David Bourget (Western Ontario)
David Chalmers (ANU, NYU)
Rafael De Clercq
Jack Alan Reynolds
Learn more about PhilPapers
Studies in History and Philosophy of Science Part C 32 (4):689-704 (2001)
In the last 25 years writing in bioethics, particularly in medical ethics, has generally claimed that action is ethically acceptable only if it receives informed consent from those affected. However, informed consent provides only limited justification, and may provide even less as new information technologies are used to store and handle personal data, including personal genetic data. The central philosophical weakness of relying on informed consent procedures for ethical justification is that consent is a propositional attitude, so referentially opaque: consent is given to specific propositions describing limited aspects of a situation, and does not transfer even to closely related propositions. Assembling genetic data in databases creates additional difficulties for ethical justification. This is not because genetic information is intrinsically exceptional, but because the merger of genetic and information technologies make it possible to assemble massive quantities of complex information that defeat individuals' best efforts to grasp what is at stake, or to give or withhold informed consent. The future agenda for bioethics will need to take account of both these limitations of appeals to informed consent.
|Keywords||No keywords specified (fix it)|
|Categories||categorize this paper)|
Setup an account with your affiliations in order to access resources via your University's proxy server
Configure custom proxy (use this if your affiliation does not provide a proxy)
|Through your library|
References found in this work BETA
No references found.
Citations of this work BETA
Margit Sutrop (2011). Changing Ethical Frameworks: From Individual Rights to the Common Good? Cambridge Quarterly of Healthcare Ethics 20 (04):533-545.
Vilhjálmur Árnason (2011). Database Research: Public and Private Interests. Cambridge Quarterly of Healthcare Ethics 20 (04):563-571.
Similar books and articles
Tom Walker (2011). Informed Consent and the Requirement to Ensure Understanding. Journal of Applied Philosophy 29 (1):50-62.
Oonagh Corrigan (ed.) (2009). The Limits of Consent: A Socio-Ethical Approach to Human Subject Research in Medicine. Oxford University Press.
Jukka Varelius (2010). On Taylor's Justification of Medical Informed Consent. Bioethics 26 (4):207-214.
Neil C. Manson (2007). Rethinking Informed Consent in Bioethics. Cambridge University Press.
Shaun D. Pattinson (2009). Consent and Informational Responsibility. Journal of Medical Ethics 35 (3):176-179.
Timothy Caulfield, Ross Upshur & Abdallah Daar (2003). DNA Databanks and Consent: A Suggested Policy Option Involving an Authorization Model. [REVIEW] BMC Medical Ethics 4 (1):1-4.
Deborah Bowman (2011). Informed Consent: A Primer for Clinical Practice. Cambridge University Press.
Asya Al-Riyami, Deepali Jaju, Sanjay Jaju & Henry J. Silverman (2011). The Adequacy of Informed Consent Forms in Genetic Research in Oman: A Pilot Study. Developing World Bioethics 11 (2):57-62.
Sheila McLean (2010). Autonomy, Consent and the Law. Routledge-Cavendish.
Added to index2009-01-28
Total downloads16 ( #110,688 of 1,140,107 )
Recent downloads (6 months)1 ( #147,976 of 1,140,107 )
How can I increase my downloads?