David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Journal of Medical Ethics 30 (5):459-461 (2004)
Background/Aim: The law on consent has changed in Scotland with the introduction of the Adults with Incapacity Act 2000. This Act introduces the concept of proxy consent in Scotland. Many patients in intensive care are unable to participate in the decision making process because of their illness and its treatment. It is normal practice to provide relatives with information on the patient’s condition, treatment, and prognosis as a substitute for discussion directly with the patient. The relatives of intensive care patients appeared to believe that they already had the right to consent on behalf of an incapacitated adult. The authors’ aim was to assess the level of knowledge among relatives of intensive care patients of both the old and new law using a structured questionnaire.Methods: The next of kin of 100 consecutive patients completed a structured questionnaire. Each participant had the questions read to them and their answers recorded. Patients were not involved in the study.Results: Few were aware of the changes. Most thought that they previously could give consent on behalf of an incapacitated adult. Only 13% have ever discussed the preferences for life sustaining treatment with the patient but 84% felt that they could accurately represent the patient’s wishes.Conclusions: There appeared to be a lack of public awareness of the impending changes. The effectiveness of the Act at improving the care of the mentally incapacitated adult will depend largely on how successful it is at encouraging communication and decision making in advance of incapacity occurring
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
No citations found.
Similar books and articles
Kath M. Melia (2004). Health Care Ethics: Lessons From Intensive Care. Sage Publications.
Tony Hope, John Mcmillan & Elaine Hill (2010). Intensive Care Triage: Priority Should Be Independent of Whether Patients Are Already Receiving Intensive Care. Bioethics 26 (5):259-266.
Mark Coeckelbergh & Jessica Mesman (2007). With Hope and Imagination: Imaginative Moral Decision-Making in Neonatal Intensive Care Units. [REVIEW] Ethical Theory and Moral Practice 10 (1):3 - 21.
Govert den Hartogh (2012). The Role of the Relatives in Opt-in Systems of Postmortal Organ Procurement. Medicine, Health Care and Philosophy 15 (2):195-205.
James L. Werth & Dean Blevins (eds.) (2008). Decision Making Near the End of Life: Issues, Development, and Future Directions. Brunner-Routledge.
E. J. O. Kompanje (2009). Ethical Decision-Making in Two Patients with Locked-in Syndrome on the Intensive Care Unit. Clinical Ethics 4 (2):98-101.
A. J. Ravenscroft (2000). 'End-of-Life' Decision Making Within Intensive Care - Objective, Consistent, Defensible? Journal of Medical Ethics 26 (6):435-440.
F. D. Ganz (2006). The Impact of Regional Culture on Intensive Care End of Life Decision Making: An Israeli Perspective From the ETHICUS Study. Journal of Medical Ethics 32 (4):196-199.
Gretchen B. Chapman & Frank A. Sonnenberg (eds.) (2000). Decision Making in Health Care: Theory, Psychology, and Applications. Cambridge University Press.
R. Lind, G. F. Lorem, P. Nortvedt & O. Hevroy (2012). Intensive Care Nurses' Involvement in the End-of-Life Process - Perspectives of Relatives. Nursing Ethics 19 (5):666-676.
Douglas N. Walton (1983). Ethics of Withdrawal of Life-Support Systems: Case Studies on Decision-Making in Intensive Care. Greenwood Press.
Joseph DeMarco, Douglas Powell & Douglas Stewart (2011). Best Interest of the Child: Surrogate Decision Making and the Economics of Externalities. [REVIEW] Journal of Bioethical Inquiry 8 (3):289-298.
Hanne Irene Jensen, Jette Ammentorp, Helle Johannessen & Helle Ørding (2013). Challenges in End-of-Life Decisions in the Intensive Care Unit: An Ethical Perspective. [REVIEW] Journal of Bioethical Inquiry 10 (1):93-101.
C. Chenaud, P. Merlani, M. Verdon & B. Ricou (2009). Who Should Consent for Research in Adult Intensive Care? Preferences of Patients and Their Relatives: A Pilot Study. Journal of Medical Ethics 35 (11):709-712.
D. Micah Hester (2010). End-of-Life Care and Pragmatic Decision Making: A Bioethical Perspective. Cambridge University Press.
Added to index2010-08-24
Total downloads3 ( #340,424 of 1,679,344 )
Recent downloads (6 months)1 ( #183,792 of 1,679,344 )
How can I increase my downloads?