Marginalizing Experience: A Critical Analysis of Public Discourse Surrounding Stem Cell Research in Australia (2005–6) [Book Review]
David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
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Journal of Bioethical Inquiry 8 (2):191-202 (2011)
Over the past decade, stem cell science has generated considerable public and political debate. These debates tend to focus on issues concerning the protection of nascent human life and the need to generate medical and therapeutic treatments for the sick and vulnerable. The framing of the public debate around these issues not only dichotomises and oversimplifies the issues at stake, but tends to marginalise certain types of voices, such as the women who donate their eggs and/or embryos to stem cell research and the patients who might benefit from its potential clinical outcomes. This paper draws on empirical research conducted on a recent stem cell policy episode in Australia. From the qualitative examination of 109 newspaper opinion editorials and twenty-three in-depth interviews, it is argued that these voices are marginalised because they are based on discourses that have less epistemological status in public debate. Our results suggest that the personal experiences of women and patients are marginalised by the alliances that form between more powerful discourse communities that use science as a source of authority and legitimation. It is argued that members of these communities establish legitimacy and assert authority in public debate by discursively deploying science in claims that marginalise other epistemologies. Implications are discussed along with suggestions for a more enriched and inclusive public debate.
|Keywords||Stem cells Cloning Bioethics Public policy|
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Jürgen Habermas (1991). The Structural Transformation of the Public Sphere: An Inquiry Into a Category of Bourgeois Society. The MIT Press.
Charles Murdoch & Christopher Thomas Scott (2010). Stem Cell Tourism and the Power of Hope. American Journal of Bioethics 10 (5):16-23.
Alan Irwin (2003). Science, Social Theory and Public Knowledge. Open University Press.
John Miles Little (2010). Is There a Real Nexus Between Ethics and Aesthetics? Journal of Bioethical Inquiry 7 (1):91-102.
Catherine Waldby & Brian Salter (2008). Global Governance in Human Embryonic Stem Cell Science: Standardisation and Bioethics in Research and Patenting. Studies in Ethics, Law, and Technology 2 (1).
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