David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Journal of Applied Philosophy 23 (1):1-16 (2006)
Is genetic information of special ethical significance? Does it require special regulation? There is considerable contemporary debate about this question . Genetic information is an ambiguous term and, as an aid to avoiding conflation in the genetic exceptionalism debate, a detailed account is given of just how and why genetic information is ambiguous. Whilst ambiguity is a ubiquitous problem of communication, it is suggested that genetic information is ambiguous in a particular way, one that gives rise to the problem of significance creep . A contextual and contrastive methodology is proposed: evaluating the significance of genetic information requires us to be sensitive to the polysemy of genetic information across contexts and then examine the contrast in significance of genetic, as opposed to nongenetic, information within contexts. This, in turn, suggests that a proper solution to the regulatory question requires us to pay more attention to how and why information, and its acquisition, possession and use, come to be of ethical significance
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Citations of this work BETA
Lars Øystein Ursin (2008). Biobank Research and the Right to Privacy. Theoretical Medicine and Bioethics 29 (4):267-285.
Ilhan Ilkilic (2009). Coming to Grips with Genetic Exceptionalism: Roots and Reach of an Explanatory Model. [REVIEW] Medicine Studies 1 (2):131-142.
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