David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Law, Medicine & Ethics 35 (3):356-370 (2007)
In this paper, the author questions whether the research ethics guidelines and procedures are robust enough to protect groups when conducting genetics research with socially identifiable populations, particularly with Native American groups. The author argues for a change in the federal guidelines in substance and procedures of conducting genetic research with socially identifiable groups
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
Dena S. Davis (2004). Genetic Research & Communal Narratives. Hastings Center Report 34 (4):40-49.
Leslie P. Francis, Margaret P. Battin, Jay A. Jacobson, Charles B. Smith & And Jeffrey Botkin (2005). How Infectious Diseases Got Left Out – and What This Omission Might Have Meant for Bioethics. Bioethics 19 (4):307–322.
Leslie P. Francis, Margaret P. Battin, Jay A. Jacobson, Charles B. Smith & Jeffrey Botkin (2005). How Infectious Diseases Got Left Out–and What This Omission Might Have Meant for Bioethics. Bioethics 19 (4):307-322.
B. Godard, J. Marshall, C. Laberge & B. M. Knoppers (2004). Strategies for Consulting with the Community: The Cases of Four Large-Scale Genetic Databases. Science and Engineering Ethics 10 (3):457-477.
J. Harris (2005). Scientific Research is a Moral Duty. Journal of Medical Ethics 31 (4):242-248.
Citations of this work BETA
Rebecca Tsosie (2007). Cultural Challenges to Biotechnology: Native American Genetic Resources and the Concept of Cultural Harm. Journal of Law, Medicine & Ethics 35 (3):396-411.
Stephanie Fullerton & Sandra Lee (2011). Secondary Uses and the Governance of De-Identified Data: Lessons From the Human Genome Diversity Panel. [REVIEW] BMC Medical Ethics 12 (1):16-.
Rebecca Tsosie & Joan L. McGregor (2007). Genome Justice: Genetics and Group Rights. Journal of Law, Medicine & Ethics 35 (3):352-355.
Similar books and articles
Eric T. Juengst (1998). Groups as Gatekeepers to Genomic Research: Conceptually Confusing, Morally Hazardous, and Practically Useless. Kennedy Institute of Ethics Journal 8 (2):183-200.
Herman T. Tavani (2004). Genomic Research and Data-Mining Technology: Implications for Personal Privacy and Informed Consent. Ethics and Information Technology 6 (1):15-28.
Jeffrey H. Barker (2003). Common-Pool Resources and Population Genomics in Iceland, Estonia, and Tonga. Medicine, Health Care and Philosophy 6 (2):133-144.
Éric Racine (2003). Discourse Ethics as an Ethics of Responsibility: Comparison and Evaluation of Citizen Involvement in Population Genomics. Journal of Law, Medicine & Ethics 31 (3):390-397.
Gordon R. Mitchell (2001). Defining the Subject of Consent in DNA Research. Journal of Medical Humanities 22 (1):41-53.
Gail E. Henderson, Eric T. Juengst, Nancy M. P. King, Kristine Kuczynski & Marsha Michie (2012). What Research Ethics Should Learn From Genomics and Society Research: Lessons From the ELSI Congress of 2011. Journal of Law, Medicine & Ethics 40 (4):1008-1024.
Deborah Mascalzoni, Andrew Hicks & Peter P. Pramstaller (2009). Consenting in Population Genomics as an Open Communication Process. Studies in Ethics, Law, and Technology 3 (1).
Ernesto Schwartz-Marín & Irma Silva-Zolezzi (2010). The Map of the Mexican’s Genome”: Overlapping National Identity, and Population Genomics. [REVIEW] Identity in the Information Society 3 (3):489-514.
Pamela Fisher (2012). Ethics in Qualitative Research: 'Vulnerability', Citizenship and Human Rights. Ethics and Social Welfare 6 (1):2-17.
Henry T. Greely (2001). Human Genomics Research: New Challenges for Research Ethics. Perspectives in Biology and Medicine 44 (2):221-229.
György Széll (1994). The Prospects of Labour-Oriented Science and Research in the Nineties. AI and Society 8 (3):197-206.
Robert Streiffer (2005). An Ethical Analysis of Ojibway Objections to Genomics and Genetics Research on Wild Rice. Philosophy in the Contemporary World 12 (2):37-45.
Beth Savan (1989). Beyond Professional Ethics: Issues and Agendas. [REVIEW] Journal of Business Ethics 8 (2-3):179 - 185.
Jeff Blackmer (2003). The Unique Ethical Challenges of Conducting Research in the Rehabilitation Medicine Population. BMC Medical Ethics 4 (1):1-6.
Larry Gostin (1991). Ethical Principles for the Conduct of Human Subject Research: Population-Based Research and Ethics. Journal of Law, Medicine & Ethics 19 (3-4):191-201.
Sorry, there are not enough data points to plot this chart.
Added to index2010-08-31
Total downloads2 ( #496,871 of 1,696,455 )
Recent downloads (6 months)1 ( #339,107 of 1,696,455 )
How can I increase my downloads?