Bioethics 26 (7):369-375 (2012)
|Abstract||While research on children is supported by many professional guidelines, international declarations and domestic legislation, when it is undertaken on children with no possibility of direct benefit it rests on shaky moral foundations. A number of authors have suggested that research enrolment is in the child's best interests, or that they have a moral duty or societal obligation to participate. However, these arguments are unpersuasive. Rather, I will propose in this paper that research participation by children seems most reasonable when considered as an act of solidarity; a form of identification with, and provision of practical assistance to, those who are less well off. This is an articulation of the view that many children, and their parents, seem to take seriously the suffering of others, and wish to assist in advancing other children's wellbeing. Perhaps, by fostering an environment in which children are encouraged to take solidarity seriously, participation in research which holds out substantial hope of benefit to those less well off would come to be perceived as a behavioural norm rather than an exceptional practice|
|Keywords||No keywords specified (fix it)|
|Through your library||Configure|
Similar books and articles
Sonja Grover (2003). On the Limits of Parental Proxy Consent: Children's Right to Non-Participation in Non-Therapeutic Research. Journal of Academic Ethics 1 (4):349-383.
Terrence F. Ackerman (1980). Moral Duties of Parents and Nontherapeutic Clinical Research Procedures Involving Children. Bioethics Quarterly 2 (2):94-111.
David Wendler & Seema Shah (2003). Should Children Decide Whether They Are Enrolled in Nonbeneficial Research? American Journal of Bioethics 3 (4):1 – 7.
Lorraine Young & Hazel Barrett (2001). Ethics and Participation: Reflections on Research with Street Children. Ethics, Place and Environment 4 (2):130 – 134.
Rona Abramovitch, Jonathan L. Freedman, Kate Henry & Michelle Van Brunschot (1995). Children's Capacity to Agree to Psychological Research: Knowledge of Risks and Benefits and Voluntariness. Ethics and Behavior 5 (1):25 – 48.
Lainie Friedman Ross (2003). Responding to the Challenge of the Children's Health Act: An Introduction to Children in Research. Theoretical Medicine and Bioethics 24 (2).
Jérémy Vanhelst, Ludovic Hardy, Dina Bert, Stéphane Duhem, Stéphanie Coopman, Christian Libersa, Dominique Deplanque, Frédéric Gottrand & Laurent Béghin (2013). Effect of Child Health Status on Parents' Allowing Children to Participate in Pediatric Research. BMC Medical Ethics 14 (1):7.
Judy A. Kyle, Investigating Philosophical Discussion with Children as Co-Researchers : A Case Story of Doing Educative Research Using Collaborative Philosophical Inquiry.
Victoria A. Miller, William W. Reynolds & Robert M. Nelson (2008). Parent-Child Roles in Decision Making About Medical Research. Ethics and Behavior 18 (2 & 3):161 – 181.
Sonja Grover (2003). Social Research in the Advancement of Children's Rights. Journal of Academic Ethics 1 (1):119-130.
Stephen Andrew Butterfill (2010). Children's Selective Learning From Others. Review of Philosophy and Psychology 1 (4):551-561.
Erika Nurmsoo, Elizabeth Robinson & Stephen Andrew Butterfill (2010). Children's Selective Learning From Others. Review of Philosophy and Psychology 1 (4):551-561.
Peter Mitchell, Ulrich Teucher, Mark Bennett, Fenja Ziegler & Rebecca Wyton (2009). Do Children Start Out Thinking They Don't Know Their Own Minds? Mind and Language 24 (3):328-346.
Lillian M. Range & C. Randy Cotton (1995). Reports of Assent and Permission in Research with Children: Illustrations and Suggestions. Ethics and Behavior 5 (1):49 – 66.
Claudia Wiesemann (2009). Off-Label, Off-Limits? Parental Awareness and Attitudes Towards Off-Label Use in Paediatrics. European Journal of Pediatrics 168:1473-1478.
Sorry, there are not enough data points to plot this chart.
Added to index2012-07-26
Recent downloads (6 months)0
How can I increase my downloads?