David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Ethics and Behavior 14 (3):255 – 295 (2004)
This narrative review summarizes the empirical literature on children's competence for consent and assent in research and treatment settings. Studies varied widely regarding methodology, particularly in the areas of participant sampling, situational context studied (e.g., psychological versus medical settings), procedures used (e.g., lab-based vs. real-world approaches), and measurement of competence. This review also identified several fundamental dilemmas underlying approaches to children's informed consent. These dilemmas, including autonomy versus best interests approaches, legal versus psychological or ethical approaches, child- versus family-based approaches, and approaches that emphasize consent versus those that emphasize assent, have implications for the measurement of children's competence and interpretation of findings. Recommendations for future research in the area of children's informed consent include the use of diverse samples and control groups, development of multidimensional and standardized measures of competence, utilization of observational methods and longitudinal designs, examination of noncognitive aspects of children's competence, and comparison of children's competence for treatment and research decisions.
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
|Through your library||Configure|
References found in this work BETA
No references found.
Citations of this work BETA
Theresa Li-Na Tang & Thomas Li-Ping Tang (2011). Finding the Lost Sheep: A Panel Study of Business Students' Intrinsic Religiosity, Machiavellianism, and Unethical Behavior Intentions. Ethics and Behavior 20 (5):352-379.
Elizabeth Carpenter‐Song (2009). Children's Sense of Self in Relation to Clinical Processes: Portraits of Pharmaceutical Transformation. Ethos 37 (3):257-281.
Similar books and articles
Farah Focquaert (2013). Deep Brain Stimulation in Children: Parental Authority Versus Shared Decision-Making. Neuroethics 6 (3):447-455.
Benedetto Vitiello (2008). Effectively Obtaining Informed Consent for Child and Adolescent Participation in Mental Health Research. Ethics and Behavior 18 (2 & 3):182 – 198.
David Wendler & Seema Shah (2003). Should Children Decide Whether They Are Enrolled in Nonbeneficial Research? American Journal of Bioethics 3 (4):1 – 7.
T. M. Wilkinson (2001). Parental Consent and the Use of Dead Children's Bodies. Kennedy Institute of Ethics Journal 11 (4):337-358.
Wilma C. Rossi, William Reynolds & Robert M. Nelson (2003). Child Assent and Parental Permission in Pediatric Research. Theoretical Medicine and Bioethics 24 (2):131-148.
Lillian M. Range & C. Randy Cotton (1995). Reports of Assent and Permission in Research with Children: Illustrations and Suggestions. Ethics and Behavior 5 (1):49 – 66.
Cheryl M. Sterling & Gary A. Walco (2003). Protection of Children's Rights to Self-Determination in Research. Ethics and Behavior 13 (3):237 – 247.
Jessica Masty & Celia Fisher (2008). A Goodness-of-Fit Approach to Informed Consent for Pediatric Intervention Research. Ethics and Behavior 18 (2 & 3):139 – 160.
Susan E. Zinner (1995). The Elusive Goal of Informed Consent by Adolescents. Theoretical Medicine and Bioethics 16 (4).
Added to index2009-01-28
Total downloads16 ( #85,963 of 1,088,818 )
Recent downloads (6 months)1 ( #69,666 of 1,088,818 )
How can I increase my downloads?