflicting social values about childhood disability
Kennedy Institute of Ethics Journal 15 (4):371-383 (2005)
| Abstract | : Advances in medical technology now permit children who need ventilator assistance to live at home rather than in hospitals or institutions. What does this ventilator-dependent life mean to children and their families? The impetus for this essay comes from a study of the moral experience of 12 Canadian families—parents, ventilator-dependent child, and well siblings. These families express great love for their children, take on enormous responsibilities for care, live with uncertainty, and attempt to create "normal" home environments. Nevertheless, they experience social isolation, sometimes even from their extended families and health care providers. Their lives are constrained in many ways. The challenges faced by parents of technology-dependent children raise questions of justice within society and within families | |||||||||
| Keywords | No keywords specified (fix it) | |||||||||
| Categories | ||||||||||
| Options |
|
|||||||||
Download options| PhilPapers Archive |
Upload a copy of this paper Check publisher's policy on self-archival Papers currently archived: 5,709 |
| External links |
 |
| Through your library | Configure |
Similar books and articlesLaurence D. Houlgate (2002). Lainie Friedman Ross, Children, Families, and Health Care Decision‐Making:Children, Families, and Health Care Decision‐Making. Ethics 112 (3):639-641.
Marsha H. Cohen (1995). Ethical Issues in Discharge Planning for Vulnerable Infants and Children. Ethics and Behavior 5 (1):1 – 13.
Erika Blacksher (2008). Children's Health Inequalities: Ethical and Political Challenges to Seeking Social Justice. Hastings Center Report 38 (4):pp. 28-35.
Michael McFall (2009). Licensing Parents: Family, State, and Child Maltreatment. Rowman and Littlefield.
J. Mark Halstead (1999). Moral Education in Family Life: The Effects of Diversity. Journal of Moral Education 28 (3):265-281.
Sandy Farquhar (2012). Narrative Identity and Early Childhood Education. Educational Philosophy and Theory 44 (3):289-301.
Analytics
Monthly downloads |
Added to index2009-01-28Total downloads3 ( #202,107 of 549,699 )Recent downloads (6 months)0How can I increase my downloads? |
My notes
Discussion
