David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Journal of Law, Medicine and Ethics 35 (3):356-370 (2007)
In this paper, the author questions whether the research ethics guidelines and procedures are robust enough to protect groups when conducting genetics research with socially identifiable populations, particularly with Native American groups. The author argues for a change in the federal guidelines in substance and procedures of conducting genetic research with socially identifiable groups
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References found in this work BETA
Dena S. Davis (2004). Genetic Research & Communal Narratives. Hastings Center Report 34 (4):40-49.
Leslie P. Francis, Margaret P. Battin, Jay A. Jacobson, Charles B. Smith & And Jeffrey Botkin (2005). How Infectious Diseases Got Left Out – and What This Omission Might Have Meant for Bioethics. Bioethics 19 (4):307–322.
Leslie P. Francis, Margaret P. Battin, Jay A. Jacobson, Charles B. Smith & Jeffrey Botkin (2005). How Infectious Diseases Got Left Out–and What This Omission Might Have Meant for Bioethics. Bioethics 19 (4):307-322.
B. Godard, J. Marshall, C. Laberge & B. M. Knoppers (2004). Strategies for Consulting with the Community: The Cases of Four Large-Scale Genetic Databases. Science and Engineering Ethics 10 (3):457-477.
J. Harris (2005). Scientific Research is a Moral Duty. Journal of Medical Ethics 31 (4):242-248.
Citations of this work BETA
Rebecca Tsosie (2007). Cultural Challenges to Biotechnology: Native American Genetic Resources and the Concept of Cultural Harm. Journal of Law, Medicine and Ethics 35 (3):396-411.
Stephanie Fullerton & Sandra Lee (2011). Secondary Uses and the Governance of De-Identified Data: Lessons From the Human Genome Diversity Panel. [REVIEW] BMC Medical Ethics 12 (1):16-.
Rebecca Tsosie & Joan L. McGregor (2007). Genome Justice: Genetics and Group Rights. Journal of Law, Medicine and Ethics 35 (3):352-355.
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