David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Ezio Di Nucci
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Law, Medicine & Ethics 36 (1):150-173 (2008)
Patients belonging to ethnic, racial, and religious minorities have been all but excluded from the legal academy's on-going conversation about informed consent. This article repairs that egregious omission. It begins by observing the narrowing of ethical justifications that underlie our informed consent law, tracing the ethical literature from the ancients to modern formulations of autonomy-centered models. Next, this article reviews the vast body of empirical data available in social science literature, that demonstrates how distinct from the autonomy model the broad range of values and priorities held by patients from racial, ethnic, and religious minority groups is. The conclusion that informed consent's focus on the western notion of autonomy affirmatively harms minority patients is inescapable. The article concludes by offering a fiduciary model of informed consent law that could improve the quality of health care for more than 100 million minority patients, potentially at risk under current law while also regulating the informed consent procedure and practice in a way that will bring balance and justice to all American patients and providers.
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Tom L. Beauchamp (2009). Principles of Biomedical Ethics. Oxford University Press.
William K. Frankena (1973). Ethics. Englewood Cliffs, N.J.,Prentice-Hall.
Joel Feinberg (1971). Legal Paternalism. Canadian Journal of Philosophy 1 (1):105 - 124.
Robert J. Levine (1991). Informed Consent: Some Challenges to the Universal Validity of the Western Model. Journal of Law, Medicine & Ethics 19 (3-4):207-213.
H. Eugene Hern, Barbara A. Koenig, Lisa Jean Moore & Patricia A. Marshall (1998). The Difference That Culture Can Make in End-of-Life Decisionmaking. Cambridge Quarterly of Healthcare Ethics 7 (1):27-40.
Citations of this work BETA
Dianne Quigley (2015). Promoting Human Subjects Training for Place-Based Communities and Cultural Groups in Environmental Research: Curriculum Approaches for Graduate Student/Faculty Training. Science and Engineering Ethics 21 (1):209-226.
Kathryn E. Artnak, Richard M. McGraw & Vayden F. Stanley (2011). Health Care Accessibility for Chronic Illness Management and End-of-Life Care: A View From Rural America. Journal of Law, Medicine & Ethics 39 (2):140-155.
Similar books and articles
Stephen Wear & Jonathan D. Moreno (1994). Informed Consent: Patient Autonomy and Physician Beneficence Within Clinical Medicine. [REVIEW] HEC Forum 6 (5):323-325.
Emmanuel R. Ezeome & Patricia A. Marshall (2009). Informed Consent Practices in Nigeria. Developing World Bioethics 9 (3):138-148.
M. Sheehan (2011). Can Broad Consent Be Informed Consent? Public Health Ethics 4 (3):226-235.
Emma C. Bullock (2010). Informed Consent as Waiver: The Doctrine Rethought? Ethical Perspectives 17 (4):529-555.
Jukka Varelius (2012). On Taylor's Justification of Medical Informed Consent. Bioethics 26 (4):207-214.
Stephen Wear (1999). Enhancing Clinician Provision of Informed Consent and Counseling: Some Pedagogical Strategies. Journal of Medicine and Philosophy 24 (1):34 – 42.
Leonard J. Haas (1991). Hide-and-Seek or Show-and-Tell? Emerging Issues of Informed Consent. Ethics and Behavior 1 (3):175 – 189.
Deborah Bowman (2011). Informed Consent: A Primer for Clinical Practice. Cambridge University Press.
Sheila McLean (2010). Autonomy, Consent and the Law. Routledge-Cavendish.
Added to index2009-01-28
Total downloads25 ( #159,094 of 1,911,102 )
Recent downloads (6 months)1 ( #457,075 of 1,911,102 )
How can I increase my downloads?