David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
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Kennedy Institute of Ethics Journal 21 (3):201-218 (2011)
Prevailing ethical thinking about informed consent to clinical research is characterized by theoretical confidence and practical disquiet. On the one hand, bioethicists are confident that informed consent is a fundamental norm. And, for the most part, they are confident that what makes consent to research valid is that it constitutes an autonomous authorization by the research participant. On the other hand, bioethicists are uneasy about the quality of consent in practice. One major source of this disquiet is substantial evidence of the “therapeutic misconception”—the tendency of patient-subjects in clinical trials to confuse participating in research with receiving personalized medical care. This ..
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D. Bromwich (2015). Understanding, Interests and Informed Consent: A Reply to Sreenivasan. Journal of Medical Ethics 41 (4):327-331.
Franklin G. Miller & Luke Gelinas (2013). Nudging, Autonomy, and Valid Consent: Context Matters. American Journal of Bioethics 13 (6):12-13.
Bart W. Schermer, Bart Custers & Simone van der Hof (forthcoming). The Crisis of Consent: How Stronger Legal Protection May Lead to Weaker Consent in Data Protection. Ethics and Information Technology 16 (2):171-182.
Danielle Bromwich & Annette Rid (2015). Can Informed Consent to Research Be Adapted to Risk? Journal of Medical Ethics 41 (7):521-528.
F. G. Miller & S. Joffe (2013). Phase 1 Oncology Trials and Informed Consent. Journal of Medical Ethics 39 (12):761-764.
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