David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Law, Medicine and Ethics 36 (1):150-173 (2008)
Patients belonging to ethnic, racial, and religious minorities have been all but excluded from the legal academy's on-going conversation about informed consent. This article repairs that egregious omission. It begins by observing the narrowing of ethical justifications that underlie our informed consent law, tracing the ethical literature from the ancients to modern formulations of autonomy-centered models. Next, this article reviews the vast body of empirical data available in social science literature, that demonstrates how distinct from the autonomy model the broad range of values and priorities held by patients from racial, ethnic, and religious minority groups is. The conclusion that informed consent's focus on the western notion of autonomy affirmatively harms minority patients is inescapable. The article concludes by offering a fiduciary model of informed consent law that could improve the quality of health care for more than 100 million minority patients, potentially at risk under current law while also regulating the informed consent procedure and practice in a way that will bring balance and justice to all American patients and providers.
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Tom L. Beauchamp (2009). Principles of Biomedical Ethics. Oxford University Press.
Erika Blacksher (1998). Desperately Seeking Difference. Cambridge Quarterly of Healthcare Ethics 7 (01):11-16.
Joel Feinberg (1971). Legal Paternalism. Canadian Journal of Philosophy 1 (1):105 - 124.
William K. Frankena (1973). Ethics. Englewood Cliffs, N.J.,Prentice-Hall.
Ingrid Hanssen (2005). From Human Ability to Ethical Principle: An Intercultural Perspective on Autonomy. Medicine, Health Care and Philosophy 7 (3):269-279.
Citations of this work BETA
Kathryn E. Artnak, Richard M. McGraw & Vayden F. Stanley (2011). Health Care Accessibility for Chronic Illness Management and End-of-Life Care: A View From Rural America. Journal of Law, Medicine and Ethics 39 (2):140-155.
Dianne Quigley (forthcoming). Promoting Human Subjects Training for Place-Based Communities and Cultural Groups in Environmental Research: Curriculum Approaches for Graduate Student/Faculty Training. Science and Engineering Ethics:1-18.
Similar books and articles
Stephen Wear & Jonathan D. Moreno (1994). Informed Consent: Patient Autonomy and Physician Beneficence Within Clinical Medicine. [REVIEW] HEC Forum 6 (5):323-325.
Emmanuel R. Ezeome & Patricia A. Marshall (2009). Informed Consent Practices in Nigeria. Developing World Bioethics 9 (3):138-148.
M. Sheehan (2011). Can Broad Consent Be Informed Consent? Public Health Ethics 4 (3):226-235.
Emma Bullock (2010). Informed Consent as Waiver: The Doctrine Rethought? Ethical Perspectives 17 (4):529-555.
Jukka Varelius (2010). On Taylor's Justification of Medical Informed Consent. Bioethics 26 (4):207-214.
Stephen Wear (1999). Enhancing Clinician Provision of Informed Consent and Counseling: Some Pedagogical Strategies. Journal of Medicine and Philosophy 24 (1):34 – 42.
Leonard J. Haas (1991). Hide-and-Seek or Show-and-Tell? Emerging Issues of Informed Consent. Ethics and Behavior 1 (3):175 – 189.
Deborah Bowman (2011). Informed Consent: A Primer for Clinical Practice. Cambridge University Press.
Sheila McLean (2010). Autonomy, Consent and the Law. Routledge-Cavendish.
Added to index2009-01-28
Total downloads21 ( #81,620 of 1,101,622 )
Recent downloads (6 months)1 ( #292,059 of 1,101,622 )
How can I increase my downloads?