David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Studies in Ethics, Law, and Technology 3 (1) (2009)
New advances in genomics changed the research landscape significantly in the last few years. The power and significance of already existing tissue collections is enhanced by their growing size, and all over the world national projects aim to connect with each other at the international level, calling for integrated and common regulations in the transnational research field. The post genomics era faces problems that are partially different from those within the classical bioethical framework. The challenge is to find new ways to deal with regulations in order to facilitate research without frustrating personal rights. Informed Consent has been the center of this wide debate. We propose a model for rethinking consent in an open-time/open-goal framework suitable to genomics research. Consensus becomes more than a single legal step and goes more in the direction of a participated governance mechanism, a circular open process of communication which the IC sheet signature is just one instance of. This approach provides a governance framework based on different levels of consensus and participation that already contains mechanisms to resolve conflicts between different instances and to protect both the interest of research and the rights of participants
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
Jeffrey H. Barker (2003). Common-Pool Resources and Population Genomics in Iceland, Estonia, and Tonga. Medicine, Health Care and Philosophy 6 (2):133-144.
Ernesto Schwartz-Marín & Irma Silva-Zolezzi (2010). “The Map of the Mexican’s Genome”: Overlapping National Identity, and Population Genomics. [REVIEW] Identity in the Information Society 3 (3):489-514.
Herman T. Tavani (2004). Genomic Research and Data-Mining Technology: Implications for Personal Privacy and Informed Consent. Ethics and Information Technology 6 (1):15-28.
M. Bartesaghi (2011). On Making Process Practically Visible, or Moving Constructivism Beyond Philosophical Argumentation. Constructivist Foundations 7 (1):22-24.
Brian G. Henning (2007). Consenting to God and Nature. Process Studies 36 (2):345-348.
Philip Clayton (2008). Open Panentheism and Creatio Ex Nihilo. Process Studies 37 (1):166-183.
Joan L. McGregor (2007). Population Genomics and Research Ethics with Socially Identifable Groups. Journal of Law, Medicine & Ethics 35 (3):356-370.
Eric T. Juengst (1998). Groups as Gatekeepers to Genomic Research: Conceptually Confusing, Morally Hazardous, and Practically Useless. Kennedy Institute of Ethics Journal 8 (2):183-200.
Karl Grammer (2002). Is There Empirical Evidence for the Dynamic Nature of Communication Systems?: The Role of Synchronization and Inferential Communication. Behavioral and Brain Sciences 25 (5):625-626.
Jordan Bartol (2013). Re-Examining the Gene in Personalized Genomics. Science and Education 22 (10):2529-2546.
Michel Morange (2006). Post-Genomics, Between Reduction and Emergence. Synthese 151 (3):355 - 360.
Éric Racine (2003). Discourse Ethics as an Ethics of Responsibility: Comparison and Evaluation of Citizen Involvement in Population Genomics. Journal of Law, Medicine & Ethics 31 (3):390-397.
Added to index2010-09-14
Total downloads6 ( #453,572 of 1,792,063 )
Recent downloads (6 months)1 ( #463,566 of 1,792,063 )
How can I increase my downloads?