David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Kennedy Institute of Ethics Journal 16 (4):353-366 (2006)
: The "therapeutic misconception," described by Paul Appelbaum and colleagues more than 20 years ago, refers to the tendency of participants in clinical trials to confuse the design and conduct of research with personalized medical care. Although the "therapeutic misconception" has become a term of art in research ethics, little systematic attention has been devoted to the ethical significance of this phenomenon. This article examines critically the way in which Appelbaum and colleagues formulate what is at stake in the therapeutic misconception, paying particular attention to assumptions and implications that clinical trial participation disadvantages research participants as compared with receiving standard medical care. After clarifying the ethical significance of the therapeutic misconception with respect to the decision making of patients, we offer policy recommendations for obtaining informed consent to participation in clinical trials.
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Citations of this work BETA
Charles W. Lidz, Karen Albert, Paul Appelbaum, Laura B. Dunn, Eve Overton & Ekaterina Pivovarova (2015). Why Is Therapeutic Misconception So Prevalent? Cambridge Quarterly of Healthcare Ethics 24 (2):231-241.
Howard Trachtman (2009). To Study, Perchance to Treat. American Journal of Bioethics 9 (2):11 – 12.
Moses Laman, William Pomat, Peter Siba & Inoni Betuela (2013). Ethical Challenges in Integrating Patient-Care with Clinical Research in a Resource-Limited Setting: Perspectives From Papua New Guinea. [REVIEW] BMC Medical Ethics 14 (1):29.
Anne Townsend & Susan M. Cox (2013). Accessing Health Services Through the Back Door: A Qualitative Interview Study Investigating Reasons Why People Participate in Health Research in Canada. [REVIEW] BMC Medical Ethics 14 (1):40.
Conrad Fernandez (2008). Public Expectations for Return of Results—Time to Stop Being Paternalistic? American Journal of Bioethics 8 (11):46-48.
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